Re: To Melody... Hope-- Melody ra

[Guest guest]

Just thought I would send my best to both of You after reading what u did for

each other. Also hope this add to the Hope we always have with this disease. I

because we all come from all different parts of the World, and different Dr's,

different pains, fatigues, or whatever else fibro dishes out. Though I have

been in a big big Flare-up day after day for 2 mo's now and have gone from just

starting with low back pain, and have now added almost every inch of me, I at my

most maddining, discouraging, frustrating times, know that there is a always the

reality that somewhere, someday, something I may have not tried yet that will

put my fibro back laying domnant most likely, but who cares, I will have days

again that I can get some independance back again, a day without pain again. Is

this not how we should be thinking? We need to me lucky it is not a terminal

thing we have been dealt that robs us from seeing our children, g.children or

whatever family we have. Keep

seeking a new exercise, a new book, a new meditation that will lesson our

symptoms. I know alot of people swear by pool therapy, I myself wish I had

access that is the only thing I have not been able to try. I know both my

primary and Rhumie are in agreement we HAVE to totally illiminate STRESS,

WORRY,OVERDOING which took me for the longest time to figure out what that was,

well have found DON't try and hang 8 window curtains all in one day. lol

Anyway don't try and predict what your in for because none of us know!

melody I am glad Deb was there with the right words for u. WHAT ELSE I HAVE

BEEN TOLD IS AVOID SURGERIES UNLESS ABSOLUTE MUST ANOTHER FOOD FOR FIBRO.

TAKE CARE

Debra my sister/friend, no need to be sorry! I had a horrible day and

it just hit me like a boulder (instead of just a rock) and knocked me

back a few. I know we all have those now and then, and I was bogged

down with so many negative feelings and thoughts, fears, and lost hope

for all things good.

Thank you for everything you said. I felt completely alone in the

progression discussion and like I only angered anyone if I talked about

how my fibro did not progress. I felt like I was misunderstood as

saying fibro does not progress, when it does progress in some (maybe

most?) individuals. My own individual fibro has done the opposite but

no I don't know what tomorrow may bring. I don't want to accept

progression just yet, I need to deal with one day at a time and live in

today or else I want to take to my bed bracing myself for a scary

future. I hope and pray the future isn't so dark, and that I don't wake

up one day suffering so terribly like most here endure. I think as long

as I am feeling " tolerable " I am here to help those of you who are going

through the worst pain imaginable, and I can offer whatever support you

may need.

Your words bring light back into my life and hope. I do appreciate this

whole email and I'm keeping it forever! I'll read these words on bad

days. You mean the world to me and many others, you are an angel here

in this group always bringing hope and love to us all, anytime you ever

need that in return, please just write to me or call, if you ever need

to call I'll let you have my phone number off the list - just ask.

Bless you and thank you for always being so supportive of us all. And

for reaching out to me.

Love and hugs,

Melody

debra van ness wrote:

> Melody, I am so sorry. I just feel so horrible for adding to your misery and

fears. Please keep in mind that not ALL of us are the same. Have you progressed?

If not then you probably won't. Please don't be so sure. I have heard that the

majority of us do find it progresses, but that does not mean that it does every

single time. Sweetie, Please. I just want to pick you up and hug you. And as for

the teeth thing, there is really nothing out there that says fibro will do this

to our teeth. Alot of folks here have had fibro for years and still have great

teeth. If it is fibro that is doing this to some of us, It won't do it to all of

us.

>

> I only really speak from personal experience. I don't have any idea what other

people's bodies will do or how they will feel 5 or 10 years from now. Hell, I

dont' know about my own. Maybe I have hit the peek of what this will do and

maybe it won't get worse. As of now I am still able to get out of bed, go to

work, and take care of myself. It may not be easy, but I can still do it. Maybe

I will still be able to do that in 20 years.

>

> Honey, please don't be so sure that all your teeth will fall out and you will

be bound to the bed for life. It likely is not so. Really. I don't mind it when

people say that their FM has not progressed... it is a wonderful thing to hear.

I just have to tell my own experience with it so I can deal with the fact that

mine has. BUT MAYBE MINE WILL NOT GET ANY WORSE. And MAYBE yours won't either.

>

> I just feel so helpless in the comfort I would like to give you. I just don't

know how to fix the horrible fears I feel I have had a hand in provoking.

>

> I am so sorry.

> love from the heart,

> Debra V.

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

>

>

[Guest guest]

Hi Sharon,

I loved what you wrote! I'm always looking for new ways to manage this,

even if I found many things that my body seems to respond positively

to. I know I could always benefit from more or something else.

Do surgeries result in progression? I've never had surgery, sister has

had many all her life, one after another it seems. She wasn't so open

to fibro before and just this last year was kind of coming to terms with

it. Then she had a cancer scare with her thyroid and had surgery to

remove it. Her body seemed to go into a remission and she felt

'cured!' She said " it must have just been my fibro. " Then she emailed

me one day saying she was back in horrible awful pain and was now

realizing " I guess this is fibro afterall. "

I wonder why the temporary remission? I'm sure she'd love to know

anything anyone would like to share in that area.

sharon studley wrote:

> Just thought I would send my best to both of You after reading what u did

for each other. Also hope this add to the Hope we always have with this

disease. I because we all come from all different parts of the World, and

different Dr's, different pains, fatigues, or whatever else fibro dishes out.

Though I have been in a big big Flare-up day after day for 2 mo's now and have

gone from just starting with low back pain, and have now added almost every inch

of me, I at my most maddining, discouraging, frustrating times, know that there

is a always the reality that somewhere, someday, something I may have not tried

yet that will put my fibro back laying domnant most likely, but who cares, I

will have days again that I can get some independance back again, a day without

pain again. Is this not how we should be thinking? We need to me lucky it is

not a terminal thing we have been dealt that robs us from seeing our children,

g.children or whatever family we have. Keep

> seeking a new exercise, a new book, a new meditation that will lesson our

symptoms. I know alot of people swear by pool therapy, I myself wish I had

access that is the only thing I have not been able to try. I know both my

primary and Rhumie are in agreement we HAVE to totally illiminate STRESS,

WORRY,OVERDOING which took me for the longest time to figure out what that was,

well have found DON't try and hang 8 window curtains all in one day. lol

> Anyway don't try and predict what your in for because none of us know!

melody I am glad Deb was there with the right words for u. WHAT ELSE I HAVE

BEEN TOLD IS AVOID SURGERIES UNLESS ABSOLUTE MUST ANOTHER FOOD FOR FIBRO.

TAKE CARE

>

>

>