Re: Wallet Medical History/Medication Card

[Guest guest]

Good thought, although even if someone knows their blood type, no

treatment would be given without thorough type and cross prior to

blood transfusion.

Joanne

(, Ca)

>

> I'd recommend a spot for blood type. My " dog tag " has name, city,

blood type, UC, PSC, asthma and " only one kidney " .

>

>

> Arne

>

>

>

> Hi!

> Here is a draft of a PSC specific medical history/medication card...

>

[Guest guest]

Very nice card Joanne.

How about adding a space for Emergency Contact (Name and Phone)?

Something like this would also be good to have in a PSC-child's

school health record. We have an " Emergency Care Plan " on file with

the school nurse, but it isn't quite this detailed. Obviously a

parent or guardian has to consent to any medical procedures for a

minor, but in the case of an emergency, it would be good for the

ambulance crew and ER staff to have this type of information.

Thank you for putting this card together.

Dana

(Mom of Josh, 6 yrs old, UC 3/04, PSC 4/04)

.... wanted

> feedback if I forgot something important. The card doesn't have

> absolutely every detail, because the purpose is to have a portable

> list which capture key items and full list of medications and

allergies.

[Guest guest]

>

> I don't see the section/line where you list allergies. Is it on another

> section not shown here?

>

>

Hi! Allergies is actually at top of page (for the back of the card).

This is difficult to see in the layout on the email.

Dana - good idea to include emergency contact with tele #. I also

forgot space for cardholders telephone #. Will include with revision.

Thanks!

Joanne

(, Ca)

> Allergies: ________________________________________

> ___________________________________________________

>

> Medications: Name, Exact Dosage, Frequency (# Times/day)

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

> ___________________________________________________

>

[Guest guest]

Dana-

You reminded me of another " card " (sorry, I love this stuff!) that can

be helpful for any children, plus a generic emergency card for home.

Here is what they look like, although I reduced the font size to fit

on this page:

When You Need Help

(Have this information ready by the phone before an emergency happens)

Police/Ambulance/Fire: Dial 911

Doctor: ___________________

Poison Control: 1- (24 hour)

Neighbor: ___________________

Relative: ___________________

Your phone number: ___________________

Your address: ___________________

Nearest cross street: ___________________

and:

Permission for Medical Treatment

When a child is left in the care of a relative, friend or babysitter,

the following note should be left by the parents:

In the event of an accident or other emergency, I give permission to

______________________ to give consent for necessary medical or dental

(Caregiver's name)

treatment for _____________________________(Child's name).

Parent/Legal Guardian Signature: ___________________ Date: _________

If signed by other than parent indicate relationship: ________________

Child's Doctor: ______________________ Phone # _____________________

Insurance: ________________________ Group # _____________________

This permission form can be used until _________________ (month/year)

If anyone wants these, I can figure out how to post them in a file or

you can email me and I'll send them to you.

Joanne

(, Ca)

sjhatch@...

We have an " Emergency Care Plan " on file with

> the school nurse, but it isn't quite this detailed. Obviously a

> parent or guardian has to consent to any medical procedures for a

> minor, but in the case of an emergency, it would be good for the

> ambulance crew and ER staff to have this type of information.

[Guest guest]

Joanne,

I've been carrying an 8x11 sheet with all of my information on it since I was sepsis in '97 and was unable to speak and give info. I have found that the doctors and ER staff LOVE IT! I always just give them a copy to keep. My last ER visit I only had one left so asked the nurse to make a copy for their records, he made me 30 copies! He thought it was such a great idea he wanted to make sure I had enough copies to go around for some time to come. Unfortunately, I have so many conditions and hospitalizations that I have been unable to get it on a smaller piece of paper, and still be able to read it! Anyway, I think it's great that your putting this together. I think it's important for everyone to have such a card, it helps to eliminate the possibility of leaving something out that they may find important. With HE I find it absolutely necessary to carry this with me!

(MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs

[Guest guest]

-

Thanks! In my mind the pocket size card is brief, with an important

focus of keeping your medicine list up to date. Having " the long "

form with all details of past illness, exacerbations, treatments, etc

is also important. And these are invaluable if you can't talk for

whatever reason. Even after a minor traffic accident, if someone is

upset, they can forget the names of the disease & medicines they

usually know by heart!

I love the story that the ER doctor gave you 30 copies! At least they

weren't shy with the copy machine!

Take care.

Joanne

(,Ca)

>

> Joanne,

> I've been carrying an 8x11 sheet with all of my information on it

since I was

> sepsis in '97 and was unable to speak and give info. I have found

that the

> doctors and ER staff LOVE IT! I always just give them a copy to keep.

> (MO)

> PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05

> for details see www.caringbridge.org/visit/melaniejs

>

[Guest guest]

By using a small enough font, I can barely fit it on a 8-1/2X11 sheet. :-}

You're right though - the Drs. really like it.

Arne 54 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota

From: [mailto: ] On Behalf Of MO425@...

Joanne,

I've been carrying an 8x11 sheet with all of my information on it since I was sepsis in '97 and was unable to speak and give info. I have found that the doctors and ER staff LOVE IT! ...

(MO)