Re: Hello, I'm new~~Welcome and YES WE do ! ! !

[Guest guest]

I know what You are going thru w/Drs. . I've been DISmissed by 2 Drs. so

far and it has taken 10 mos.

since my DX(diagnosis) to finally to get to an FM Specialist where I recieved

trigger point injections and hydrocodone as the Tramadol never worked as I told

3 Drs. prior to seeing the FM specialist.

I enjoyed some funiture restoration in my early 20s and found it to be hard

work so I can imagine what YOU might be going thru today.

I Hope YOU find the Love, encouragement and SUPPORT I have found since

joining back in April 07.

GOD Bless YOU ! ! ! . . . .................................. . . .

S.E. Arkansaw

GOD grant me the serenityto accept the things I cannot

change the courage to change the things I canand the wisdom to know the

difference. Amen ! ! !

To: Fibromyalgia_Support_Group@...: jstshannowood@...:

Fri, 1 Feb 2008 20:59:40 +0000Subject: Hello, I'm new

My name is , I have been in pain for many years but always managed to

work through it. I had been a furniture finisher most of my life and my job

meant almost as much to me as my children. My job was how I defined myself. 3

years ago I had to cut down my hours because the pain was getting worse, a year

later I had to leave my job. Dr.s keep running tests, they are still refusing to

diagnose me, they say that I " could have " fibromyalgia. Meanwhile I'm trying to

get disability and my attorney says it may take another year for them to set a

hearing date. My family has been doing thier best to help us and my son recieves

social security for his disability, but we are not making it. Every month the

bill collectors are threatening to take something or turn something off. I try

to stay positive but this pain, some days I can barely walk. I can't clean my

house so we're living in filth. The worst part is people see me on a good day

and they believe that all the other days I'm just being lazy. I hope you all get

that when I'm whining and complaining, it's just that. I don't expect any one to

do anything for me. I don't want people to feel sorry for me, I just want people

to understand. I believe that here you do.

_________________________________________________________________

Shed those extra pounds with MSN and The Biggest Loser!

http://biggestloser.msn.com/

[Guest guest]

Use the good days to catch up on the chores, often when I look at the house it

is SOO overwhelming, there is so much to do, so on a good day I go " right

today's job is the bathroom " and I focus only on that one room. I allocate 20

minutes then quit, because that's all the energy I have right now.

There are seven days to a week so my one job per day means that each room is

fixed once per week. My mother was cleaning fanatic and she used to hoover and

wash dishes 3 times a day. I will never be like her, but I also know that there

are some jobs that just have to be done whether we like it or not. I know that

my body will punish me for it, and my family will criticize me for it, but

somewhere in the middle is me, my body, and my ability to not let this thing

take over, because it would be so easy not to get out bed, the pain is so bad

and moving is so hard, but at the end of the day, unlike MS you can will your

body to move, yes it hurts, yes its harder on some days than others but once you

accomplish this one small thing you WILL feel better, you feel like you

contributed to the day and you will beat yourself up less for being " lazy " and a

'slob'. Self flaggelation goes with the terrority so ease off on the guilt a

bit, and just acknowledge that the

world really does sux and no one ever gave anyone a free ride.

Also find a real Dr the last thing you need to deal with is Dr;s who don't get

it, I definitely could not function without my meds, but " waiting' for

disability won't help because even then there never will be a day when it's OK,

it just gets replaced by something else thats all.

Also get a therapist, the stress alone is enough to send you mad and g-d knows

you need someone you can vent too whilst this is going on. If you can go to a

twleve step program like GROW, they are there for a reason and at the very least

it is a support group of people also suffering, they will help you get over the

guilts.

Hang in there, some days are better than others

Bonnie

Hello, I'm new

My name is , I have been in pain for many years but always managed to

work through it. I had been a furniture finisher most of my life and my job

meant almost as much to me as my children. My job was how I defined myself. 3

years ago I had to cut down my hours because the pain was getting worse, a year

later I had to leave my job. Dr.s keep running tests, they are still refusing to

diagnose me, they say that I " could have " fibromyalgia. Meanwhile I'm trying to

get disability and my attorney says it may take another year for them to set a

hearing date. My family has been doing thier best to help us and my son recieves

social security for his disability, but we are not making it. Every month the

bill collectors are threatening to take something or turn something off. I try

to stay positive but this pain, some days I can barely walk. I can't clean my

house so we're living in filth. The worst part is people see me on a good day

and they believe that

all the other days I'm just being lazy. I hope you all get that when I'm

whining and complaining, it's just that. I don't expect any one to do anything

for me. I don't want people to feel sorry for me, I just want people to

understand. I believe that here you do.

_________________________________________________________________

Shed those extra pounds with MSN and The Biggest Loser!

http://biggestloser.msn.com/