Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 I ran out of my pain meds and am work waiting for the Dr to okay the refill. Everything hurts so bad. I was reading the other posts about hope, progression. I am remembering how I felt before I knew what I had had a name and how glad I was to know I wasn't crazy. My Lupus has taken a back seat to the Fibro monster and they tell me I should be glad. I just keep working, going home and going straight to bed. Sometimes I am in bed by 6:00 pm. I might get up and put a load of laundry in or grab something to eat but if my kids come over they sit on the bed and talk to me. They liken it to a recharging area for mom. Every ounce of energy I have is precious to me and I have to safeguard it. I cry and sometimes late at night I wonder what is the point but you know I really don't know what is gonna happen next to me or my kids or whatever and I really want to see. If I let this disease take me I won't get to see my grandchildren grow up, my kids succeed, etc. I am just wandering in my head right now thinking about hope, giving up, hurting, loving, laughing...I pray for all of us; that we be given the strength and courage to just keep going. Quote Link to comment Share on other sites More sharing options...
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