Admission to the Big House scheduled...Joyce

[Guest guest]

Hi All,

In the midst of the excitement about Gwynne, I forgot to tell you that I have been scheduled for admission to the hospital on the 14th. They will adjust the Coumadin, Plavix and Heprin so that hopefully I do not bleed to death. Then I don't know if they are going to do the Hickman Catheter or the Angioplasty and Stent first. I am not especially excited about either.

I dread the ordeal. It is too soon. I still remember the smell of the place, especially the food.....barf! I just want it to be over and to be alive to tell the tale. I am still in a quandry about the tooth situation. The dentist evidently did not make contact with Dr. Folz and now he is out of town all week.

My hopes are that they will find the pulmonary presures much improved, be able to remove the blockage and successfully insert another stent to clear that artery. I remember how much better I felt after the first one, so I am waiting for that. If that all gets fixed or at least treated successfully, perhaps I can have some quality of life for the time that remains....and who knows how long that will be. God keeps a record and he has done alright by me so far. Way better than I deserve!

So, mark the 14th and get up that morning with a prayer on your lips. I am a whiney baby and I need lots of attention. Knowing that you people are on my side means the world to me.

p.s. I bought six new panties, so I am prepared. No more butt shots. aaargh!

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16

[Guest guest]

Leave it to you Joyce I am glad you have new panties! I know how

that is! My thoughts and prayers are always with you!

Sandie

>

>

> Hi All,

>

> In the midst of the excitement about Gwynne, I forgot to tell you

that I

> have been scheduled for admission to the hospital on the 14th. They

> will adjust the Coumadin, Plavix and Heprin so that hopefully I do

not

> bleed to death. Then I don't know if they are going to do the

Hickman

> Catheter or the Angioplasty and Stent first. I am not especially

> excited about either.

>

> I dread the ordeal. It is too soon. I still remember the smell of

the

> place, especially the food.....barf! I just want it to be over and

to

> be alive to tell the tale. I am still in a quandry about the tooth

> situation. The dentist evidently did not make contact with Dr.

Folz and

> now he is out of town all week.

>

> My hopes are that they will find the pulmonary presures much

improved,

> be able to remove the blockage and successfully insert another

stent to

> clear that artery. I remember how much better I felt after the

first

> one, so I am waiting for that. If that all gets fixed or at least

> treated successfully, perhaps I can have some quality of life for

the

> time that remains....and who knows how long that will be. God

keeps a

> record and he has done alright by me so far. Way better than I

deserve!

>

> So, mark the 14th and get up that morning with a prayer on your

lips. I

> am a whiney baby and I need lots of attention. Knowing that you

people

> are on my side means the world to me.

>

> p.s. I bought six new panties, so I am prepared. No more butt

shots.

> aaargh!

>

> Hugs, Joyce D.

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

Hypertension

> 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)

> Rejected for Transplant 2006

> .....I will not forget you. Behold, I have engraved you on the

palm of

> my hands. Isaiah 49: 15-16

>

[Guest guest]

Joyce

Are you going to wear all six at the same time just to be sure? lol

I know the thought of all you're scheduled for must be overwhelming. One

of those things would be, much less piling it all up. However, you

talked about how the stent made you feel better last time so that will

be good. And, they can adjust your meds to control the bleeding and that

will be good. And, the Flolan is working and they can do the Catheter

and that will be good.

So, it sounds like this is a frightening scary trip to the big house.

But, at the same time, it does sound like its one that can provide some

quality of life. I guess thats something else that just hit me that we

reach a stage where achieving extra life and quality of life does come

at the price of some quite painful procedures and some scarey times. But

then I look at what the Flolan has done for you and where you were

before this bleeding took hold versus where you'd been. I just hope for

the best on this hospital trip and hope you find your suffering many

times over rewarded with the extra life and quality it provides you.

I think what makes it more difficult is we don't know. If I could look

up on a chart and see that if I do this procedure then this is what I'll

get, then it would be easy. But we it starts early in this journey with

VATS and prednisone and such choices and as we get further along we do

things like angioplasty and stents and Flolan and Catheters and Trachs

and Transplants and I'm sure many others that we go into based on the

hope and the chances of what they'll provide.

So, I know the trip to the hospital is going to be frightening and

painful, but I also hope that it returns many times that in terms of

quality good life after. Your doctors sure do seem to be good at

responding and pulling out all stops toward finding every way they can

to help. So, whine and lean on us and tell us how scared you are and

we'll hold you close every moment of the way.

>

>

> Hi All,

>

> In the midst of the excitement about Gwynne, I forgot to tell you that

I

> have been scheduled for admission to the hospital on the 14th. They

> will adjust the Coumadin, Plavix and Heprin so that hopefully I do not

> bleed to death. Then I don't know if they are going to do the Hickman

> Catheter or the Angioplasty and Stent first. I am not especially

> excited about either.

>

> I dread the ordeal. It is too soon. I still remember the smell of the

> place, especially the food.....barf! I just want it to be over and to

> be alive to tell the tale. I am still in a quandry about the tooth

> situation. The dentist evidently did not make contact with Dr. Folz

and

> now he is out of town all week.

>

> My hopes are that they will find the pulmonary presures much improved,

> be able to remove the blockage and successfully insert another stent

to

> clear that artery. I remember how much better I felt after the first

> one, so I am waiting for that. If that all gets fixed or at least

> treated successfully, perhaps I can have some quality of life for the

> time that remains....and who knows how long that will be. God keeps a

> record and he has done alright by me so far. Way better than I

deserve!

>

> So, mark the 14th and get up that morning with a prayer on your lips.

I

> am a whiney baby and I need lots of attention. Knowing that you people

> are on my side means the world to me.

>

> p.s. I bought six new panties, so I am prepared. No more butt shots.

> aaargh!

>

> Hugs, Joyce D.

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension

> 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)

> Rejected for Transplant 2006

> .....I will not forget you. Behold, I have engraved you on the palm of

> my hands. Isaiah 49: 15-16

>

[Guest guest]

Joyce,

I'll remember you on the 14th, and the 15th, 16th etc. Silly girl, God has everything in control. I know your feeling, I KNOW i need a stent, I'm just nervous so I Understand. But I'll be with ya there in spirit.

Love,

Vicky81856Planning your summer road trip? Check out AOL Travel Guides.

[Guest guest]

Joyce,

I put it on my calender but I think I'll get a jump on it and start prayin now.

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Admission to the Big House scheduled...Joyce

Hi All,

In the midst of the excitement about Gwynne, I forgot to tell you that I have been scheduled for admission to the hospital on the 14th. They will adjust the Coumadin, Plavix and Heprin so that hopefully I do not bleed to death. Then I don't know if they are going to do the Hickman Catheter or the Angioplasty and Stent first. I am not especially excited about either.

I dread the ordeal. It is too soon. I still remember the smell of the place, especially the food.....barf! I just want it to be over and to be alive to tell the tale. I am still in a quandry about the tooth situation. The dentist evidently did not make contact with Dr. Folz and now he is out of town all week.

My hopes are that they will find the pulmonary presures much improved, be able to remove the blockage and successfully insert another stent to clear that artery. I remember how much better I felt after the first one, so I am waiting for that. If that all gets fixed or at least treated successfully, perhaps I can have some quality of life for the time that remains....and who knows how long that will be. God keeps a record and he has done alright by me so far. Way better than I deserve!

So, mark the 14th and get up that morning with a prayer on your lips. I am a whiney baby and I need lots of attention. Knowing that you people are on my side means the world to me.

p.s. I bought six new panties, so I am prepared. No more butt shots. aaargh!

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16

[Guest guest]

Hi Joyce,

I Hope All Goes Well and All the Best. You'll be home so fast you won't even have time to think you're in the hospital.

Take Care of Yourself

Irene

---- Original Message ----

To: Breathe-Support

Sent: Sun, 6 Apr 2008 9:34 am

Subject: Re: Admission to the Big House scheduled...Joyce

Joyce

Are you going to wear all six at the same time just to be sure? lol

I know the thought of all you're scheduled for must be overwhelming. One

of those things would be, much less piling it all up. However, you

talked about how the stent made you feel better last time so that will

be good. And, they can adjust your meds to control the bleeding and that

will be good. And, the Flolan is working and they can do the Catheter

and that will be good.

So, it sounds like this is a frightening scary trip to the big house.

But, at the same time, it does sound like its one that can provide some

quality of life. I guess thats something else that just hit me that we

reach a stage where achieving extra life and quality of life does come

at the price of some quite painful procedures and some scarey times. But

then I look at what the Flolan has done for you and where you were

before this bleeding took hold versus where you'd been. I just hope for

the best on this hospital trip and hope you find your suffering many

times over rewarded with the extra life and quality it provides you.

I think what makes it more difficult is we don't know. If I could look

up on a chart and see that if I do this procedure then this is what I'll

get, then it would be easy. But we it starts early in this journey with

VATS and prednisone and such choices and as we get further along we do

things like angioplasty and stents and Flolan and Catheters and Trachs

and Transplants and I'm sure many others that we go into based on the

hope and the chances of what they'll provide.

So, I know the trip to the hospital is going to be frightening and

painful, but I also hope that it returns many times that in terms of

quality good life after. Your doctors sure do seem to be good at

responding and pulling out all stops toward finding every way they can

to help. So, whine and lean on us and tell us how scared you are and

we'll hold you close every moment of the way.

>

>

> Hi All,

>

> In the midst of the excitement about Gwynne, I forgot to tell you that

I

> have been scheduled for admission to the hospital on the 14th. They

> will adjust the Coumadin, Plavix and Heprin so that hopefully I do not

> bleed to death. Then I don't know if they are going to do the Hickman

> Catheter or the Angioplasty and Stent first. I am not especially

> excited about either.

>

> I dread the ordeal. It is too soon. I still remember the smell of the

> place, especially the food.....barf! I just want it to be over and to

> be alive to tell the tale. I am still in a quandry about the tooth

> situation. The dentist evidently did not make contact with Dr. Folz

and

> now he is out of town all week.

>

> My hopes are that they will find the pulmonary presures much improved,

> be able to remove the blockage and successfully insert another stent

to

> clear that artery. I remember how much better I felt after the first

> one, so I am waiting for that. If that all gets fixed or at least

> treated successfully, perhaps I can have some quality of life for the

> time that remains....and who knows how long that will be. God keeps a

> record and he has done alright by me so far. Way better than I

deserve!

>

> So, mark the 14th and get up that morning with a prayer on your lips.

I

> am a whiney baby and I need lots of attention. Knowing that you people

> are on my side means the world to me.

>

> p.s. I bought six new panties, so I am prepared. No more butt shots.

> aaargh!

>

> Hugs, Joyce D.

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension

> 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)

> Rejected for Transplant 2006

> .....I will not forget you. Behold, I have engraved you on the palm of

> my hands. Isaiah 49: 15-16

>

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

Bruce,

Thanks for understanding my fear. I just have to getter' done. No choices.

No, not all at once....then I would have none for the next day...

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16> >> >> > Hi All,> >> > In the midst of the excitement about Gwynne, I forgot to tell you that> I> > have been scheduled for admission to the hospital on the 14th. They> > will adjust the Coumadin, Plavix and Heprin so that hopefully I do not> > bleed to death. Then I don't know if they are going to do the Hickman> > Catheter or the Angioplasty and Stent first. I am not especially> > excited about either.> >> > I dread the ordeal. It is too soon. I still remember the smell of the> > place, especially the food.....barf! I just want it to be over and to> > be alive to tell the tale. I am still in a quandry about the tooth> > situation. The dentist evidently did not make contact with Dr. Folz> and> > now he is out of town all week.> >> > My hopes are that they will find the pulmonary presures much improved,> > be able to remove the blockage and successfully insert another stent> to> > clear that artery. I remember how much better I felt after the first> > one, so I am waiting for that. If that all gets fixed or at least> > treated successfully, perhaps I can have some quality of life for the> > time that remains....and who knows how long that will be. God keeps a> > record and he has done alright by me so far. Way better than I> deserve!> >> > So, mark the 14th and get up that morning with a prayer on your lips.> I> > am a whiney baby and I need lots of attention. Knowing that you people> > are on my side means the world to me.> >> > p.s. I bought six new panties, so I am prepared. No more butt shots.> > aaargh!> >> > Hugs, Joyce D.> > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension> > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)> > Rejected for Transplant 2006> > .....I will not forget you. Behold, I have engraved you on the palm of> > my hands. Isaiah 49: 15-16> >>

[Guest guest]

Joyce: That is great news! I will pray hard - promise! I take the

blood thinners too, and everytime they have to adjust it for surgery

or stuff like that, I get scared, but it always works out well. I

have had scares with even small scrapes at home, like from a kitten -

dang mean thing! I couldn't get the little scratch to stop

bleeding. I know the blood thinners are working.

God Bless,

Tina

IPF PH Ohio

>

>

> Hi All,

>

> In the midst of the excitement about Gwynne, I forgot to tell you

that I

> have been scheduled for admission to the hospital on the 14th. They

> will adjust the Coumadin, Plavix and Heprin so that hopefully I do

not

> bleed to death. Then I don't know if they are going to do the

Hickman

> Catheter or the Angioplasty and Stent first. I am not especially

> excited about either.

>

> I dread the ordeal. It is too soon. I still remember the smell of

the

> place, especially the food.....barf! I just want it to be over and

to

> be alive to tell the tale. I am still in a quandry about the tooth

> situation. The dentist evidently did not make contact with Dr.

Folz and

> now he is out of town all week.

>

> My hopes are that they will find the pulmonary presures much

improved,

> be able to remove the blockage and successfully insert another

stent to

> clear that artery. I remember how much better I felt after the

first

> one, so I am waiting for that. If that all gets fixed or at least

> treated successfully, perhaps I can have some quality of life for

the

> time that remains....and who knows how long that will be. God

keeps a

> record and he has done alright by me so far. Way better than I

deserve!

>

> So, mark the 14th and get up that morning with a prayer on your

lips. I

> am a whiney baby and I need lots of attention. Knowing that you

people

> are on my side means the world to me.

>

> p.s. I bought six new panties, so I am prepared. No more butt

shots.

> aaargh!

>

> Hugs, Joyce D.

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

Hypertension

> 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)

> Rejected for Transplant 2006

> .....I will not forget you. Behold, I have engraved you on the

palm of

> my hands. Isaiah 49: 15-16

>