Update and Need Info please

September 6, 2000

Hi everyone:

So sorry to hear of Gloria's and others difficulties. I am praying for

you all.

My MRI came back normal which is good news but need some information if

any of you know anything about this.

I am still in terrible pain from my upper arms. Can't hardly write this

due to the aching and weakness. Am struggling greatly to get through

the day. I just got a copy of the labwork from the lab ( got it before

the doc who ordered since I work for a doctor)

and my ANA came back 1:1280 ( negative is 1:40, borderline 1:80,

positive 1:160)

Needless to say the ANA is elevated and must be what is causing my

pain. I contacted the doc but haven't heard anything. Looks like from

test result listing that it is Homogenious which is indicative of

Lupus. Interesting when I did some research that Lupus can cause eyelid

droop which I have had lately.

Would like to ask for any information or experience people have with

elevated ANA since my rheumy is not very astute with helping me. I am

calling today to demand a consult with pain management specialist

because I'm afraid I'll lose everything if it continues this way. I am

very upset that they don't take into consideration all the pain and will

only give 2 Vicodin a day. I certainly don't want to be drugged, but I

need to be able to try to live some kind of life. I can't be a mom to

Caitlin and give her any quality of life at this point if it continue to

get worse.

Again, would appreciate any information on elevated ANA since once again

I am sure I will have to do most of the work on finding info on this out

myself. Would like to find out what I have other than RP since RP does

not usually present with elevated ANA.

Don't mean to sound discouraged here, but just tired of the pain. I

know there are so many in much worse shape than me, so I will focus on

praying for them and hope God takes mercy on me too.

Thanks everyone for any information and I hope this post finds those of

you in pain or in need of God's love receiving it today.

Take care,

Cath

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