Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 Good night. Have a God Blessed Sunday everyone. Love and Prayers, Peggy"Worry looks around, Sorry looks back, Faith looks up." How fortunate you are to know the before and soon the after.. I tell you If this doesn't help us all to know how good our God is.. I cry every time I think of her and read the up dates.. Amazing.I too thought about Misha. I am sure she made plans for her. Love and Prayers, Peggy"Worry looks around, Sorry looks back, Faith looks up."PeggyAnd you can tell her whenever she's ready, I'm on my way over. Omg, Iknow I'll cry when I see her. I still just have a hard timecomprehending and I can't imagine looking at her and knowing....she'sgot a new lung since last time. And, seeing her not on 10 and 15 litersof oxygen.> >> >> > Hi eveerybody,> >> > was kind enough to call me this evening and let me (us) know> > about Gwynne. She is the BEST lung transplant patient ever at UTSA.> > They are thinking about letting her go home midweek!!!! She is off> > the vent and doing very well. Kellly actually spoke to her and she> > is just ecstatic. Wow.> >> > Leanne> >> > You rock. That's why Blockbuster's offering you one month of> > Blockbuster Total Access, No Cost.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Peggy re: Joyce No, you can't imagine the pain and fear. Trust me. I'm guessing hers was worse than mine but I know mine was beyond anything I'd ever imagined. I didn't know one could hurt so much, be so scared and be so helpless to get any help. I was wanting them to just let me die right then so I wouldn't feel it another minute. I actually could see a clock and time has never passed so slowly. I remember especially from 9 to 9:10 and then to about 9:20 just I'd look and think it had to have been hours and it seemed like the hands weren't moving. I don't know if my cries for help were actually getting out of my mouth or not. I know I felt like I was screaming for help and saying things but no one was paying attention it seemed so I just believed that I thought I was getting it out but I was too weak to actually do so. I'll never know. And, thats the thing about mine and Joyce's that having someone with you doesn't help when you're in surgery. By the time you tell them its happened. said that even when she was able to see me shortly after 11, it was the first time she'd ever seen me in so much pain and so scared and I've had other surgeries. I had a colon resection and never used pain killers. Of course, she had no idea why. Hearing Joyce's story brought it all back. No one should ever be subjected to such. > > > Hi Group, > > > I'm Home! They didn't kill me in the Big House, although they > > injured me severely. > > > They have starved me, I am black and blue from shoulder to > > fingertips. Yes, they took blood from my fingers. I was in surgery on > > three different days. So, they would not let me eat or drink after > > midnight, then not do surgery until late in the day. Then bring some > > slimy inedible left over. > > > Good news! My pulmonary pressures dropped from 61 to 40 with the > > Flolan. My Angioplasty and stent placement was successful. I now have > > a Hickman Catheter buried in my chest. That surgery was horrific. > > They were trying not to give me much anesthesia and I came fully > > awake while they were jamming that apparatus through my neck. They > > take it up into the jugular vein, then down over the collar bone. > > That is where they were when I came to. That was worse pain than I > > have ever endured and they just kept going in spite of my screaming. > > My hands were secured or I would have been fighting my way out of > > there. I jumped the doc later. He said it was the anesthesiologist's > > fault, but I think they were both at fault. These guys should have > > been auto mechanics. It was awful. I think I will go on Montel and > > tell my story. It is over and I will try to put it behind me, but I > > keep remembering the sounds and smell and I remember the warm blood > > running down the back of my > > > neck. Lordy, how do you forget that. Idiots! > > > They did the stent, etc on Tue, the teeth extraction on Thursday > > and the butchering job on Saturday. On Sunday, Shelby (my 14 year old > > grandaughter) came and we just snuggled up on the hospital bed and > > rested. We had such a good day. I was so dopey and she giggled all > day. > > > I was ever so ready to come home today. I just discovered that the > > entire time that I was in the hospital, I didn't take my Prednisone > > 20mg. I neglected to put it on my list. I know how dangerous it is to > > just stop. This doc wants me off and I want off, so I will call in > > the a.m. Maybe he will just let me stay off. That was stupid on my > > part. There is just so much to keep up with. > > > Well, I have some reading to do here. I have missed you guys. Be > > back tomorrow. > > > > > > Hugs, Joyce D. > > > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension > > 2008 > > > Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > > Rejected for Transplant 2006 > > > .....I will not forget you. Behold, I have engraved you on the > > palm of my hands. Isaiah 49: 15-16 > > > > > > > > > > > > > > > > > > --------------------------------- > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > > Try it now. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Bruce, I am sorry you had to have that experience. It does seem like having this lung junk going on we should be handled with kid gloves. Love and Prayers, PeggyIPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." Peggy re: JoyceNo, you can't imagine the pain and fear. Trust me. I'm guessing hers wasworse than mine but I know mine was beyond anything I'd ever imagined. Ididn't know one could hurt so much, be so scared and be so helpless toget any help. I was wanting them to just let me die right then so Iwouldn't feel it another minute. I actually could see a clock and timehas never passed so slowly. I remember especially from 9 to 9:10 andthen to about 9:20 just I'd look and think it had to have been hours andit seemed like the hands weren't moving. I don't know if my cries forhelp were actually getting out of my mouth or not. I know I felt like Iwas screaming for help and saying things but no one was paying attentionit seemed so I just believed that I thought I was getting it out but Iwas too weak to actually do so. I'll never know. And, thats the thingabout mine and Joyce's that having someone with you doesn't help whenyou're in surgery. By the time you tell them its happened. saidthat even when she was able to see me shortly after 11, it was the firsttime she'd ever seen me in so much pain and so scared and I've had othersurgeries. I had a colon resection and never used pain killers. Ofcourse, she had no idea why.Hearing Joyce's story brought it all back. No one should ever besubjected to such.> > > Hi Group,> > > I'm Home! They didn't kill me in the Big House, although they> > injured me severely.> > > They have starved me, I am black and blue from shoulder to> > fingertips. Yes, they took blood from my fingers. I was in surgeryon> > three different days. So, they would not let me eat or drink after> > midnight, then not do surgery until late in the day. Then bring some> > slimy inedible left over.> > > Good news! My pulmonary pressures dropped from 61 to 40 with the> > Flolan. My Angioplasty and stent placement was successful. I nowhave> > a Hickman Catheter buried in my chest. That surgery was horrific.> > They were trying not to give me much anesthesia and I came fully> > awake while they were jamming that apparatus through my neck. They> > take it up into the jugular vein, then down over the collar bone.> > That is where they were when I came to. That was worse pain than I> > have ever endured and they just kept going in spite of my screaming.> > My hands were secured or I would have been fighting my way out of> > there. I jumped the doc later. He said it was the anesthesiologist's> > fault, but I think they were both at fault. These guys should have> > been auto mechanics. It was awful. I think I will go on Montel and> > tell my story. It is over and I will try to put it behind me, but I> > keep remembering the sounds and smell and I remember the warm blood> > running down the back of my> > > neck. Lordy, how do you forget that. Idiots!> > > They did the stent, etc on Tue, the teeth extraction on Thursday> > and the butchering job on Saturday. On Sunday, Shelby (my 14 yearold> > grandaughter) came and we just snuggled up on the hospital bed and> > rested. We had such a good day. I was so dopey and she giggled all> day.> > > I was ever so ready to come home today. I just discovered that the> > entire time that I was in the hospital, I didn't take my Prednisone> > 20mg. I neglected to put it on my list. I know how dangerous it isto> > just stop. This doc wants me off and I want off, so I will call in> > the a.m. Maybe he will just let me stay off. That was stupid on my> > part. There is just so much to keep up with.> > > Well, I have some reading to do here. I have missed you guys. Be> > back tomorrow.> > >> > > Hugs, Joyce D.> > >> > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension> > 2008> > > Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)> > Rejected for Transplant 2006> > > .....I will not forget you. Behold, I have engraved you on the> > palm of my hands. Isaiah 49: 15-16> > >> > >> > >> > >> > >> > > ---------------------------------> > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile.> > Try it now.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Peggy Well, no one should have to endure such and Joyce has had so many more than her share. She benefits from the latest and greatest research and doctors who know about it and it works for her, but then she has to suffer from incompetency, uncaring, and just plain stupid things ranging from $95 (although their cost I'm guessing $30) mattresses to indignities to horrifying. If you think we're frustrated, can you imagine the good doctors and nurses who are really oriented toward patient care and they have to see and deal with such every day and can't get any of it changed. > > > > Hi Group, > > > > I'm Home! They didn't kill me in the Big House, although they > > > injured me severely. > > > > They have starved me, I am black and blue from shoulder to > > > fingertips. Yes, they took blood from my fingers. I was in surgery > on > > > three different days. So, they would not let me eat or drink after > > > midnight, then not do surgery until late in the day. Then bring > some > > > slimy inedible left over. > > > > Good news! My pulmonary pressures dropped from 61 to 40 with the > > > Flolan. My Angioplasty and stent placement was successful. I now > have > > > a Hickman Catheter buried in my chest. That surgery was horrific. > > > They were trying not to give me much anesthesia and I came fully > > > awake while they were jamming that apparatus through my neck. They > > > take it up into the jugular vein, then down over the collar bone. > > > That is where they were when I came to. That was worse pain than I > > > have ever endured and they just kept going in spite of my > screaming. > > > My hands were secured or I would have been fighting my way out of > > > there. I jumped the doc later. He said it was the > anesthesiologist's > > > fault, but I think they were both at fault. These guys should have > > > been auto mechanics. It was awful. I think I will go on Montel and > > > tell my story. It is over and I will try to put it behind me, but I > > > keep remembering the sounds and smell and I remember the warm blood > > > running down the back of my > > > > neck. Lordy, how do you forget that. Idiots! > > > > They did the stent, etc on Tue, the teeth extraction on Thursday > > > and the butchering job on Saturday. On Sunday, Shelby (my 14 year > old > > > grandaughter) came and we just snuggled up on the hospital bed and > > > rested. We had such a good day. I was so dopey and she giggled all > > day. > > > > I was ever so ready to come home today. I just discovered that > the > > > entire time that I was in the hospital, I didn't take my Prednisone > > > 20mg. I neglected to put it on my list. I know how dangerous it is > to > > > just stop. This doc wants me off and I want off, so I will call in > > > the a.m. Maybe he will just let me stay off. That was stupid on my > > > part. There is just so much to keep up with. > > > > Well, I have some reading to do here. I have missed you guys. Be > > > back tomorrow. > > > > > > > > Hugs, Joyce D. > > > > > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary > Hypertension > > > 2008 > > > > Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > > > Rejected for Transplant 2006 > > > > .....I will not forget you. Behold, I have engraved you on the > > > palm of my hands. Isaiah 49: 15-16 > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > Be a better friend, newshound, and know-it-all with Yahoo! > Mobile. > > > Try it now. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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