Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi Neda - Welcome to our wonderful group. If I had to make an educated guess, I might say that the swelling is due to some medication you are taking. Have you checked for that as a side effect of maybe the neurontin or the Kadian(never heard of that one). Do you see a psychiatrist for your psych meds? I went back to seeing one in the fall of '06 as I had gotten into a deep depression. She is helping me try to find the right balance of meds to perhaps give me more energy. I am taking Provigil and at first it didn't seem to help, but since we've also increased my Cymbalta, now the Provigil is helping. I have an appt. on Wed. with her and we may be upping the dose once more to see how I do. Anyway, rheumatologists are supposed to treat FM. They are supposed to be the specialists that know the disease better, but that's not always the case. It sounds like you need to fire your RH and find a doctor who will work with you to solve the mystery of your FM. It might be your family doc working together with a psychiatrist. Or some people see neurologists and get help. The most important thing is to have a doc who will listen and want to help you, whether it is giving you enough proper pain meds or solving the swelling problem. You are not alone, Neda. We know what you are going through and are here to help and support you. Take care. Jeanne in WI Swelling > I'm a new member, Neda. I have been diagnosed for over a year but probably > have had it > much longer, it has just gotten much worse. I'm on Cymbalta originally for > depression, meds > for RLS, neurontin, and Kadian for a herniated disk. The disk keeps me > from being able to > just stay in bed so I sit in my Lazyboy all day and most of the night. I > can't stay awake any > more no mater how much sleep I get at night and have been on all the meds > for a number of > years. I just nod off without knowing I am or just can't keep my eyes > open. My whole body is > just so painful today that I just cry. What I am worried about the most is > my feet and legs and > hands are so swollen and have been since before Christmas. I'm holding at > least 10-12 lbs. > extra water. They have tested my heart and blood flow and they are normal, > all the tests are > always normal. My doc says the swelling is not FM and can't figure out why > the swelling. Has > anyone else had these problems and what did you do if anything. The > Rhemitoligist the > diagnosed me doesn't treat fibromyalgia, go figure so just have my family > doc. Help! Neda > > > > 1. While it is wonderful to share our experiences with everyone on the > list as to what treatments do and don't work for us, pls always check with > your dr. Some treatments are dangerous when given along with other meds > as well as to certain health conditions or just dangerous in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls > don't be afraid to ask for help. It is the first step to trying to make > that situation better. > > 3. To unsubscribe the e-mail is: > Fibromyalgia_Support_Group-unsubscribe > > 4. Also, it is not uncommon for more than one member to be feeling bad at > the same time when it comes to flares and b/c of that potentially take > something another member says the wrong way. And that includes the things > that one member may find funny (even if it's laughing at fibro itself) > even though we who deal with illness whether one such as fibro or multiple > illnesses try to keep a sense of humor. > > 5. Pls let's be gentle with each other, and if you are having a bad day > pls let us know so that we can do our best to offer our support. > > Have a nice day everyone. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 I started with horrible chronic depression but after taking all the depression meds out there, being hospitalized a couple times, getting on Cynbalta, my wonderful psychiatrist and psycologist I have that beat. I get down when the pain is really bad but I have had so many things go wrong with me that I deal with it most the time. I don't understand the doctors I went to especially since I recently talked to someone with fibro who swore by doctors in the same group. Neda > Hi Neda - Welcome to our wonderful group. If I had to make an educated > guess, I might say that the swelling is due to some medication you are > taking. Have you checked for that as a side effect of maybe the > neurontin > or the Kadian(never heard of that one). Do you see a psychiatrist > for your > psych meds? I went back to seeing one in the fall of '06 as I had > gotten > into a deep depression. She is helping me try to find the right > balance of > meds to perhaps give me more energy. I am taking Provigil and at > first it > didn't seem to help, but since we've also increased my Cymbalta, > now the > Provigil is helping. I have an appt. on Wed. with her and we may be > upping > the dose once more to see how I do. > Anyway, rheumatologists are supposed to treat FM. They are supposed to > be the specialists that know the disease better, but that's not > always the > case. It sounds like you need to fire your RH and find a doctor who > will > work with you to solve the mystery of your FM. It might be your > family doc > working together with a psychiatrist. Or some people see > neurologists and > get help. The most important thing is to have a doc who will listen > and > want to help you, whether it is giving you enough proper pain meds or > solving the swelling problem. > You are not alone, Neda. We know what you are going through and are > here to help and support you. Take care. > Jeanne in WI > Swelling > > > I'm a new member, Neda. I have been diagnosed for over a year but > probably > > have had it > > much longer, it has just gotten much worse. I'm on Cymbalta > originally for > > depression, meds > > for RLS, neurontin, and Kadian for a herniated disk. The disk > keeps me > > from being able to > > just stay in bed so I sit in my Lazyboy all day and most of the > night. I > > can't stay awake any > > more no mater how much sleep I get at night and have been on all > the meds > > for a number of > > years. I just nod off without knowing I am or just can't keep my > eyes > > open. My whole body is > > just so painful today that I just cry. What I am worried about > the most is > > my feet and legs and > > hands are so swollen and have been since before Christmas. I'm > holding at > > least 10-12 lbs. > > extra water. They have tested my heart and blood flow and they > are normal, > > all the tests are > > always normal. My doc says the swelling is not FM and can't > figure out why > > the swelling. Has > > anyone else had these problems and what did you do if anything. The > > Rhemitoligist the > > diagnosed me doesn't treat fibromyalgia, go figure so just have > my family > > doc. Help! Neda > > > > > > > > 1. While it is wonderful to share our experiences with everyone > on the > > list as to what treatments do and don't work for us, pls always > check with > > your dr. Some treatments are dangerous when given along with > other meds > > as well as to certain health conditions or just dangerous in > general. > > > > 2. If you are in a difficult situation (doesn't matter what it > is) pls > > don't be afraid to ask for help. It is the first step to trying > to make > > that situation better. > > > > 3. To unsubscribe the e-mail is: > > Fibromyalgia_Support_Group-unsubscribe > > > > 4. Also, it is not uncommon for more than one member to be > feeling bad at > > the same time when it comes to flares and b/c of that potentially > take > > something another member says the wrong way. And that includes > the things > > that one member may find funny (even if it's laughing at fibro > itself) > > even though we who deal with illness whether one such as fibro or > multiple > > illnesses try to keep a sense of humor. > > > > 5. Pls let's be gentle with each other, and if you are having a > bad day > > pls let us know so that we can do our best to offer our support. > > > > Have a nice day everyone. > > > > Quote Link to comment Share on other sites More sharing options...
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