Guest guest Posted April 8, 2008 Report Share Posted April 8, 2008 I am new to the this forum and have never posted before. I am hoping to see if my issues sound familiar and if others are experiencing what I am. I apologize up front for the coming long post. 14 years ago (I know its been a long time) I was diagnosed as having Stage 4 T-cell Lymphoma. The bad thing was that this wasn't diagnosed until I was in the terminal stages with all my organs failing. I spent a month on life support and had many many bad things happen including a stroke, ARDS, septic shock, etc.. The list is long. Somehow I experienced a miracle and survived this ordeal. Went thru a traditional regiment of CHOP + Bleomycin for several rounds. I went into complete remission after my 5th round. A year after this I was told that I had to have a Bone Marrow Transplant to prevent my kind of lymphoma from coming back. So I went ahead with this. Part of my treatment was total body irradiation (TBI). So since then I have led a very normal life except for a couple of things. I don't have the long capacity that I used to and I have this incredible recurring cough. I was diagnosed about 7 year ago as having moderate restrictive lung disease. Not a lot was done then. Given what I had gone through I didn't pay much attention to this. The problems that I have is that A) when doing anything aerobic I run out of air fairly quickly. Cycling is a huge sport where I live and I have tried to ride at lunch with the semi-serious group. I can keep up well for 4-5 miles but I simply run out of air. I have come to live with this and move on at my own pace. The more annoying problem is this cough. I get this recurring dry cough that can last anywhere from 1 to 3 weeks. I am on week 3 of a cough right now. I went to my doc at the beginning of this cycle to get the usual narcotic cough syrup. I have since run out. I didn't sleep at all last night and right now doesn't look promising for tonight. I am so sick of this cycle that I can scream. I hate the normal routine of cough syrup but hate the lack of sleep even more. It seems like I cough hard every 30 seconds or so. I get embarrassed going to the doc when this cycle starts. Seems like with all the prescription abuse going on they seem to think anyone who shows up as often as I do must have a problem. I am epecially annoyed with my current internal doc as I had to direct him to do some additional pulmonary testing to confirm that something wasn't right. If only they knew how much I HATE this cycle. It hurts all aspects of my life. I simply am sick of coughing. I know that many people here are fighing much worse issues than I am. I wish them the best. Quote Link to comment Share on other sites More sharing options...
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