Re: ok, so they finally diagnosed me....

[Guest guest]

- What do you want to do? Is working again ever a possibility? If

not, then yes, begin the long drawn-out application for SSD. It will take

several years. Do you have a spouse to support you in the meantime? Take

it one day at a time. Looking to far forward can be scary and depressing.

Jeanne in WI

> so now what? i'm on ultram, flexeril and now lyrica as well as

> methotrexate...now what do i do? do i apply for ssi/ssi-d? i just got

> over a really bad episode last wekk, swear to god, i was begging for

> death, my musclesw felt like they were being stripped off my bones...i

> have no idea what to do now...i'm releived to find out i have a label now,

> but i'm scared,well, poopless....someone give me a direction, advice,

> whatever....

>

> cynthia

[Guest guest]

,

I just recently got diagnosed myself. My brain is still wrapping itself

around the fact that I have another chronic health issue that will

cause me to be fatigued (usually at the wrong times), hurt like I've

been beat (without the bruises) and sometimes unable to remember the

simplest of things.

I don't know what to tell you as far as SSI. I've been trying to get

that myself and been turned down twice so far, so the attorney I have

has filed for a hearing, because now I have the fibro dx, as well as

COPD and cardiac artery disease (to add to my asthma, allergies, low

thyroid, high blood pressure). So likely I'll be approved at the

hearing. I've been on long-term disability since 3/07 (and out of work

since 12/06). I know I won't have a job to go back to (my FMLA expired

and they pretty much abolished my position) so in the ultimate event

that I DON'T get my SSI disability, well, I can always collect

unemployment for 13 or 26 weeks. I don't think it'll come to that. I

know that working a conventional job will no longer be a possibility

for me. There are days when my greatest accomplishment is getting my

kids to and from school and emptying the dishwasher!

I'm sure others will have better advice for you. I just wanted you to

know that I definitely understand!

Darlene

>

> so now what? i'm on ultram, flexeril and now lyrica as well as

> methotrexate...now what do i do? do i apply for ssi/ssi-d? i just

got

> over a really bad episode last wekk, swear to god, i was begging for

> death, my musclesw felt like they were being stripped off my

bones...i

> have no idea what to do now...i'm releived to find out i have a label

> now, but i'm scared,well, poopless....someone give me a direction,

> advice, whatever....

>

> cynthia

>