Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Melody, You should put that in the files section of the group homepage. I'm sure a lot of members would like to have it available to use. lisa n. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 > > A friend sent me this, thought you'd all like it. > > > > > FIBROMYALGIA TALKS TO YOU > > > > Hi! My name is Fibromyalgia and I'm YOUR invisible chronic illness. I > am now velcro'ed to you for life. Others around you can't see me or > hear me, but YOUR body feels me. I can attack you anywhere and anyhow I > please. I can cause you severe pain or, if I'm in a good mood, I can > just cause you to ache all over. Remember when you and Energy ran > around together and had fun? I took Energy from you and gave you > Exhaustion (the chronic fatigue that I send to follow you with this). > Try to have fun now! I also took Good Sleep from you and, in its place, > gave you Brain Fog (when you can't remember what you were talking about > 5 minutes before). I can make you tremble internally or make you feel > cold or hot when everyone else feels normal. Oh, yeah, I can make you > feel anxious or depressed too. If you have something planned, or are > looking forward to a great day, I can take that away too. > > > > You didn't ask for me. I chose you for various reasons: that virus you > had that you never recovered from, or that car accident, or maybe it was > the years of abuse, trauma or stress. Well anyway, I'm here to stay! I > hear you're going to see a doctor who can " get rid " of me. I'm rolling > on the floor, laughing. Just try! You will have to go to many, many > doctors until you find one who even BELIEVES I EXIST. You will be put > on pain pills, sleeping pills, energy pills or shots, told you are > suffering from anxiety or depression, given a TENs unit, get massaged, > told if you just sleep and exercise more, I will go away, told to think > positive, poked, prodded, and MOST OF ALL, laughed at when you tell the > doctor I am debilitating. > > > > Your family, friends and co-workers will all listen to you until they > just get tired of hearing about how I make you feel, and that I'm a real > disease. Some of them will say things like, " Oh, you're just having a > bad day, " or " Well, remember, you can't do the things you use to do 20 > YEARS AGO, " not hearing that you said 20 days ago. Some will just > start talking behind your back, " All she does is whine, " or " She sure is > a hypochondriac. " Slowly you will feel that you are losing your dignity > trying to make them understand, especially, when you are in the middle > of a conversation with a " normal " person, and can't remember what you > were going to say next! Eventually most of them will be like all the > doctors who say, " It's all in your head. " > > > > In closing (I was hoping that I kept this part a secret), but I guess > you already found out...the ONLY please you will get any support and > understanding in dealing with me is with other people with Fibromyalgia. > > > OMG isn't that the truth!!!!!! Where did you get that? and can you send it to my e-mail so I cna forward it to other people? thanks Leanne > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Leanee, you can find a copy of that letter at teh following website also: http://www.fms-help.com/mnif.htm The author's name is Terry Been and she is from Colorado. lisa n. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Drug Approved. Is Disease Real? - AOL News look what my b/f found these people are so full of crap Re: Sharing Leanee, you can find a copy of that letter at teh following website also: http://www.fms- help.com/ mnif.htm The author's name is Terry Been and she is from Colorado. lisa n. ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Oh woops, looks like I just repeated what was already said. LOL I should have read further. Mystic wrote: > Leanee, > > you can find a copy of that letter at teh following website also: > > > http://www.fms-help.com/mnif.htm > > The author's name is Terry Been and she is from Colorado. > > lisa n. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I did a search for it, and the author is Terri Been. I found it on this site: http://www.fms-help.com/mnif.htm >> >> OMG isn't that the truth!!!!!! Where did you get that? and can you >> > send it to my e-mail so I cna forward it to other people? thanks Leanne > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 For the first time I opened up to the group and shared things about my life when I can't even tell my friends. I don't know if I will ever feel free to do that again. The answer I got from djgraves9497@... taught me not to share. I certainly don't care to be made fun of when I am on the edge. It won't happen again. Little Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Go ahead and share....that person isnt to bright or important. --- lilbit_sunnygirl wrote: > For the first time I opened up to the group and > shared things about my > life when I can't even tell my friends. I don't > know if I will ever > feel free to do that again. > The answer I got from djgraves9497@... > taught me not to > share. I certainly don't care to be made fun of > when I am on the edge. > It won't happen again. > Little > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Please lilbit, Do not judge us by one persons very unkind remarks. This is a wonderful group and are willing to help you in any way they can. I am a Group Moderator so if you need anything please feel free to email me personally. Again I apologize if you think anyone was making fun of you that is " NOT SOMETHING WE DO IN THIS GROUP " EVER! Please give us another chance? Lori H Moderator lilbit_sunnygirl wrote: For the first time I opened up to the group and shared things about my life when I can't even tell my friends. I don't know if I will ever feel free to do that again. The answer I got from djgraves9497@... taught me not to share. I certainly don't care to be made fun of when I am on the edge. It won't happen again. Little --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
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