Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi Judy, I haven't had a sleep study,, yet. but my hubby who has epilepsy says i need to request one. I was sitting next to him on Sat. and he counted full body jerks in eccess of 40 times in one minute. Sat. was the worse in all of the body jerking ,evil wrecking ,painfull nights. with skelaxton, flexiril,pain meds, and night Lyrica and Ambien CR was watching the ole show " Flipper " at 0300am . (no really i did this).. lol I told my physcial therapist today and she said i need to tell the doctor, immediatly. I told her I see a spine specialist Friday for the disk dengernation at C6-7. I jerk and twitch and crawl. geezzz sounds like the ole movie the " The Blob " . hang in there Honey child cause you and i must be going down the same road on time frames. I was diagnosed in December too with the Fibro. I just had to admit to the hubby , yesss i have been dating doctors. Diane --- Judy Rye wrote: > Hi, I am new to the group. I have been reading the > posts for a > while, but haven't replied or posted anything until > now. I was > diagnosed with fibromyalgia at the end of December > when I saw a 2nd > rheumy to get another opinion. The first one told > me last October > that I had Lupus even though my ANA was borderline. > > > I responded to your post because I too have horrible > body jerks as > well as the feeling of worms crawling. I underwent > a sleep study and > they discovered I have " Periodic Limb Movement " > which is a form of > restless leg syndrome. My leg(s) moved or twitched > 43 times in one > hour's time. I am on Requip which has helped my > sleep. I still have > the jerks, etc at times when I am resting, but they > do not keep me > awake when I take the Requip at night. My pain > often keeps me from > falling asleep though. > Judy > > > > > > > > I have not slept for 4 day forgot to get my meds > on > > > fri. Anyway why > > > only at night, horrible feeling. Anyone else > have > > > it? Vikk > > > > > > > > > > > > 1. While it is wonderful to share our > experiences > > > with everyone on the list as to what treatments > do > > > and don't work for us, pls always check with > your > > > dr. Some treatments are dangerous when given > along > > > with other meds as well as to certain health > > > conditions or just dangerous in general. > > > > > > 2. If you are in a difficult situation (doesn't > > > matter what it is) pls don't be afraid to ask > for > > > help. It is the first step to trying to make > that > > > situation better. > > > > > > 3. To unsubscribe the e-mail is: > > > > > > Fibromyalgia_Support_Group-unsubscribe > > > > > > 4. Also, it is not uncommon for more than one > member > > > to be feeling bad at the same time when it comes > to > > > flares and b/c of that potentially take > something > > > another member says the wrong way. And that > > > includes the things that one member may find > funny > > > (even if it's laughing at fibro itself) even > though > > > we who deal with illness whether one such as > fibro > > > or multiple illnesses try to keep a sense of > humor. > > > > > > 5. Pls let's be gentle with each other, and if > you > > > are having a bad day pls let us know so that we > can > > > do our best to offer our support. > > > > > > Have a nice day everyone. > > > > > > Quote Link to comment Share on other sites More sharing options...
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