Re: Information on Son's condition, etc

[Guest guest]

Kari,

Just email me directly if you would like to know specifics. Otherwise I

don't know exactly where to start. But anything as far as experience or

information is free to you...and anyone else.... This online group has been

SO helpful in assisting us to maintain some normalcy (sp?) in our home.

BTW, my son was misdiagnosed for almost a year, due to the drs thinking he

was 1)faking, 2) just nervous, 3) stressed from school and homework, 4)

spoilt and wanted special attention. He was treated for nerves,

stress-stomach, ulcers, etc....and all along it was Pancreatitis. I

immediately had a feeling of relief when they diagnosed it, but was soon

despondent over the thought of " no cure " .

We continue our search for information. Knowledge is power. And so is

money.... maybe we can garner some attention with the symposium and gain some

much-needed grant $ for research.

Donna (now off my soapbox)

(Cameron's mom)

Fort Worth, TX