Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 In a message dated 15/02/2006 15:04:09 GMT Standard Time, klauger@... writes: I think it was Jack in Scotland that his mum posted a picture of his feet. It must be in the archive somewhere? I did post a couple of pics of Jack's feet a while ago but they don't seem to be in the files any more. Jack's feet are just like Dylan's and he does have very strange toenails. They are very crinkly (?) and curl over. I can send the photos to so she can put then in the files if you like? Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 I do not know what you would consider as " charge feet " , but was born with six toes. Also, her right foot has a slight curve, which used to cause her right foot to turn inward when she walked. She wore " hot dogs " in her shoes for awhile and that seemed to help. So, I think it is differant for everybody and can't really find a correlation when comparing every individual who has CHARGE, as to what would be considered as diagnostic criteria for " charge feet " n--mom to 3yr. old (CHARGE) Kim Lauger wrote: I have been staying out of this one, but it appears that many keep asking what are CHARGE feet. This term was used in one mom's e-mail in describing her child's feet, but we have had many discussions over the years about differences in CHARGE feet. I do not think there is a set thing we see, such as the hockey stick crease in the palm, or descriptions of CHARGE face or CHARGE ear in order that docs would say CHARGE feet????? But they are different. Wider space between big toe and next toe, Dylan is able to use these toes to pick up things like using the thumb and first finger. The space can require extra wide shoes for comfort. Abnormalities in how toenails grow - many needing podiatric care. I think it was Jack in Scotland that his mum posted a picture of his feet. It must be in the archive somewhere? I have found from Dylan's HANDLE work, that when he curls different toes it indicates different things going on in his body, such as when his right second toe was curled under it indicated his right eye was not working well. As we did his program, that toe straightened out as he started to use his vision better. Seems a bit weird I know, but it truly did happen. That piece is based on reflexology. The space between Dylan's toes is always wide, but the curling of different toes change over time. Kim > AFO stands for Ankle-Foot Orthosis. It is a custom molded piece of > plastic (although occasionally, they are still metal, but not with > this population)that encases the foot and ankle, and up to the > calf. There are many purposes for which they are used. They > include to prevent and correct foot deformities, provide stability, > and compensate for weakness. I think in CHARGE (not including bone > abnormalities, which are very varied, it appears), AFOs would be > used to provide support due to low muscle tone and ligament laxity. > By providing a stable base, the AFOs might make ambulation a little > bit easier. However, they have some drawbacks too, so are not for > everyone. > > I would like to know more about the CHARGE feet too. Does anyone > have a description? > > Kate (PT to a CHARGEr) > > >>> >>> I have never heard of CHARGE feet, but my son was born without a > tibia >>> and a big toe. He has had two surguries on his leg to strighten > it >>> out. His fibula is oversized, which is lucky. He is three and is >>> starting to walk on his own. >>> AFO stands for ankle and foot only. >>> >>> >>> >>> >>> >>> Membership of this email support groups does not constitute > membership in >>> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. >>> For information about the CHARGE Syndrome >>> Foundation or to become a member (and get the newsletter), >>> please contact marion@... or visit >>> the web site at http://www.chargesyndrome.org - for CHARGE > Syndrome Canada >>> information and membership, please visit > http://www.chargesyndrome.ca or >>> email info@... . >>> 8th International >>> CHARGE Syndrome Conference, July, 2007. Information will be > available at >>> www.chargesyndrome.org or by calling 1-. >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 With all the questions, it might be a good idea. Kim > > In a message dated 15/02/2006 15:04:09 GMT Standard Time, > klauger@... writes: > > I think it was Jack in Scotland that his mum posted a picture of his feet. > It must be in the archive somewhere? > > > > I did post a couple of pics of Jack's feet a while ago but they don't seem > to be in the files any more. > Jack's feet are just like Dylan's and he does have very strange toenails. > They are very crinkly (?) and curl over. > I can send the photos to so she can put then in the files if you like? > > Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE > Scotland > > > > Quote Link to comment Share on other sites More sharing options...
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