Re: Please read the previous post... I sent it to the online journal--Debra Vness

January 31, 2008

Hi Debra-- I couldn't agree with you more-I have so much anger too but feel that

I dont have the strength to fight anymore, it takes everything I have to get

through my day and to get through it as best I can. I just recently got another

denial on my SSD SSI. I now have to appeal this decision yet again after filing

twice before having gone through all the stages of the filing to hearing

process. Now makes three times, Ive been on this road for 7years with SSD, the

horror stories are true for some of us, others seem to have better luck, maybe

better doctors ?? I used to do what I could to try and get things done, but I've

next to given up on doctors, lawyers, SSA. I think they are all being paid off

and have no interest in giving any money to people who are truly suffering, I

saw some things on the news about the people that have terrible health

conditions, other than fm who are not getting disability from ssa. So you know

if a guy on tv has a majorly screwed up back, I

cant remember what he had, but it was something bad, and he couldnt get the

ssa. So there is no hope for anyone with fm, outside of those who get it. What

are we going to do???? I mean really what are the answers for people like us,

what is it going to take to get people to listen, what people??? WHAT DO WE HAVE

TO DO TO GET VALIDATION?????????What are we going to do to get people to believe

us I AM PISSED too> Im doing everything in my power to stay ontrack-- eat right

try to get sleep, try to avoid red meat sugar caffeine, high starch high carbs,

im trying to excersize and still FEEL LIKE SHIT. Well this is my bitch for the

night, sorry i cant be my usual pleasant self-maybe thats my problem- nice

people dont seem to get very far- so maybe i should start acting like a bitch

to everyone and talk about fibro everyday and write letters and make public

speeches and talk and talk and talk. All the while my soul is dead-why because

sometimes its more than the fm it is the way

people are about it that makes it much worse.

debra van ness wrote: I

sent that letter in response to the comment of this being a made up illness. I

am so pissed I will be flaring all day. I will talk, write and write until I

get the message out to everyone possible that fibromyalgia is REAL. What a

society of the dark ages in such a world filled with technology.

Debra V.

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