Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hi , Welcome! I am a lurker to this group. My daughter is 8 and we were active early on but now I lurk. I saw your post and wanted to know if you were in the Philly area. We live outside of Glenside, PA. We go to CHOP for everything. I wanted to comment on the lining up of cars. Before you attribute it to CHARGE, my son who does not have CHARGE used to do this at your son's age. I have friends whose kids did it too. It may just be a boy thig. My dad knows every car in his neighborhood and church and questions when they are moved as well. There may be other behaviors but remember that sometimes they are just " kid " things. It's hard to tell because we are so encompassed by CHARGE. I have at times tried to find answers for my daughter's issues and come to find it was just a part of normal girl development......I couldn't believe it!!Something normal when it comes to her?? Also, on the genetics thing. My daughter's geneticist also explained to us that when tested, may or may not test positive for the CHARGE gene. She made it clear to us that does have CHARGE and that the results of the test would only reinforce the diagnosis if she tested positive. If she tested negative, it would only mean she fell into a different category of the diagnosis because gene found is only part of the whole syndrome. This explanation is not entirely acurate. It is my understanding of the explanation given by the geneticist. Colleen Ardsley, PA mom to , 8 and Sam, 4 Quote Link to comment Share on other sites More sharing options...
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