Re: Newbie here and have a question.

[Guest guest]

Chad

Mike and I had in 1994, at that point he probably had psc for about 15

years.............she's a healthy 12 year old.

Patti

" the trouble with normal is that it only gets worse "

>

>Reply-To:

>To:

>Subject: Newbie here and have a question.

>Date: Tue, 18 Apr 2006 22:56:46 -0000

>

>Hello-

>

>I was diagnoised with PSC when I was 15 and had a living donor

>transplant (my dad) in 2000 unfortunately that did not last because my

>artery was getting clogged and also had a bile leak somewhere in my

>stomach. So in 2002 I had another transplant but it seems to not be

>working out as well because the PSC is coming back, but anyway my

>question is that I will be getting married in Septemeber and my soon

>to be wife is a pharmacist so she knows about all the medicines I

>take. However she is concerned that once we decide to have kids that

>we may have a child with PSC or other problems. I have only really

>been able to find articles on women who have had PSC or liver

>transplant and then having kids.

>

>Can anyone tell me if having PSC and then trying to have kids will

>affect the kids. Or if any of the guys on here have had kids after

>their transplant let me know what you have found out.

>

>Thanks Chad

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Chad wrote:

> Can anyone tell me if having PSC and then trying to have kids will

> affect the kids.

I've had two kids since being diagnosed with PSC... one is now 7 and the

other is 3, and so far they are normal healthy kids (well, I like to

think they're quite a bit above average, but then I'm justa bit biased!

;-) ).

Since PSC does tend to run in families, there is a slightly higher

chance of the children of someone with PSC also having the disease, but

since it's such a rare disease the odds are still pretty low that your

kids would have it. I'm trying to remember if we have any parents and

children in this group who both have PSC, and right now I can't think of

any... I know we've had members with siblings or cousins who also had

the disease... Anyone else know?

The decision whether to have kids or not is, of course, personal, but as

you can tell we made the decision to go ahead and haven't regretted it

for a second!

Hope that helps!

athan