New to group

[Guest guest]

--- wrote: > Yes Please!

What is the Lysine cream called, what

> are all of the

> ingredients and where do I find it?

>

> M Meadows

>

See my previous email - if you missed it, email me

privately and I'll send all the info again

Cheers,

Nona

=====

***********************************************

The Compleat Bean

http://persweb.direct.ca/wkent/seanbean.html

***********************************************

____________________________________________________________

[Guest guest]

---

In pancreatitis@y..., auntieshar@h... wrote:

> Hi,

>

> I have been reading the posts for awhile now, decided it was time

to

> post. First, I will tell a little about myself.

>

> My problems all started a long time ago, 1975 to be exact. I was

> pregnant with my second son when I had my first attack, thought I

was

> going to die, but by the time we reached the hospital the pain had

> disappeared. I contacted my OB doctor, he said it was probably gas

> and I would be fine. I did not have another attack until about a

year

> later. At that time it was decided that I needed to have my

> gallbladder removed, it was full of stones. At this time I was

> hopsitalized for three weeks, still haveing the pain when I was

> released. Four days later I was back at the ER, now I was diagnosed

> with panreactitis. A gall stone had lodged in my bile duct,

actually

> it was bouncing between my bile duct and the duct to my liver. I

> either was in great pain and nauseaous or I was a lovely shade of

> yellow. After another eight hour surgery to remove the gall stone,

I

> spent another three weeks in the hospital. When I was released I

was

> told I would not have another problem. I blieved my doctor. Really

I

> was ok for quite a long time. I now realize that I had attacks all

> along, but they were never severe. The pain would go away. In 1998,

I

> was rushed to the hospital again in severe pain. Diagnosis was

again

> acute pancreatitis. I was only hospitalized two days, and sent home

> in pain. Had ERCP and ultra sound and CT scan, everything showed

> normal. To top it all off, now all blood test come back normal. No

> one can understand why the pain. I have had pain all the time

since.

> Most of the time not to bad, sometimes the only thing that keeps me

> away from the hospital is the way I was treated when I went the

last

> time. Since 1998, I have had numerous blood tests, two CT scans.

The

> last scan showed a blockage in my bile duct. I think my GI doc

wants

> to go in and open the duct through a ERCP. I should find out this

> week.

>

> Thats my story, sorry if it is long winded. I have received help

from

> this group just by reading the other posts. I have a wonderful

> husband, who though he can not really understand what I am going

> through, tries his best to help me. My two sons are both grown and

> married now, to two great girls. I do not think I could have picked

> better girls for them myself. Well, I have to close now, as I am

> lucky enough to still be able to work. If I didn't have the job I

do

> I might not be able to work. My job is the most stress free job I

> have ever had. I do feel lucky in that respect.

>

> Sharon in MI

Hi Sharon.....

I too am new to this group. I have suffered from pancreatitis since

1983 but only diagnosed in 1997! I will be 46 years old in May. I

too am from Michigan originally but now live in North Carolina since

1985. I was born and raised and went to school in the

Waterford/Pontiac area. Where are you from?

I had my first attack a copule weeks after a hysterectomy. For years

and years they have called it " irritable bowel syndrome/spastic

colon. " I too have been taken to the ER many times only to have the

pain disappear before I get there. A few times I have been

transported by ambulance thinking for sure something " exploded "

inside and I was going to die. Even when I would get to the ER and

still be in pain, they would call it irritable bowel syndrome and

sometimes even send me home in pain after the pain med didn't work!

I too have run the gamut of stuff from family and friends. My

husband is very supportive and if it had not been for him I would not

be here. I have been fortunate enough at my worst to be able to stay

home a lot of the time because I had a central line, IV fluids and IV

pain meds at home! Even with that I still have been in the hospital

36 times since July 3, 1997. Some of my family thought I

was " nuts " . Because I had IV pain meds and also pain meds that you

spray in your nose, some of my family (not anyone that lives in the

house), figured I was an addict, etc. etc. etc, you get the picture I

am sure. Only when they knew someone else who came down with this

disease and was very sick, not as sick as I was, did that make this

disease credible. I gave up trying to explain long ago.

My husband and I had some very good friends (at least we thought they

were) who when I was diagnosed with pancreatitis and in the hospital

all the time, decided that they didn't want us fro friends anymore!

I kid you not. No explanation, no nothing. Obviously they were not

as good a friends as we thought. One thing I have found out with

this disease, is that you find out who your friends are and what kind

of relationship you have with your spouse.

We now have many real supportive friends. It has been very hard on

my husband and I but God bless him, he has hung right in there. He

has the patience of Job. I have also found out what is important in

life. When I have a good day, I am out of this house. Before, I was

the type who had to have the " perfect house. " I tell everyone that

the dust on the coffee table means nothing and by the looks of my

coffee table it looks like I have had a lot of good days! ha-ha.

I am glad you are on this board. It has been a life-saver for me. I

wished many times when I was sick to find someone with this disease

but no one knew what it was. My hope is that as more people come

forward with this disease, it will be looked at differently by the

medical profession.

God bless and I wish you a " good pancreas day. " !

Kaye

[Guest guest]

Hello Sharon,

I am also new to the group. I understand how you feel. sometimes when I would

go to the ER my blood work would show Pancreatitis sometimes it looked

normal, even though I new I was having an attack. with Chronic Pancreatitis

your blood can look normal. I've been through many of the things you have.

Best of Luck,

Rob

[Guest guest]

Sharon,

Hi and welcome to the group, I am glad that you decided to post if you

got help from reading the post you will get lost more now that you

have....lol Where at in Michigan do you live? I am from Bay City Mi. Where do

you see your GI? I go to U of M in Ann Arbor, that is where I see the GI I am

luck enough to have a great family doctor here and a surgeon that I have the

greatest respect for, I am having a whipple the end of May I have small ducts

and with all the attacks and inflammation it has caused scar tissue in the

main duct in the pancreatis.. It sounds like you have a great family and lost

of support I do too but you are right it is great to be here with all of this

group who know just what you are feeling with the pain and emotions...so

again Welcome to the group...

Hugs and kisses

Hoping you have a pain free day

Love & Friendship always in Mich.

[Guest guest]

Hi ,

Welcome to the group. I am fairly new myself, but I am 31, not 16 (I

wish!!!). I, too, was confused and uncertain about whether or not to

go ahead with jaw surgery (I have a cross-bite, slanted upper jaw and

crooked chin). I am looking at upper & lower jaw surgery, and

possible genio (move of the chin). My case does not sound nearly as

severe as yours, but I still think this site could help you

tremendously, as it has me. The members are very open with their

experiences and are always willing to offer a word of encouragement.

After reading messages and receiving responses to my own questions, I

have decided to go ahead with it. I don't want to wake up 3 years

from now after NOT having the surgery and ask " what if? " - " What if I

would have had it done? I'd already be finished " .

It is obvious that you are faced with a tough decision, especially

since you have gone through so many surgeries already. Even though

the decision is yours, have your parents expressed what they think is

best? What exactly will the jaw surgery do for you? What can happen

if you don't have it done? I can only give limited advice since I

haven't even had surgery yet myself, but the one thing I would

definitely take into consideration is your age - I have read a few

posts related to relapses due to a person being too young and still

growing. Is waiting a few years an option you thought of?

I'm sure other people will respond to your post and can provide some

more experienced advice, but I hope this has helped you somewhat.

Good luck with whatever you decide,

Michele

> My name is christina,

> I am 16 years old. I was born with cleft lip & palate. I've had 10

> surgeries for being born with this, and it looks like jaw surgery

is

> my last and finale surgery. However, this surgery will not be as

> easy as when I was just a kid and my parents made all the

decisions.

> Because now, it's completely up to me to decide whether or not to

> have this surgery or not. So I'm joining this support group in

hopes

> to hear whether many results from anyones jaw surgeries are very

> beneficial. For me, being as young and indecisive as I am, this is

> very hard for me. I've had to make this decision in the past with a

> couple of surgeries, and it always leaves me hanging with that

> question " what if? " so any help or advice would be great.

>

> thanks

[Guest guest]

,

Best of luck for next week. We are meeting with the

dietician in a couple of weeks to talk about Abbie starting the

diet. Still contemplating if we'll stay here locally, at Kosair, or

if we'll maybe try the hospital in Chicago. Looking forward to

hearing how everything goes.

, Abbie's mamma

> > Dr. Puri is my daughter's neurologist as well. Dr. Puri's

office is

> > supposed to be contacting us for an appt. with Kosair's

dietician but we

> > hear she's hard to get ahold of.

>

> We have had pretty good luck getting in touch with and she

has been

> extremely helpful. We meet face to face with her about three

weeks ago and

> she was extremely friendly, cooperative, and seemed very

knowledgeable.

>

> > We are familiar with Kosair since the

> > hospital is just across the bridge from where we live. However,

when I

> > spoke with Pillus at s Hopkins Hospital she said the

only

> > hospital close to us that goes by the Hopkins protocol is the

Children's

> > Memorial Hospital in Chicago.

>

> Because I am fairly new to the Keto program, I cannot vouch for

whether it

> follows the Hopkins protocol. What constitutes " goes by the

Hopkins

> protocol? " Again, I can only say that she seems to follow " the

book " very

> closely and we were pleased.

>

> > Have you heard anything about Kosair and

> > how their keto team is?

>

> Nothing directly; however, we hear the best about Dr. Puri and

look forward

> to working with him as we try and reduce or end TomTom's

seizures. We leave

> for the hospital on Monday and will be there for the required 4-5

days.

>

>

> TomTom's Dad

[Guest guest]

hi paige, there's a list of meds to avoid on

gastricbypassfamily.com. what u can take is Tylenol.

everyone is different, the 1st 5 days were hellish, & after day 10

there was no stopping me. i was giddy & elated to have had surgery

after expecting an insurance denial. there were moments of remorse

& pessimism which vanished when my clothes started falling off me.

the fatigue is your system trying to mend itself, it'll pass.

hang in there.

lori h.

-- In Gastric_Bypass_Family , " gecko916 "

<laughinggecko@a...> wrote:

> Hi Everyone,

> I'm a new post-op (2 1/2 weeks out). New to posting, but have been

> lurking for about 1 1/2 months. First off, I'd like to say thank

you

> to everyone for all the wonderful information and ideas. You are

all

> truly inspirational!

>Is there anything we can take for pain post op once the Dr.

> stops prescribing liquid pain meds? It seems like I'm sore all of

the

> time. I had the lap RNY but even with lap surgery I tend to have

> difficult recoveries. It just seems like every pain killer (OTC

> types) are a big no-no.

>

> Also, five days ago I was hit hard by tiredness...is this typical?

I

> felt so great the week after surgery that this has been a bit of a

> shock....as have the new mood swings! I don't usually get

depressed

> but wow it's been a really rough week! Is there something about

the

> weight loss that can cause major blues? It's really an exciting

time

> and it seems very strange to be so sad out of nowhere!

>

> Sorry for so many questions! But thanks in advance for any

> information and thanks again for being such a wonderfully friendly

> and helpful group!

>

> Paige

> lap RNY

> 12/11/03

> 399/372/200-175

[Guest guest]

Sharon,

I have had my daughter on SCD to help support seizure control. We had a dramatic

improvement at first....... almost six months seizure free (she had been having

2 or 3 complex partial or tonic-clonic seizures per month previously).

Unfortunately, she had a number of seizures last fall with a viral illness.....

and we've never gotten back to the level of control we had a year ago. She had a

VNS placed this summer and we've seen some good results very recently. I've kept

her on SCD in the meantime.

I'm gearing up for my daughter's first day of school tomorrow (she's been

homeschooled until now) and have a zillion things to do so I'm sorry I can't be

of too much help at the moment with meal ideas. I do have to mash or puree most

of Katera's food as she still has chewing and swallowing issues..... so I can

just tell you that I pretty much just make my own " baby food " in a way.....from

SCD legal foods. I just use my hand blender and mini food processor a lot. All

of the things you're feeding him now would have to go..... but I'm sure you

could find plenty of options. Just a comment...... I know a number of families

who have kids who've been given the L-G diagnosis, only to have it turn out not

to be....... so don't despair. Feel free to e-mail me off list and I'll tell you

more. durovchic@... Is he on seizure meds now?

Have you read Breaking the Vicious Cycle yet? If not, be sure to get a copy

soon.

Patti, mom to Katera, who will turn 8 yrs old on Wednesday, 9/1 (CP, ACC,

microcephaly, seizure disorder, global delays, severe speech and motor

dyspraxia, tethered spinal cord, SI issues, autistic features, etc.)

New to Group

My son , 19m, has symptomatic refractory epilepsy (had

Infantile Spasms and now possibly growing into Lennox-Gastaut

Syndrome), CP, reflux, and is cortically blind. Traditional medicine

saved his life, but has little to offer in terms of rehabilitation.

I am doing a number of things for to help him - physical

therapy 3x week, craniosacral massage, and accupuncture. I am

looking into Brain Gym and am thinking about attacking his problems

with diet as well. , being a baby, eats very simply - baby

cereal with fruit, jarred baby/toddler food thickened with cereal

for lunch/dinner, and three 8oz bottles of Nutren Junion w/Fibre a

day (no milk).

Does anyone here have experience with the SCDiet and epilepsy? Any

suggestions of a menu plan for ? Books/websites that might be

helpful?

I would appreciate any suggestions, thanks,

Sharon, mom to Jasey, 19m, " just call me smiley " , and Maggie, almost

5, " bestest big sister ever "

[Guest guest]

Welcome to the list Sharon,

> Does anyone here have experience with the SCDiet and epilepsy? Any

> suggestions of a menu plan for ? Books/websites that might be

> helpful?

There is lots of information at http://www.pecanbread.com/ on doing

SCD with children and many wonderful recipes at

http://www.pecanbread.com/recipes.html

All canned baby food and the cereals would be out for SCD. Others

with very young children babies on SCD prepare simple meats,

vegetables and fruits and puree (blender or food processor) or mash

for their children.

The official website for SCD is

http://www.breakingtheviciouscycle.info/

The book Breaking the vicious cycle is the essential guide to SCD

that explains the science behind the diet. There is also a recipe

section in back including an infant formula recipe.

Sheila 42 mos SCD, 20 yrs UC

mom of SCD 27 mos

[Guest guest]

Hi Jen..

Welcome to the beach.. You will enjoy this list

tremdously.. We share good recipes that will not pack

the pounds on you.. everthing from main dishes to

appetizers and even desserts..

Again a warm welcome to the sandbox!!!

--- Staten wrote:

> Hi. My name is Jen. I wanted to introduce myself.

> I'm a stay at home mom

> of 3 kiddos and live in St. Louis, Missouri. I'm

> re-committing myself to

> SBD tomorrow. I've been " trying " for almost two

> weeks. I am having a lot

> of difficulty giving up my usual sweets. What I've

> found is that I need to

> set an alarm in the afternoon so that I stop and

> eat. By time I remember to

> stop and actually put thought into what's going into

> my mouth, it's too

> late. I've ate everything in my path! LOL!

>

>

>

> Anyway, I hope everyone is having a good weekend.

>

>

>

> Jen

>

>

Just hanging out at the beach and playing in the

sandbox...http://www3.sympatico.ca/kdworkin/mycover.jpg

__________________________________

Discover Yahoo!

Use Yahoo! to plan a weekend, have fun online and more. Check it out!

http://discover.yahoo.com/

[Guest guest]

Yes, to the sugar substitute. No, to the fruit bars. You are right, no fruit in phase one and these have real fruit and fruit juice in them. Plus they are probably over the 75 calories of sweet treats, but even if they aren't, you can't have them. Regular sugar free popsicles and no sugar added fudgesicles are allowed.

2 cups of either skim milk or fat free plain yogurt is allowed in phase one. There is a new updated list of foods to enjoy in the files for this list. Carol

New to group

Hi,

I just joined and thought I would take a minute to introduce myself. I live in Northern llinois, have been married to my hubby for 6 years today and have a 5 year old daughter. I'm a full time student (majoring in Elementary Ed.) and am on Day 3 of the SBD.

I really thought I was going to struggle the first few days, but so far it is going great. It has forced me to be a little more creative! I would never have thought to dip broccoli crowns in balsamic vinigarette salad dressing for a snack, but all the dairy (cheese is suggested several times in the book) was getting to be too much for me.

I've been eating Breyers All Fruit Popsicles made with Splenda for dessert. Does anyone know if these are legal? I only question it because we are not suppose to be eating fruit in Phase I. There are no chunks of fruit in the bars, but they are made with fruit.

Also, it's my understanding that milk is not allowed in the first phase, but I saw another post that listed skim milk as part of her daily menu. Is skim okay in this phase?

Looking forward to sharing advice, recipes and menu ideas. One more thing...I tried Somersizing severa months ago and have some left over SomerSweet (sugar substitute). I'm assuming this would be legal...does anyone know for sure?

Thanks,

Frazier

Educational Consultant

Discovery Toys

www.discoverytoysinc.comReminder: The South Beach Diet is not low-carb. Nor is it low-fat. The South Beach Diet teaches you to rely on the right carbs and the right fats-the good ones - and enables you to live quite happily without the bad carbs and bad fats. For more on this Way Of Eating please read "The South Beach Diet" by Arthur Agatston, MD. ISBN 1-57954-814-8

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[Guest guest]

Hey Heidi!

Maybe you could try implementing this principle in baby-steps, rather than

trying to do it right first up. If it's really uncomfortable to eat without any

distractions at all, perhaps don't give up TV or reading cold turkey. Instead,

start by trying to insert several " stop and check in " points during the course

of your meal (every couple of minutes, during ad breaks, whenever), where you

pause and question yourself on your fullness/satisfaction level, how you're

feeling about this meal, and note whether it might be coming close to time to

stop eating.

If your proposed no-distractions practice feels like a punishment and detracts

from the pleasure of such an important daily function as eating, it may not

benefit you, or at least not yet. You don't want to turn yourself right off it.

Baby-steps. You may find you can multi-task eating and reading (while paying

adequate attention to both) quite well, and then you can build on this practice

and nudge it in the direction you're aiming for over time. You don't need to do

it perfectly from day one - remember: persistence and perseverance, not

perfection.

Good luck!

Sig

>

>

> I am working on being more present in every area of my life, especially with

eating. I have made a conscious decision to not eat while I am on the computer.

I am trying to muster the willingness to not eat while otherwise distracted

(reading, TV, etc.) But it feels like punishment to me. I know it's not, but

that's how it feels.

>

> Heidi in KY

>

[Guest guest]

Hi Heidi,

Welcome to the group! And congratulations on your recovery from bulemia! That is amazing!

I know what you mean about it feeling like punishment to give up eating while distracted. I think it's an awesome first step that you committed to not eating while watching TV... and I think that's exactly the right way to go about it. Baby steps. I focused on one meal a day to start with. So I committed to eating dinner without distraction. When I felt comfortable with that, I moved on to lunch, etc.

The other thing I can tell you is that, at least for me, it stopped feeling like punishment pretty quickly, and started being my preference. I watched a movie while eating dinner a couple of weeks ago, and realized after the fact that I had hated it! And this is from a person that never, ever ate without distraction before.

The other thing to keep in mind is that this isn't a rule; it's a goal. You don't have to do it 100% of the time. But you may be surprised to find, after an initial period of discomfort, that you prefer it!

Glad to have you with us. Let us know how it goes.

Best,

Abby

Practicing IE since 11/08

 

Hi, new internet friends.

I am new, and I just want to introduce myself. I'm a recovered bulimic (almost 2 years) who has tried everything to find peace with food and body image. Intuitive eating is the only thing that has worked for me. I initially used Overcoming Overeating to overcome my eating disorder, which helped me greatly. Now I am finding continued growth in the work of Geneen Roth.

I am working on being more present in every area of my life, especially with eating. I have made a conscious decision to not eat while I am on the computer. I am trying to muster the willingness to not eat while otherwise distracted (reading, TV, etc.) But it feels like punishment to me. I know it's not, but that's how it feels.

I would love some feedback or suggestions from you guys.

Thanks so much!

Heidi in KY

[Guest guest]

Hi, Heidi,

I agree with Abby, wow, overcoming bulimia is such an accomplishment! And baby steps are the way to go with IE. No one's measuring your progress--it takes as long as it takes. Being present is, for me at least, the base of it all. If I stay present, I simply don't want to overeat because it doesn't feel good. If I stay present, I notice when I have overeaten, and it takes quite a bit longer for me to get hungry again. This morning I notice I'm still not hungry because I took my husband out for Father's Day last night, to thank him for being such a good dad to our two ies. We had a wonderful meal at a favorite Korean restaurant, and I overate just a bit. So this morning I'll do my walking early so that I can feel more comfortable in my body. Right now it still feels a little stuffy.

For me, that's the difference: I can actually feel things now, and contrary to what I feared, it's not all terrible stuff. I am actually enjoying exploring my feelings. It's great not feeling numb all the time.

I think for me the attitude I took helped me not to feel like things were punishing (which I easily slipped into at first). I followed Geneen's suggestion to get curious about what was happening to me. If something like paying attention to my food instead of distracting myself while I was eating felt punishing, I asked myself why was that? No judgment, no "bad girl, you can't even do this right" kind of thought, just curious, "I wonder why I feel this way about paying attention to what I eat??" It helped me realize that I often felt I didn't deserve to eat, even when I was hungry, because after all, I have so much weight to lose. I've since been able to turn that thinking around, to realize that if I am truly hungry, my body is legitimately needing food.

You'll do great...just give yourself time and lots of kindness. You deserve it!

All best,

Laurie

>>>Hi, new internet friends.

I am new, and I just want to introduce myself. I'm a recovered bulimic (almost 2 years) who has tried everything to find peace with food and body image. Intuitive eating is the only thing that has worked for me. I initially used Overcoming Overeating to overcome my eating disorder, which helped me greatly. Now I am finding continued growth in the work of Geneen Roth.

I am working on being more present in every area of my life, especially with eating. I have made a conscious decision to not eat while I am on the computer. I am trying to muster the willingness to not eat while otherwise distracted (reading, TV, etc.) But it feels like punishment to me. I know it's not, but that's how it feels.

I would love some feedback or suggestions from you guys.

Thanks so much!

Heidi in KY<<<