from cynthia

[Guest guest]

i am so sorry it took me a day or so to answer. i wasn't ignoring you, but my

body decided it needed to spend more time looking at the ceiling and screaming

in pain...the mind is willing, but the body has it's own ideas...lol..i can sit

up for @ an hr now then have ot lay back down...but anyways, i am more worried

about the ssi for insurance purposes. i really can't work, anymore, if i stand

too long i'm in pain, can't sit too long either, laying down is a roll to roll

event of grand preportions...it tooks what feels like an army to make myself

roll over...the insurance we have has taken almost 4 mts to get approved and now

that i have been on the lyrica for the past 4 days, i am feeling like WOW- WORSE

if you can believe that. actaully thought i was having a heart attack from it,

it's the same when i was on nuerotin. but i am going to give it anohter 2 days

and if that doens't work, i'm off of it. ithank you all for your advice. it

feels so lonely and sorted out

having this....on one handi should feel relieved to know what i have, on the

other, i feel like it's a death sentence...is there any place to go to see how

it will go for hte duration? to see how long term this is or how it goes on

it's course? can we die from it? will we be crippled from it. i know i should

have asked, but i was in so much pain the other day when i was at the dr's ...i

forgot to ask when she gave me the dx...and since we live @ a 2 hr drive away,

it's not like i can just make another appt to see her. am thinking i could call

and ask...i am sending giant hugs to you all, and am heading back to bed...i can

hear my pillow calling me...lol...

cynthia

in the middle of the great ice age of western new york!

sharon studley wrote:

I hope this is in support of your need to know what next. I think none

of us know what's next, and I too use to think that, but it doesn't help only

adds to worries, which feeds disease sypmtoms. Everyday can be different, not

always bad and just hold onto that,. Learn to adjust to your body telling u when

it has had enougth, limit your tasks that cause exhaustion and pain. I have just

recently finally had to give in to filing for SSD, although my DR's talked about

me doing it 9 yrs ago, I kept working, but wonder if I had listened to them and

slowed down, with work, I worked appx 60 hrs a week and never said No to more,

as I threw myself into work to get out, forget about my pain etc. and now, I

can't do it anymore. Now hearing that Jeanne and Dave say it takes SEVERAl yrs.,

worries me as I was told I have a 120 day wait for answer, and do know most

people get turned down 1st time, I have already talked to a disabilty advocate

who says I am elligible, and if I

get turned down they will go thru the steps to get me approved. I could be

depressed hearing they say a couple yrs!, as I have a husband, but do need to

help with income. But I am not going to dwell on that as I will look positively

and hope I will be on within the yr., as some I have talked to have been and the

disabilty inake worker told me I would be. Keep thoughts positive, not to far

ahead and it

helps................................................................Sharon

Jeanne and Dave wrote: - What do you want

to do? Is working again ever a possibility? If

not, then yes, begin the long drawn-out application for SSD. It will take

several years. Do you have a spouse to support you in the meantime? Take

it one day at a time. Looking to far forward can be scary and depressing.

Jeanne in WI

> so now what? i'm on ultram, flexeril and now lyrica as well as

> methotrexate...now what do i do? do i apply for ssi/ssi-d? i just got

> over a really bad episode last wekk, swear to god, i was begging for

> death, my musclesw felt like they were being stripped off my bones...i

> have no idea what to do now...i'm releived to find out i have a label now,

> but i'm scared,well, poopless....someone give me a direction, advice,

> whatever....

>

> cynthia