Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Judi, I hope you are feeling better today. Hugs, Melody Judi wrote: > I ran out of my pain meds and am work waiting for the Dr to okay the > refill. Everything hurts so bad. I was reading the other posts about > hope, progression. I am remembering how I felt before I knew what I > had had a name and how glad I was to know I wasn't crazy. My Lupus has > taken a back seat to the Fibro monster and they tell me I should be > glad. I just keep working, going home and going straight to bed. > Sometimes I am in bed by 6:00 pm. I might get up and put a load of > laundry in or grab something to eat but if my kids come over they sit > on the bed and talk to me. They liken it to a recharging area for mom. > Every ounce of energy I have is precious to me and I have to safeguard > it. I cry and sometimes late at night I wonder what is the point but > you know I really don't know what is gonna happen next to me or my kids > or whatever and I really want to see. If I let this disease take me I > won't get to see my grandchildren grow up, my kids succeed, etc. I am > just wandering in my head right now thinking about hope, giving up, > hurting, loving, laughing...I pray for all of us; that we be given the > strength and courage to just keep going. > > > > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. > > 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe > > 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. > > 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. > > Have a nice day everyone. > > Quote Link to comment Share on other sites More sharing options...
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