Re: something to be grateful for//Teri

[Guest guest]

Teri,

I too am glad your daughter finally got to see you and the beast the

way you are. My 2nd youngest son (I keep forgetting I have 4 kids now

with our adoption...lol....and have 3 sons total and 1 daughter) has

said he has noticed I had seemed to " lose a step " but we truly

thought it had to do with my asthma/allergies/diabetes and the

chronic mono I kept suffering *until* we go the name of the beast

that is trying to hold me back. Once we knew, that ol' lightbulb came

on. Know what he said? So it takes you a little longer to do things,

that's okay, knowing how you are you'll still manage to get it done!

And when he comes down to visit (he lives in north Georgia, I'm south

of Atlanta), he is okay if we go shopping and I have to use the

scooter....lol....said that may end up being a present for me at some

point!

A far cry from my DH who just prior to my diagnosis admitted he

thought I had changed my profession to " sick person " which really

hurt. Fortunately, a 9 day stay in the hospital due to my asthma

flaring after a bout of bronchitis (despite my best efforts too!) and

him seeing a mini-flare start because of being comfined to the bed

and on oxygen has changed his tune just a little bit! Because I added

a few more diagnoses, all chronic - COPD, cardiac artery disease and

potentially lower extremity blockages (which I am following up with a

specialist on).

So while it no doubt hurt your spirit to hear your daughter be so

frank about how she was feeling about your fibro, with honesty comes

healing and truth and understanding. Who cares if you can't do it as

fast anymore? Or have to look at your calendar to make sure you don't

overbook? Or make a change in plans because a flare activated,

sometimes for no good reason? Anyone that does can just get

lost....or not visit as often!

(((Hugs to you))))

Darlene

> > Morning all,

> >

> > Woke up to screaming pain in my neck and upper back area so I

knew I

> > needed to take my meds, stretch some and stay out of bed.

> >

> > Wanted to share something that happened this past week. My son

who is

> > stationed down in Fort Worth was hospitalized, so my daughter,

> > granddaughter and I flew down from Wisconsin to Texas. He is

doing

> > fine now -- thank God. But all the traveling and moving around

> > (car/train/plane), sleeping somewhere beside my bed and just

generally

> > being out of my element has sent me into flare city. I kind of

figured

> > it would happen.

> >

> > So besides the good news about my son is that my daughter had the

> > opportunity to see first hand over a period of 6 days what I

actually

> > go through. She works for my PCP and stated to her that it

totally

> > frustrates her because her mom is only 49, in pain the majority

of the

> > time, can't do the things she used to be able to do and still

should

> > be able to do and there is nothing she can do about it when it

comes

> > right down to it.

> >

> > I started to cry when I heard that -- it's not that I want their

pity --

> > because I don't. But to have affirmation that someone who I

thought

> > didn't understand -- does, that makes me grateful. I'm thankful

that

> > my son is alright and that my daughter actually understands now.

> >

> > Wishing you all a " pain free " day.

> >

> > Teri (Central Wisconsin)

> >

>

>

>