Re: new member here

[Guest guest]

Hi Della,

I thought I'd try to give you a proper welcome today. You have already been

so kind to me.

I'll tell you a little about myself too.

I have been a member of this group since around October. Most of the people

here, as you are seeing, as quite supportive and uplifting. It's a good place

to be whether you are feeling up or down.

I'm 59 and was dx in 1989. I was an active mother of two, wife, church

volunteer, school volunteer, had my own business first as an accountant then

later changed to special ed and taught parents and teachers about children with

Aspergers Syndrome and Autism and played competitive tennis several times a

week. I was as active as anyone could be and never felt tired, except the good

kind after accomplishing something. I also had a big house that I kept, with a

little help, very clean and kind of obsessively organized. There were rules and

sayings that I used to keep things going - like " if it isn't on the calendar it

doesn't exist " and " if you complain about the way I do something, then it's your

job " . I remember one time my son started to complain about something in the

bathroom and my daughter put her hand over his mouth and said " no , you'll

have to clean the bathroom forever. " I let it go because they were pretty young

then and they didn't know I heard or saw

them because they were upstairs; Andi was 10 and was 6. She was speaking

from experience because she complained about her laundry not being done once and

had no one to cover her mouth so her laundry became her job from then own. She

did tend to complain more and was more persnickety so she had chores earlier

that , who was usually content with whatever was done, mainly because he

didn't care.

When I started having the symptoms from Fibromyalgia the first thing I had to

give up was my beloved tennis because it took the most energy and was the

hardest to do. I tried not playing so hard, but my shoulders and ankles

couldn't take it. I had to resort to walking as my exercise. I had to give up

more and more as the years progressed. In 1996 I was divorced from a 28 year

marriage to an abusive alcoholic, who I married I guess because it felt the same

as being with my abusive alcoholic parents. That took therapy to figure out.

He was married 5 months later. It was a trying time in my and my children's

life, but better than what had been going on. I still had the kids coming home

from college to be with me, Andi and Liz (who I took in at 13, but whose abusive

father wouldn't let me adopt her) were finished with college then and was

in college. So I tried to still keep up some semblance of normalcy.

In 2003 after I had already quit working full time, I had to finally quit

completely. And now I live alone and am over the big depression I was in, but

still can't get all the things I let slide get back to any where near the place

they were before. He got all the money so I had to downsize and live in a large

condo, but it's nothing like what my house was so I don't have enough space for

everything and can't seem to organize anything at all. There's clutter

everywhere and the brain fog keeps me from even thinking about what to do with

all the stacks of papers that seem to sprout up everywhere. I get by as best I

can but the money from savings is running out and in a year my income will

change enough to make me a poverty case and my home (condo) is about to be

foreclosed on and I don't know where I will go.

I'm sorry the monster of Fibro is what had to bring you to this site, but

surely am glad to see you here. I started out with smaller symptoms too and

gave up things one at a time, kicking and screaming all the way. I'm so sorry

it got worse for you in 2007 and also that you have such bad arthritis. That

must be really bad on top of the Fibro.

It must be really hard to be raising your 9 year old grand son, particularly

with all of his problems. I have a hard time just getting ready to have my

grand sons stay over, and am wiped out for days after they leave. Two of them

are coming this weekend, Jack 6 and Brady 3. I've had Jack sleep over since he

was one, but he's much easier than Brady, who hasn't spent the night yet,

because he's afraid of my sweet little kitty. I think he may just not have been

ready, but we'll see this weekend. If he doesn't want to stay, then Andi or Joe

will have to come get him and Jack will just be here. That would be much easier

on me. Jack and I can do quiet things and Brady doesn't have much of an

attention span, like that of a knat. He's always going upstairs and downstairs.

He's fine during the day, gets afraid of the kitty at nighttime, that's why I

think it may be something more.

I am seeing my PCP for Fibro too. I don't have a Fibro doctor and haven't been

able to locate a good one, although if I upped my search I'm sure I could find

one. There are so many doctors around here. I'm going to an orthopedist in a

couple of months for Sarcoidosis and hope that he might help me with Fibro too.

I hope you find a good doctor soon.

Did you say your 85 year old mother lives with you too? You are really under

a lot of stress with the two of them. It's amazing that you keep up your great

positive outlook.

I hope you find comfort and support here. You are already supporting a lot of

people. Remember we can be here for you too.

Blessed be,

Marti

Della Shepard wrote:

Welcome Teri

Hey Teri - Welcome to the group. Thanks for speaking up. I had one of

those kind of accidents, too. Traffic had come to a complete stop on the

freeway due to construction. The kid that hit me had fell asleep at the

wheel, so he was cruising around 60 MPH. This was back in Oct. of 2002. I

was fortunate that his car was a little thing, and I was in our minivan. I

had whiplash and a real banged-up knee from hitting the dash. But this

didn't cause my FM as I was officially diagnosed in 1998 and believe I've

had symptoms since childhood. I hope you find comfort belonging to a group

of people who know and truly understand what you go through. Take care.

Jeanne in WI

Hey, new one here. Actually I have been lurking for a couple of weeks.. I

felt too lousy to even jump in and say hello. WOW, I do know exactly how

you feel. I arrived in this condition from an auto accident.. Some young man

used the back of my car to stop is car..abruptly I might say. I look fine

other than a closed head injury, herniated disks and a really bad back now!

To make matters worse this FM set in and has taken up permanent residence

had to ½ my neck fused together, my thyroid then developed nodules (too many

x-rays or possibly from the surgery) my gall bladder came out this spring.

I am on more meds than I can remember to list and am seeing a pain

management doctor. Oh did forget to mention I will be seeing an

endocrinologist in a couple of weeks or as soon as I can get an appointment

because the doctor keeps

having to increase my thyroid medication.. I guess they might yank that out

too depending on what they find again.

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