Forwarding message from Karid2468

[Guest guest]

In a message dated 7/18/01 4:39:46 PM Eastern Daylight Time,

tull@... writes:

> --------------------------- Forwarded Message -----------------------------

>

> From: karid2468@...

>

> Hi All,

> I need a great deal of advise. I have a 10 year old boy. I call him Pup.

> He's

> has been sick most of his life with one thing or another. He has been given

> every DX form Cyclic Vomiting Syndrome to just frankly I don't know! I'm

> now

> doing research on my own trying to fit the peace's of the puzzle to

> together.

> Currently his DX's are Cyclic Vomiting, Chronic Eosinophlic Gastritis,

> Ulcers

> and erosion, reflux. Oh and the biggie, Abdominal Migraine. But everytime

> he

> is admitted to the hospital there is always something funny. Like his liver

> enzymes are elevated or he has a high bliilrubin. Now, this time his blood

> sugar was elevated. (staying around 186) Now the explanation that we got

> for

> that, was that he was receiving high doses of steroids, to control the

> eosinophileds. And it happened the last time that we were admitted for

> stomach pane and vomiting. Which we were not informed about!!! And in

> anycase He did not get put on the prednisone until after that admit when we

> could get him to his GI doc that is 4 hr. away.

> Sooooooo I did some looking through copies of medical records that we had

> taken to his Gi doc and found on several ER trips that his sugar had been

> slightly elevated a few times. I went to the library and researched this on

> the puter and this is what I came up with. Do You all think that I'm close?

> I

> take him back to GI doc tomorrow! I will not leave without a REAL DX .

> He's

> just a kid and always having this trouble. It's screwing up his oor little

> life. I'm just a desperate Mom.

>

>

Dear desperate Mom, has any doctor ever said anything to you about his

amalaze or lipase being elevated? Mind you he doesn't have to have elevated

enzymes to have pancreatitis. Do you have a good Children's Hospital near

you? Does he get sicker when he eats fats? Fats are a big no no when the

pancreas is sick. Just in case it is his pancreas I will give you to

websites to read. It's about having the pancreas removed and the islet cells

transplanted into the liver. I had that done last Dec. and it cured me of

pancreatitis. One has to have the surgery before the islets are destroyed by

having pancreatitis so it would be the best thing for your son if you had the

right diagnosis. Good luck. Shirley

http://www.insulin-free.org/stories/rebello.htm

htttp://www.insulinfree.org/sutherland.htm

PS. steroids are very harmful for the islets and if he does have pancreatitis

I would be reluctant to give them to him.

[Guest guest]

This message was accidentally sent to the " group owners/moderators " , so

I'm forwarding it on to the list. I know there are a number of other parents

of young children on this list, so I'm sure you'll have some ideas/info/support

for Karid.

Welcome to our community!

Cheers,

--Tull

tull@...

Assistant Moderator

Pancreatitis Association, International

--------------------------- Forwarded Message -----------------------------

From: karid2468@...

Hi All,

I need a great deal of advise. I have a 10 year old boy. I call him Pup. He's

has been sick most of his life with one thing or another. He has been given

every DX form Cyclic Vomiting Syndrome to just frankly I don't know! I'm now

doing research on my own trying to fit the peace's of the puzzle to together.

Currently his DX's are Cyclic Vomiting, Chronic Eosinophlic Gastritis, Ulcers

and erosion, reflux. Oh and the biggie, Abdominal Migraine. But everytime he

is admitted to the hospital there is always something funny. Like his liver

enzymes are elevated or he has a high bliilrubin. Now, this time his blood

sugar was elevated. (staying around 186) Now the explanation that we got for

that, was that he was receiving high doses of steroids, to control the

eosinophileds. And it happened the last time that we were admitted for

stomach pane and vomiting. Which we were not informed about!!! And in

anycase He did not get put on the prednisone until after that admit when we

could get him to his GI doc that is 4 hr. away.

Sooooooo I did some looking through copies of medical records that we had

taken to his Gi doc and found on several ER trips that his sugar had been

slightly elevated a few times. I went to the library and researched this on

the puter and this is what I came up with. Do You all think that I'm close? I

take him back to GI doc tomorrow! I will not leave without a REAL DX . He's

just a kid and always having this trouble. It's screwing up his oor little

life. I'm just a desperate Mom.

[Guest guest]

Hey there... I am so very sorry to hear about your son, My name is

Peg, my son who is 15 was diagnosed with Idiopathic CP a year ago,

although now we know he has a birth defect in his pancreas known as

pancreas divisum. He has suffered all his life with unknown ailments

that always we were told was something else. There are many

caregivers here along with many who suffer that can give great

support and answers to alot of questions. Without this group(family)

although lately I have been on the sidelines but always listening, I

am not sure where I would be. Please feel free to ask anything and I

or someone will be more than willing to try and be of help. Feel free

to email me directly also if you would like. As always Keeping you

and yours in our thoughts and prayers always..Keep Smiling(cuz

sometimes its all one can do!!!)...Peg...: )