Re: Fw: [autoimmune] This message came across the transplant list

[Guest guest]

Thanks !!!!!!!

I guess Camomille tea is off my list. Back to water and oatmeal I guess.

It has been almost four weeks now and 3 doses of methotrexate. I think it is

starting to kick in. I have started to come down off the 75mg of prednisone.

Only 50 everyother day. (only missed one last night first one) RP is still

bounching between my ear and throat. But only a couple of hours a day now. I

can't believe it has taken this long. My doc is saying 1 to 2 more months.

Getting me off the prednisone is top priopity. She thinks I will be on the

methotrexate for about 3 months.

I relief is nice. It is like ohh this feels better.

Eileen

>

>Reply-To: Rpolychondritisegroups

>To: " Rpolychondritis " <Rpolychondritisegroups>

>Subject: Fw: [autoimmune] This message came across the

>transplant list

>Date: Sun, 9 Jul 2000 00:15:58 -0400

>

>Someone on the autoimmune list sent this out and she gave me permission to

>post it to this list.

>Some very interesting stuff here.

>Also, Carmela, I believe you ask about vitamins, this might also help you

>with that question. Hope so anyway.

>

> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

> >>>>

>

> >

> > Hi All,

> >

> > A friend of mine just sent this and I thought you all might find it

> > interesting..She has had her transplant and is doing well..I often

> > send things like this through my digests but, I also send out

>information

> > that is in conflict with this..In fact I just received a digest on herb

>info.

> > so if anyone wants it just let me know and I will forward it to you..

>

>

> > HERE IT IS:

> > This message came across the transplant list and I thought it was

>worth

> > passing on. I can't vouch for its accuracy, but it sure is something to

> > think about if you are interested in using herbs.

> >

> > Hey guys,

> >

> > I just read an article in the Spring 2000 issue of Match that

>states

> > what herbs are to be avoided at all cost to anyone who has any type of

>liver

> > or kidney disfunction or any type of transplant in general. Please if

>you

> > don't see something listed here DO NOT ASSUME IT IS SAFE. The article

> > clearly states that all herbs, supplements, etc are always to be

>approved

>by

> > your doctor prior to use.

> >

> >

> >

> > A few web sites the article suggest to get more information at are

> >

> > HerbMed http://www.amfoundation.org/herbmed/htm

> > Health Office of Dietare Supplements

>http://odp.od.nih.gov/ods/default.html

> > Herb Research Foundation http://www.herbs.org

> >

> > Herbs to AVOID AT ALL COST

> > germanium

> > water hemlock

> > germander

> > lobelia

> > mistletoe

> > broom

> > mandrake

> > chaparral

> > belladonna

> > skullcap

> > stephania

> > foxglove

> > pokeberry

> > jun bu huan

> > groundsel

> > pennyroyal

> > comfrey

> > liferoot

> > wormwood

> > clotsfoot

> > MaHuang/ephedra

> > yohimbe

> > sassafras

> > aconite

> > lily of the valley

> >

> > Herbs that are immunostimulants are Definate NO NO for transplant

>patients

> > cat's claw

> > astralagus

> > ginseng

> > chaomomile

> >

> > Herbs that interact with coumadin, increasing the likelyhood of bleeding

>are

> > chamomile

> > ginger

> > feverfew

> > ginkgo

> > garlic

> > ginseng

> >

> > Herbs that interact with cyclosporin by decreasing it's effectiveness

> > St. 's Wort

> >

> >

> >

> > ------------------------------------------------------------------------

> > Law.com is the preeminent online destination for legal professionals.

> > Visit Law.com for exclusive content from American Lawyer Media, online

> > CLE Seminars, Practice Centers and Career Listings.

> > http://click./1/5803/7/_/494266/_/963082316/

> > ------------------------------------------------------------------------

> >

> > Hello, kick back, relax and make yourself at home. Maybe together we can

>find answers to our mystery medical problems. There is strength in numbers

> >

>

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi and everyone

thanks for the sites, but when i tried to access i keep on getting an error

message etc...

would it be possible to please verify links and let me know

thanks a bunch

btw, i took Astragalus all winter long regularly and stopped taking it in

the Spring... i have to wonder now if that may have contributed to my flare

up. Don't underestimate the power of herbs and such.

love

Carmela

*****************************************

>Someone on the autoimmune list sent this out and she gave me permission to

>post it to this list.

>Some very interesting stuff here.

>Also, Carmela, I believe you ask about vitamins, this might also help you

>with that question. Hope so anyway.

>

> > > A few web sites the article suggest to get more information at are

> >

> > HerbMed http://www.amfoundation.org/herbmed/htm

> > Health Office of Dietare Supplements

>http://odp.od.nih.gov/ods/default.html

> > Herb Research Foundation http://www.herbs.org

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Eileen,

Kathleen (NY) here. You can't just go " off " methotrexate after three months.

It's like Pred, you have to be weaned. I began treatments of metho in March and

after 10 weeks, Dr. T reduced the dosage by 2.5 mgs. I am to repeat blood work

every 8 weeks and following outcome IF all the blood levels are within normal

range, he will reduce the metho another 2.5 mgs until I can be completely weaned

and that won't be until sometime the end of October. I'm only giving advise

based on my own treatment, but I think you should raise this question about

stopping meth after three months with your Dr. If you have any questions,

please feel free to call me .

[Guest guest]

Thanks everyone. It probably was my misunderstanding from my doctor. She

probably means will try to start tapering. I have a great doc. She is very

current and up to date.

Fir me it is just accepting that this is a process. It is gonig to take a

while and I have to accept it. I have to keep my body healthy and manage

this disease. It is nice to hear what others have experienced. It helps me

manage it or is it managing me?? So I am resting and accepting that fact

that I probably am going to be off work for 6 to 8 weeks and rest.

This damm RP though last night I was in tears my knee was F....... aching.

So it is running its course chasing it from my ear to my throat with a

little stop in my knee oh well.

You know there sure are some beautiful flowers out there.

Don't forget to take those one minute vactions.

Eileen

>From: katwench@...

>Reply-To: Rpolychondritisegroups

>To: <Rpolychondritisegroups>

>Subject: Re: Fw: [autoimmune] This message came across

>the transplant list

>Date: Mon Jul 10 13:33:27 2000

>

>Eileen,

>

>Kathleen (NY) here. You can't just go " off " methotrexate after three

>months. It's like Pred, you have to be weaned. I began treatments of

>metho in March and after 10 weeks, Dr. T reduced the dosage by 2.5 mgs. I

>am to repeat blood work every 8 weeks and following outcome IF all the

>blood levels are within normal range, he will reduce the metho another 2.5

>mgs until I can be completely weaned and that won't be until sometime the

>end of October. I'm only giving advise based on my own treatment, but I

>think you should raise this question about stopping meth after three months

>with your Dr. If you have any questions, please feel free to call me (914)

>268-8893.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com