Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 , I went to Omaha about 4 years ago and absolutely loved it there! I saw Dr. Sorrell and was very pleased with him, too! The only reason I left there was because of a change in insurance and they would not allow me to be tx'd outside of the St. Louis area. Now the insurance I have doesn't have a contract with them or I'd go back there in a heart beat. They have what is called the Lied Center and the setup there is wonderful. They have nice accommodations at a reduced rate for patients and their families -- well worth every penny. I did everything I needed to do without ever having to leave the building. Not long ago, one of our members, Hillbillybob, was tx'd there and he was very happy. Bottom line, I would go for it. I can't imagine you having any regrets. If my daughter were the one with PSC I assure you I would take her there without hesitation. Good luck to you and ! (MO) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Dear , I see Dr. Sorrell at the Nebraska Medical Center. I consider him a terrific Hepatologists and I've also had Doctor Lindor as a past Hep.( Lindor being the PSC expert from Mayo.) The only problem with Dr. Sorrell is his age. I think he is in his late 60's. However, he assures me he has no intention of retiring any time soon. If you can take advantage of this very experienced physician, I don't think you will be disappointed. Dr. Sorrell no longer does any of the Endoscopy procedures, leaving that to very qualified younger physicians. When I get scoped (either direction) I request Dr. Tim McCashland. He just recently took over as the Transplant Teams lead Hepatologist from Dr. Sorrell. The Lied center is a wonderful facility for post transplant rehabilitation. I watched our friend Hillbilly Bob go through the process from being admitted to post transplant liver unit and then the Lied center. He had, by my estimation, a very good staff of proffesionals as well as a terrific surgeon, Dr. Grant, who obviously did a real fine job on Bob. Dr. Grant is a woman which might be a good fit for you and your daughter. The Lied center is like a good hotel. After your stay in the hospitals liver wing you move over to the Lied Center. The rooms here can accomodate family members, with two beds and a living room area. I think the couches are fold out. They are equiped with fridges, TVs and plenty of space. There is an attending nurse on the floor and all the post transplant care is an elevator ride down to the lobby. I certainly recomend you come up and tour the facilty. Dr. Sorrell's clinic day is Tuesday, so plan accordingly. If you need any help negotiating the hospital or the city, please let me know. You can contact Eggers at the Lied Transplant Center for info about the evaluation process. He is the Transplant Centers Concierge and Guest Services Representative. He is also a transplant recipient who had PSC. His Phone # is . All the best to you and . Omaha Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 : I certainly echo the recommendations of and Tim regarding the Nebraska Medical Center and its liver transplant program. Dr. Sorrel is one of many excellent doctors on the transplant team. Everything about the facility and program is top notch, and my wife and I are so glad we decided to go there. I've seen Dr. Dan Shaffer for all of my post-tx visits (a brilliant guy with a delightfully quirky sense of humor). I'll be seeing him again on Monday, May 1, for my annual checkup (the end of May will mark five years since my two liver transplants!). How is your daughter doing medically and with her college studies? I'm sorry we've not kept in touch for quite a while now. My liver is still doing great. I wish I could say the same about my Crohn's. I'm dealing with another small flare currently. Ulceration of the same area in my terminal ileum, as always (it's now been 37 years since I was first diagnosed), led to some blood loss, which in turn caused me to faint--right at the end of a church service a couple Sundays ago. Created quite a bit of excitement. When you call 9-1-1 in my hometown you get police, paramedics, ambulance, and a crew of firefighters and firetruck responding. Anyway, I got my first-ever ride in an ambulance, followed by three days of in-hospital tests: a scope down, a scope up the other end, and two large cups of barium swallow with X rays for in-between. Curiously, it's just that one small area affected. My GI doc was actually amazed at how incredibly healthy the rest of my guts are. I'm doing fine now, although we're keeping a close watch on hemoglobin and hematacrit levels, in particular. But, of course, that's why they call it a chronic disease--the darn thing never completely goes away. Rich in KC Crohn's, cryptogenic cirrhosis, 2 liver txs 5/2001 Quote Link to comment Share on other sites More sharing options...
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