RE: I have a question.../Anita

[Guest guest]

I had an awful time with fentanyl. Keep in mind I was rapidly losing weight

and the pain was so bad. I was on 100mcg and it got to the point where I

was so weak that eventually I was blacking out face first on a daily basis.

I was let go from job of 10 years because many days I just couldn't make it

there.

By the time my brother found me on the floor. February 25, 2007. a day I

don't remember, but a date I'll never forget. By the time the rescue got to

me and we put a time line together we figure I was unconscious for about 30

hours. I was within hours of being dead. My mom who passed away in 1988

came to visit me and told me it wasn't time. That's all I remember. I was

in ICU for 4 days and then a good 2 weeks in my room. I had no muscle tone.

My house was a mess because I couldn't even make it to the bathroom. add in

2 dogs and 2 cats and I left a heck of a mess for my brother. The hospital

experience alone was one of the worst in my life. I'd rather hit the floor

than go back there. My wonderful brother came into this house and cleaned

it from top to bottom. I knew things were going downhill fast so I left a

not for him to bring the dogs to my friend Marilyn and her husband Chuck.

Chuck was happy to have his " big boy " back and everyone realized that it was

a package deal. Eddy needed Jake.

I had to learn to walk all over again and it was pure hell. My right leg

was in constant pain. I was told it was because of the MRSA virus I had.

That didn't fly with me, but no one would listen to me. So, I went home

with no meds. what did they think. all that pain just magically went away.

NO!!!! So, on April 25th I met a wonderful doctor when he was called into

the waiting room of the health center I go to. He shipped me off to the

hospital. AGAIN. The jackass original doctor sent me home with a huge DVT.

If part of that broke off I could have been dead. or worse, brain dead.

Honestly, I think it can be a good med. it is NOT a good med for me. If you

sense something is going wrong call your doctor and shout until you are

heard. I got tired of being treated like I'm a nut case. The health center

people have been wonderful. they've cheered me on every step of the way.

I'll never be normal again and part of that is because I have some brain

damage from being so malnourished. I even joked that it had been almost 2

years since I had a period. I'll be 51 in April. I now have a period again

and the doctors are thrilled. they say it is proof that my nutritional

status is back. Easy for them to say.

I don't want to scare you, but I really feel it is my duty to let people

know these things can happen. Oh, I also had a condition where this

medicine would build up in my system. I don't know why we didn't think of

it, my mom had the same problem with morphine.

Good luck and be careful.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of

tubelover2u@...

Sent: Monday, February 04, 2008 1:12 AM

To: Fibromyalgia_Support_Group

Subject: I have a question...

I've had pain for more than 8 years. Now the doctor's couldn't figure out

why, but my family doctor helped me the best she could...the only thing that

has worked is a duragesic patch...I finally had relief from the burning,

numbness, pin prinks, the searing pain, the heaviness in my legs and arms..

it didn't take it away, but I was able to function. To make the story short

...has anyone out there used the patch for Fibro? (btw...I was taken off of

it a month ago...cold turkey...my doctor had heart surgery and the doctor

that I had to see said I was nothing but a drug addict and refused to help

me...I have NO pain meds right now...and to be honest, I can't lay still

long enough to get any sleep). Anyone out there get relief from the pain..

and how...

Thanks for listening

Anita