Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 I'm a new member, Neda. I have been diagnosed for over a year but probably have had it much longer, it has just gotten much worse. I'm on Cymbalta originally for depression, meds for RLS, neurontin, and Kadian for a herniated disk. The disk keeps me from being able to just stay in bed so I sit in my Lazyboy all day and most of the night. I can't stay awake any more no mater how much sleep I get at night and have been on all the meds for a number of years. I just nod off without knowing I am or just can't keep my eyes open. My whole body is just so painful today that I just cry. What I am worried about the most is my feet and legs and hands are so swollen and have been since before Christmas. I'm holding at least 10-12 lbs. extra water. They have tested my heart and blood flow and they are normal, all the tests are always normal. My doc says the swelling is not FM and can't figure out why the swelling. Has anyone else had these problems and what did you do if anything. The Rhemitoligist the diagnosed me doesn't treat fibromyalgia, go figure so just have my family doc. Help! Neda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 It may be a side-effect of the neurontin possibly or some other undiagnosed condition. Vitamin b-6 helps with fluid retention. If you can take it. I wish you the best and keep after the drs to find out the cause. pansywilma wrote: I'm a new member, Neda. I have been diagnosed for over a year but probably have had it much longer, it has just gotten much worse. I'm on Cymbalta originally for depression, meds for RLS, neurontin, and Kadian for a herniated disk. The disk keeps me from being able to just stay in bed so I sit in my Lazyboy all day and most of the night. I can't stay awake any more no mater how much sleep I get at night and have been on all the meds for a number of years. I just nod off without knowing I am or just can't keep my eyes open. My whole body is just so painful today that I just cry. What I am worried about the most is my feet and legs and hands are so swollen and have been since before Christmas. I'm holding at least 10-12 lbs. extra water. They have tested my heart and blood flow and they are normal, all the tests are always normal. My doc says the swelling is not FM and can't figure out why the swelling. Has anyone else had these problems and what did you do if anything. The Rhemitoligist the diagnosed me doesn't treat fibromyalgia, go figure so just have my family doc. Help! Neda 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
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