Re: Response to Clint about stage

[Guest guest]

thanks for the encouragement. No that would be a long ways for me.

I'm in Arkansas. I also have to work.

-- In , " " wrote:

>

> Stage really is not important. For me it just helped me visualize

things

> better. I am a very visual gal.

>

> I had to figure Noah's out on my own. My doctor would not help

with that

> either. I don't think she felt it was unimportant as much as she

did not

> know what to tell me. Noah is her only PSC patient. She had

others when

> she was in Montreal, but none here.

>

> I know what you mean about that heavy arms thing. Noah could not

go out to

> recess all last year because of it. He would go lay down in the

nurse's

> office for the time. It was the only way he could make it through

the day

> and some times he still could not. He has not missed one day of

school this

> year and that is something he is very proud of. He missed half

the year

> last year.

>

> It will get better. It might take some pushing. We really had to

push Noah

> to go back outside and play. He slowly worked up to it. Now he

runs with a

> very healthy buddy daily.

>

> Noah did use some tools to get through his initial down time. He

got

> obsessive about math. The payoff was that he got to go to the

Math Olympics

> for his school this year. He used to fall asleep working on

math. I could

> not see it then, but it was something good. It used to make me

cry that he

> would have his spiral notebook pressing his cheeks in and the

pencil

> clenched in his hand. I forgot to see that he was doing long

division and

> multiplication.

>

> I guess my point is, turn it in to something good. Give your body

what it

> needs. REST! Even if you have to stop after mowing half.

>

> Are you able to make the conference this weekend?

>

>

>

>

>

>

> <http://www.pscpartners.org/> http://www.pscpartners.org/

>