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>From: RCColloran@...

>Reply-To: Rpolychondritisegroups

>To: Rpolychondritisegroups

>Subject: Re: Fed up

>Date: Sat, 16 Sep 2000 00:49:32 EDT

>

> I know exactly what you mean. I now have to start looking for a new

>GP

>and a new rheummy. All my rheummy wants me to do is wear turtlenecks and

>keep my muscles warm so I don't hurt from the fibro. I don't give a damn

>about the fibro, it won't kill me. I'm tired of upping meds, lowering meds

>and still feeling crappy. Sorry for venting, I have a massive headache and

>am fed up with it all.

>

>My brain is falling to my a--, my throat is hurting, my breathing is

>terrible, I'm fat, puffy etc.etc.......... YOu know it all........!!!!

>Lets

>take those pointy shoes of your and go and kick some serious butt!LOL

>

>By the way, I hope you have a nice weekend.LOL

>

>I really love you , thanks for being there for all of us.

>

>

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In a message dated 9/16/00 8:44:52 PM Pacific Daylight Time,

carmela999@... writes:

<<

Sounds like it may be time to move to a bigger town... LOL

>>

Hi Carmela, guess what I just ate????? A piece of pumpkin mousse cheese

cake!!! ummmmmmm:))))))))) I've been doing really well with my eating and

decided I deserved it today. Just what the dr. ordered. Worked really

hard today and am tired, but feeling better mentally.LOL Gonna head upstairs

and take a nice bath and then read. Hope you had a good day. Tomorrow

morning going to leave early and go to a flea market that is suppose to have

wonderful plants. Wish me luck.

Talk to you later

Love & hugs

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Hi

Glad to be of help... :o)

Sounds like it may be time to move to a bigger town... LOL

take care

huggles and squeezles

Carmela

*************************

>From: RCColloran@...

>Reply-To: Rpolychondritisegroups

>To: Rpolychondritisegroups

>Subject: Re: Fed up, and everyone

>Date: Sat, 16 Sep 2000 17:16:49 EDT

>

>Carmela, Thanks for the cute posts. And thanks for understanding. It's

>not

>really as bad as it sounds. Just needed to vent today. You know how it

>is.

>I'm really very lucky it's not worse. I just think I need a hormone

>adjustment.LOL My problem is I live in a small town and there are no

>doctors. My GP is my daughters and he's the one who told her to wait 6

>months and come back to have her pap redone. She went to a GYN and he is

>the

>one who found out how bad she really is. If she had waited 6 months she

>could have had full blown cancer by then. DON " T even mess with my

>girls!!!!

>And he's MY doctor!!! He is also chief of staff at the hospital. Scarey

>huh!!!! I just feel like I've run to all of these doctors (anywhere to 3

>hours away) and can't find one who is knowledgable or gives a s---! They

>look at me like I'm over reacting. I'm not only looking for a GP, ENT,

>Pulmonary, Rheummy etc to treat my RP, I have to find a Neurologist to

>treat

>the Chiari Malformation. They either don't know what to do, or immediately

>want to do brain surgery. NOT!!!! My hands and feet are numb and now the

>headaches are coming with a vengence. I just feel stuck and don't know

>where

>to turn, like the other half of the group. I use to have a wonderful

>doctor

>but he retired last year and I'm still lost. I WILL find one. Next week

>I'm

>checking Stanford University out. I will get something done. It's just a

>pity party week for me.

>Boo hoo.LOL Don't worry about me, I bounce right back, (can't always be

>positive, must allow at least one day every 6 months for a pity party)LOL

>I'm working out my furstrations in the yard (poor yard)lol Mr. fibro will

>surely kick in by tomorrow with all the work I've been doing,(which isn't a

>lot, I just supervise Rich) but I will rest tomorrow if I hurt to bad and

>just load up on the Ultram. (Great stuff, huh Glenda)LOL

>

>Thanks Carmela and the rest of you for letting me get all of this out. I

>will be back to normal (whatever that is) by tomorrow. I feel better

>already.

>

>I love ya lots Carmela and thanks for the pep talk.

>

>Love

>

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