RE: Little intro...BIG welcome Anita ! ! !

[Guest guest]

I sooo relate to one Dr. after another and I don't want to get hi either I too

just want to function.

Oh A I'm and welcome to the group. I HOPE YOU find the Love, encouragement

and support I ahave found since joining.

GOD Bless YOU Anita ! ! ! . . . .............................. . . .

S.E. Arkansas GOD grant me the serenityto accept the things I

cannot change the courage to change the things I canand the wisdom to know the

difference. Amen ! ! !

To: Fibromyalgia_Support_Group@...: tubelover2u@...:

Thu, 31 Jan 2008 00:20:04 -0500Subject: Little intro...

Hello everyone...not sure if I'm doing this right...but wanted to jump righton

in. I'm Anita (known online as ButterflyKisses) I'm a 45, married motherof two,

grandmother of one, and am owned by my two mini dach's...lol After 8 years of

pain, going from one doctor to the next...5 years ago I wasdiagnosed with

MS...but that didn't account for the daily pain...now I'msure I'm not the only

one out there that has went through the following... Q. Where do you hurt. A.

Depends on the day, and what I'm doing. Q. Howbad is the pain A. Depends on the

day, and what I'm doing. Q. Is it astabbing pain? A. Depends on the day and what

I'm doing (see a patternforming??? LOL What other symptoms do you have...well

let's see... Fatigue,numbness, tingling, pin pricks, ... Okay where... UUHHH

depends on the dayand what I'm doing! Now I've been playing this little cat and

mouse gamefor years! My family doctor cared, but had NO clue what was happening.

Iended up being on a Duragesic Patch (75 MG)... Which when taken with

myNeurontin and Elavil really did wonders! Was I pain free? Nope... But atleast

I could function. My world came crashing down last November. You see my family

doctor gotsick and ended up having of all things...open heart surgery. She's

been mydoctor for over 8 years, and knew all about my struggle. When she got

ill,I had to see another doctor in the same building, since you can't get

refills on the Patch. This doctor told me it was all in my head, that I just

likegetting high, and that it was over. I put on my last patch on the 2nd

ofJanuary... Now I'm not sure if you all know this...but...you are NEVERsuppose

to go off that patch cold turkey, you're suppose to be weaned...notme...oohhh

nooo... And to be honest....for over a week...I went through theworst

withdraws... I went through hell!The only GOOD thing about it... I finally was

sent to the Cleveland Clinic(no one within 200 miles wanted to touch me)... But

I digress.... Finally ..I have an answer...it's Fibro....which by the way was

the FIRST thing myfamily doctor thought it was....will the Cleveland Clinic

treat me and helpme??? Not unless I go to Cleveland, stay for a month (in a

motel room....)and go to Physical Therapy, Group Therapy (long story..lol),

IndividualTherapy, and various other therapies! Welllll.... Number one my

husbandsinsurance would have a cow! And we would go bankrupt between the motel

costand food costs. So where does that leave me??? Struggling! All thosesymptoms

that had become bearable are now back with fury! Right now it'simpossible to do

anything for any length of time. I never wanted to gethigh.....I wanted to be

able to function!!!Okay, I'm sorry...I've screamed long enough...I don't want to

push you allaway with my first post.... Someone, anyone...tell me there's hope

outthere!!!Thanks for listening...uuhh readingAnita[Non-text portions of this

message have been removed]

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