Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Hello All! I'm delighted to be a part of this group and look forward to all we can share, learn, teach, and do! Have a wonderful week everyone!*HUGS*CassieI honor the place within you where the entire universe resides. I honor the place within you of love and light, of peace and truth. I honor the place within you where when you are in that place within you, and I am in that place within me, there is only one of us. Namaste from Honest to God by Neale Walsch and Brad Blanton Gather all courage and take a jump. You will still exist, but in such a new way that you cannot connect it with the old. It will be a discontinuity. the old was so tiny, so small, so mean, and the new is so vast. From a small dewdrop you have become the ocean. But even the dewdrop sliping from a lotus leaf trembles for a moment, tries to hang on a little more, because he can see the ocean . . . once he has fallen from the lotus leaf he is gone. Yes, in a way he will not be; as a dewdrop he will be gone. But it is not a loss. He will be oceanic. And all other oceans are limited. The ocean of existence is unlimited. Thilakshan Jeyarajah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Welcome Cassie :>) In Lak'ech Ala K'in, Cheryl(translation: In Lak'ech Ala K'in -You Are My Other Self)In Lak'ech Ala K'in - the Living Code of the Heart | Spirit Libraryvisit me at: www.myspace.com/senegaladyMay we learn to benefit the life of Earth with peace, humble in our needs, and generous in our giving.Joanne Sunshower In a message dated 8/17/2008 9:15:02 P.M. Eastern Daylight Time, littlewingcz@... writes: Hello All! I'm delighted to be a part of this group and look forward to all we can share, learn, teach, and do! Have a wonderful week everyone!*HUGS*CassieI honor the place within you wherethe entire universe resides.I honor the place within you of love and light,of peace and truth.I honor the place within you wherewhen you are in that place within you,and I am in that place within me,there is only one of us.Namastefrom Honest to God byNeale Walsch and Brad BlantonGather all courage and take a jump. You will still exist, but in such a new way that you cannot connect it with the old. It will be a discontinuity. the old was so tiny, so small, so mean, and the new is so vast. From a small dewdrop you have become the ocean. But even the dewdrop sliping from a lotus leaf trembles for a moment, tries to hang on a little more, because he can see the ocean . . . once he has fallen from the lotus leaf he is gone. Yes, in a way he will not be; as a dewdrop he will be gone. But it is not a loss. He will be oceanic. And all other oceans are limited. The ocean of existence is unlimited.Thilakshan Jeyarajah Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I feel much better! Thanks for your response! > > Welcome. My wbc was 94,000 when I started. There are some on thie site way > way higher then that. > > Good luck to you and ask any questions you like > > Sharon T > > > > _____ > > From: [mailto: ] On Behalf Of > ryanromero49er > Sent: Friday, October 30, 2009 1:36 PM > > Subject: [ ] New member! > > > > > > Hi everyone! > > I was diagnosed with CML on 10/22. I start Gleevec tonight. They had me on > hydroxyurea which didn't have any effect on my WBC. I'm curious if everyone > else had a WBC of 78000. I'm only 27 and have no other health problems > except for a bad back.... > > I'm glad to see I'm not alone going through this! > > Thanks Zavie for sending Bev the link! > > R.Romero > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 Hello and welcome. I take Sprycel but was Dx'd in April 2007 in the blast phase wasn't believed i would make 6 mths. I am proud to say made full remission July of this year. Good thing you are a fighter. I am too. Never give up. Life is good and it gets better. My hair has been getting rather thin in the last couple of months but could blame that on family genes. LOL God still works miracles Anita ________________________________ From: ryanromero49er <ryan.romero@...> Sent: Fri, October 30, 2009 6:03:40 PM Subject: Re: [ ] New member! Thanks ! I'm a fighter... always have been! Does anyone know if I should expect to lose my hair with Gleevec? > > Welcome to the group no one wanted to join! > > It takes you by surprise at any age. I was 58 when I was diagnosed 2/10/03. > FYI my wbc was 77,000 at diagnosis. The others are right, some in this group > had counts in the 200K, 300K and more ranges. The lucky thing is that they > have caught it and there are things to do for it in most cases. This one > whale of a health problem but things are looking really good for most > people. Hang in there, fight the beast like mad and take care of yourself. > > Troxel > > On Fri, Oct 30, 2009 at 1:36 PM, ryanromero49er > <ryan.romero@ ...>wrote: > > > > > > > Hi everyone! > > > > I was diagnosed with CML on 10/22. I start Gleevec tonight. They had me on > > hydroxyurea which didn't have any effect on my WBC. I'm curious if everyone > > else had a WBC of 78000. I'm only 27 and have no other health problems > > except for a bad back.... > > > > I'm glad to see I'm not alone going through this! > > > > Thanks Zavie for sending Bev the link! > > > > R.Romero > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 Hi , Welcome to the club that nobody really wants to be a member of. My WBC at diagnosis was 145,000. Give your body a month to adapt to the Gleevec and keep watching for any side effects. Chances are you won't have any. I have been on Gleevec (400 mg) since March 2001. There is an online chat every Tuesday evening at 9:00 PM Eastern. If you have Skype on your system, simply add me as a friend and we will chat. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Skype: Zavie _____ From: [mailto: ] On Behalf Of ryanromero49er Sent: October 30, 2009 4:36 PM Subject: [ ] New member! Hi everyone! I was diagnosed with CML on 10/22. I start Gleevec tonight. They had me on hydroxyurea which didn't have any effect on my WBC. I'm curious if everyone else had a WBC of 78000. I'm only 27 and have no other health problems except for a bad back.... I'm glad to see I'm not alone going through this! Thanks Zavie for sending Bev the link! R.Romero Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 Hello I was DX at the age of 22 back in 11/25/03. I went in with really strong flu symptoms, and my doctor told me it was the flu, and to go home and take it easy, As I was walking out of his office, he asked me to come back, and he checked my spline, and from there he rushed me straight to the nearest hospital for testing, I got my results back that evening with my blood counts at 343,000 and from there I was taken by ambulance to Stanford. Its been almost 6 years, and I am 400mg Gleevec. Life is still pretty normal for me other some of the small side effects. You have picked a great chat room to be a part of. I hope this helped. From: Troxel <richard.troxel@...> Subject: Re: [ ] New member! Date: Friday, October 30, 2009, 4:00 PM Welcome to the group no one wanted to join! It takes you by surprise at any age. I was 58 when I was diagnosed 2/10/03. FYI my wbc was 77,000 at diagnosis. The others are right, some in this group had counts in the 200K, 300K and more ranges. The lucky thing is that they have caught it and there are things to do for it in most cases. This one whale of a health problem but things are looking really good for most people. Hang in there, fight the beast like mad and take care of yourself. Troxel On Fri, Oct 30, 2009 at 1:36 PM, ryanromero49er <ryan.romero@ callfusion. com>wrote: > > > Hi everyone! > > I was diagnosed with CML on 10/22. I start Gleevec tonight. They had me on > hydroxyurea which didn't have any effect on my WBC. I'm curious if everyone > else had a WBC of 78000. I'm only 27 and have no other health problems > except for a bad back.... > > I'm glad to see I'm not alone going through this! > > Thanks Zavie for sending Bev the link! > > R.Romero > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 Easy answer... No! This is not your grandfather's chemo. On Fri, Oct 30, 2009 at 4:03 PM, ryanromero49er <ryan.romero@...>wrote: > > > Thanks ! I'm a fighter... always have been! Does anyone know if I > should expect to lose my hair with Gleevec? > > > > > > > Welcome to the group no one wanted to join! > > > > It takes you by surprise at any age. I was 58 when I was diagnosed > 2/10/03. > > FYI my wbc was 77,000 at diagnosis. The others are right, some in this > group > > had counts in the 200K, 300K and more ranges. The lucky thing is that > they > > have caught it and there are things to do for it in most cases. This one > > whale of a health problem but things are looking really good for most > > people. Hang in there, fight the beast like mad and take care of > yourself. > > > > Troxel > > > > On Fri, Oct 30, 2009 at 1:36 PM, ryanromero49er > > <ryan.romero@...>wrote: > > > > > > > > > > > > Hi everyone! > > > > > > I was diagnosed with CML on 10/22. I start Gleevec tonight. They had me > on > > > hydroxyurea which didn't have any effect on my WBC. I'm curious if > everyone > > > else had a WBC of 78000. I'm only 27 and have no other health problems > > > except for a bad back.... > > > > > > I'm glad to see I'm not alone going through this! > > > > > > Thanks Zavie for sending Bev the link! > > > > > > R.Romero > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 My daughter was diagnosed with CML March 21st of this year which was one month before her 19th birthday. She went in for some pain and a lump in her left side and after the tests the military doctors sent her to Stanford University because they couldn't say for sure what was wrong with her, but they knew it was serious and they didn't know how to treat it. It turned out to be CML. She is on Gleevic now and has responded very favorably to the treatment. At her initial diagnoses her WBC was 290,000. They started her out on Hydroxyeurea and Gleevic. After about one week they stopped the Hydroxyeurea, but the Gleevic continues. Her WBC is now normal and the numbers of the philadelphia chromosome continue to decline on the bone marrow biopsies that she has every 90 days. So all in all she is doing good. She is most likely going to persue a bone marrow transplant because she doesn't want to be taking the Gleevic the rest of her live. She is fortunate because two of her sisters are a match. I wish you all the luck with the progression of your disease. As a comforting thought to add. To see my daughter you would never know anything was wrong with her. She is doing really good and her activity level is pretty much like it was before her diagnoses. Her side effects from the Gleevic are pretty mild, with the most severe being nausea, but the doctors are doing their best to combat that with other medicines. > > Welcome. My wbc was 94,000 when I started. There are some on thie site way > way higher then that. > > Good luck to you and ask any questions you like > > Sharon T > > > > _____ > > From: [mailto: ] On Behalf Of > ryanromero49er > Sent: Friday, October 30, 2009 1:36 PM > > Subject: [ ] New member! > > > > > > Hi everyone! > > I was diagnosed with CML on 10/22. I start Gleevec tonight. They had me on > hydroxyurea which didn't have any effect on my WBC. I'm curious if everyone > else had a WBC of 78000. I'm only 27 and have no other health problems > except for a bad back.... > > I'm glad to see I'm not alone going through this! > > Thanks Zavie for sending Bev the link! > > R.Romero > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Greetings and welcome to the best club for you that you will be able to find to help!! I was diagnosed on 01/08/2008. My WBC was 98000. I am truly blessed. My WBC went from 98000 to 6500 with in a month of being on Gleevec. (400mg once a day!) On October 7, 2009 I have no leukemia in my blood!! One pill everyday for the rest of my life or until something better comes along or a cure!! If you ever want to talk let me know!!! I will be praying for you!! Blessings, Jo-Dee From: ryanromero49er <ryan.romero@...> Subject: [ ] New member! Date: Friday, October 30, 2009, 8:36 PM Hi everyone! I was diagnosed with CML on 10/22. I start Gleevec tonight. They had me on hydroxyurea which didn't have any effect on my WBC. I'm curious if everyone else had a WBC of 78000. I'm only 27 and have no other health problems except for a bad back.... I'm glad to see I'm not alone going through this! Thanks Zavie for sending Bev the link! R.Romero Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 , I don't want you to think I don't have some side effects from the Gleevec. I actually take Zofran (anti nausia med) right before I eat and then the Gleevec with LOTS OF WATER when I'm done. We have a really great restaurant near us with awesome salads. (NOT SO AWESOME AFTER GLEEVEC!!!) I have to have something alittle more substantial that lettuce when taking my meds. I had some swelling and my dr. put me on a low dose blood pressure med with a water pill in it to help with the swelling in the ankles and eyes. My hair wasn't falling out like going bald but I had alot of stray hairs on my clothes and it bothered me. I take a vitamin Nioxin. My beautician gets them from the beauty supply store for me. I also had a problem with the scoots. I take a pill for that also but I don't have it with me. If you want the name let me know and I'll check the bottle at home. This may sound alittle overwhelming but just know God has you right where you belong. There are totally amazing people on this site that can answer any little old thing you wonder about!! If you just want to vent we will talk you right out of it!! My daughter and doctor both told me this the best bad news you will ever get!! This leukemia is treatable!!!! You could be so much worse off!!! Keep your chin up!!! Blessings, Jo-Dee From: ryanromero49er <ryan.romero@...> Subject: [ ] New member! Date: Friday, October 30, 2009, 8:36 PM Hi everyone! I was diagnosed with CML on 10/22. I start Gleevec tonight. They had me on hydroxyurea which didn't have any effect on my WBC. I'm curious if everyone else had a WBC of 78000. I'm only 27 and have no other health problems except for a bad back.... I'm glad to see I'm not alone going through this! Thanks Zavie for sending Bev the link! R.Romero Quote Link to comment Share on other sites More sharing options...
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