Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Gwynne, To see you posting is just amazing!!!! I wish you a speedy and painfree recovery. I guess those Oxy-view's aren't needed anymore. Hurray Hurray Hurray!!!!! Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Gwynne Keyland wrote: Hi dear friends, I'm sitting on the bed in my stepdown room on my son's computer. I can't believe my transplant was only this last Thursday - and on my birthday!!!!!!!!!!! I'll check in with you, then you can read a site my son set up this afternoon to update people, and I think there are a few photos and an address. I'm probably just restating stuff he's already written, but oh, well. My kids have been truly amazing. I'm off all oxygen now, saturating at about 94%. My thoracotomy incision hurts like hell - it's huge, but I knew it Iwould be. Unfortunately, pain meds aren't very successful on me, but I'm sure I'll feel a bit better every day. Hope so! When I got the call, Kate was home (she'd driven home for my birthday the next day) and we were about to watch a movie when the phone rang at 9:45. I became sort of a mess of excitement and emotion as you can imagine, and so of course my sats dropped, but I kept it together pretty well, I think. My transplant team here is absolutely wonderful - ALL so good but also so caring and compassionate. My surgery Thursday lasted only about 2.5 hours - single lung, type O. They said it couldn't have been a better match for me. I saw an x-ray of it yesterday - such a shock and thrill to see all that big black area instead of puny white. I was off the vent in about 5 hours, I think. Friday I spent most of the afternoon in a chair in my ICU room, then yesterday I was moved to a room on another floor. .. They take EARLY morning x-rays - ouch; then usually see several doctors and/or teams of docs and an r.t.; take a nebulizer antibiotic. And of course they're always taking your vitals. Tonight I was at 99.3 so we'll be watching that. My b.p. is a little elevated due to the meds. I'm on 150mg twice daily of Prednisone, but so far am not crazy. I'm really not on any more meds than I was before, just different. I'm on Narco and Lubain for pain and itching. I haven't gotten much sleep due to those pesky critters. This afternoon I walked about 250' down the hall, and took my first shower. I look like I belong to a prison gang, with all the tattoe-like bruises up and down my arms. I don't cough a lot, but they want you to cough some - again, ouch! By the way, Misha's in good hands. You heard that she got a good doc report. :-) She's staying with the super woman who walks her every day - they're big buds. To see my family's faces after surgery was something I'll never ever forget. Then last night in the wee hours God and I had a long talk about my young donor, and I'm totally at peace. I'm very, very grateful for this miraculous gift. The kids have found several prospects for apartments for me to rent for the next 2-3 months. ..which means I'll be here when you guys come to San ! I may be out of the Big House as early as sometime this week - UNREAL - but we'll see how things progress. Got to get off and do my spirometry thingy and rest, but I wanted to tell you guys how well things have been going so far. I love you all and thank you so much for your support and prayers. Hugs and blessings, Gwynne 57 TRANSPLANTED 4-3-08 No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.7/1361 - Release Date: 4/5/2008 7:53 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Gwynne It's all so insanely wonderful. On your birthday. Three days later you're typing on the computer to us. I can't imagine the joy either you or your kids had when you first were able to look at each other and then the first words. I think the quick progress just reflects the determination you had leading up to it. As tough as it was you still did what you could. Who knows what difference those laps inside your house meant? I know when I see you I'm just going to melt into a puddle. The talk, the theory, the education of all this is one thing. But, I'm sure the experience from your standpoint was unimaginable. Even from mine, just knowing what has just happened is beyond words. , my ex-wife, said to tell you how thrilled she is for you as well. All she knows of you is what she has learned from me, but she knew enough to know how much I hoped and cared and how miraculous this all is. > > Hi dear friends, > I'm sitting on the bed in my stepdown room on my son's > computer. I can't believe my transplant was only this > last Thursday - and on my birthday!!!!!!!!!!! I'll check in > with you, then you can read a site my son set up this > afternoon to update people, and I think there are a few > photos and an address. I'm probably just restating stuff > he's already written, but oh, well. My kids have been truly > amazing. > I'm off all oxygen now, saturating at about 94%. My > thoracotomy incision hurts like hell - it's huge, but I knew it > Iwould be. Unfortunately, pain meds aren't very successful > on me, but I'm sure I'll feel a bit better every day. Hope so! > When I got the call, Kate was home (she'd driven home for > my birthday the next day) and we were about to watch a > movie when the phone rang at 9:45. I became sort of a mess > of excitement and emotion as you can imagine, and so of > course my sats dropped, but I kept it together pretty well, I > think. > My transplant team here is absolutely wonderful - ALL > so good but also so caring and compassionate. My surgery > Thursday lasted only about 2.5 hours - single lung, type O. > They said it couldn't have been a better match for me. I saw > an x-ray of it yesterday - such a shock and thrill to see all > that big black area instead of puny white. > I was off the vent in about 5 hours, I think. Friday I spent > most of the afternoon in a chair in my ICU room, then > yesterday I was moved to a room on another floor. > . > They take EARLY morning x-rays - ouch; then usually > see several doctors and/or teams of docs and an r.t.; > take a nebulizer antibiotic. And of course they're always > taking your vitals. Tonight I was at 99.3 so we'll be > watching that. My b.p. is a little elevated due to the > meds. I'm on 150mg twice daily of Prednisone, but > so far am not crazy. I'm really not on any more meds > than I was before, just different. I'm on Narco and > Lubain for pain and itching. I haven't gotten much sleep > due to those pesky critters. This afternoon I walked about > 250' down the hall, and took my first shower. I look like > I belong to a prison gang, with all the tattoe-like bruises > up and down my arms. I don't cough a lot, but they want > you to cough some - again, ouch! > By the way, Misha's in good hands. You heard that she > got a good doc report. :-) She's staying with the super > woman who walks her every day - they're big buds. > > To see my family's faces after surgery was something I'll > never ever forget. Then last night in the wee hours God and > I had a long talk about my young donor, and I'm totally at > peace. I'm very, very grateful for this miraculous gift. > > The kids have found several prospects for apartments > for me to rent for the next 2-3 months. ..which means I'll > be here when you guys come to San ! I may be > out of the Big House as early as sometime this week - > UNREAL - but we'll see how things progress. > > Got to get off and do my spirometry thingy and rest, > but I wanted to tell you guys how well things have been > going so far. I love you all and thank you so much for > your support and prayers. > > Hugs and blessings, > Gwynne 57 TRANSPLANTED 4-3-08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Gwynne, I have been so excited, along with everyone else.....heck, Kerry is jumping up and down....what a sign from above. God is real. He answers prayers. This whole thing has been so surreal. I am just so happy for you. I know that you will do the work to get better and stronger. I pray that you have many, many years to do the work that God has for you. Your life takes on such meaning, now. Breathe deeply, just once, for me. We will all live vicariously through you. Don't you dare forget about us now. We are family. We all love you so much. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 >> Hi dear friends,> I'm sitting on the bed in my stepdown room on my son's> computer. I can't believe my transplant was only this > last Thursday - and on my birthday!!!!!!!!!!! I'll check in> with you, then you can read a site my son set up this> afternoon to update people, and I think there are a few> photos and an address. I'm probably just restating stuff > he's already written, but oh, well. My kids have been truly > amazing. > I'm off all oxygen now, saturating at about 94%. My> thoracotomy incision hurts like hell - it's huge, but I knew it> Iwould be. Unfortunately, pain meds aren't very successful> on me, but I'm sure I'll feel a bit better every day. Hope so!> When I got the call, Kate was home (she'd driven home for> my birthday the next day) and we were about to watch a > movie when the phone rang at 9:45. I became sort of a mess > of excitement and emotion as you can imagine, and so of > course my sats dropped, but I kept it together pretty well, I > think. > My transplant team here is absolutely wonderful - ALL> so good but also so caring and compassionate. My surgery> Thursday lasted only about 2.5 hours - single lung, type O.> They said it couldn't have been a better match for me. I saw> an x-ray of it yesterday - such a shock and thrill to see all > that big black area instead of puny white. > I was off the vent in about 5 hours, I think. Friday I spent> most of the afternoon in a chair in my ICU room, then> yesterday I was moved to a room on another floor.> .> They take EARLY morning x-rays - ouch; then usually > see several doctors and/or teams of docs and an r.t.;> take a nebulizer antibiotic. And of course they're always > taking your vitals. Tonight I was at 99.3 so we'll be > watching that. My b.p. is a little elevated due to the> meds. I'm on 150mg twice daily of Prednisone, but> so far am not crazy. I'm really not on any more meds > than I was before, just different. I'm on Narco and > Lubain for pain and itching. I haven't gotten much sleep > due to those pesky critters. This afternoon I walked about> 250' down the hall, and took my first shower. I look like> I belong to a prison gang, with all the tattoe-like bruises> up and down my arms. I don't cough a lot, but they want> you to cough some - again, ouch!> By the way, Misha's in good hands. You heard that she> got a good doc report. :-) She's staying with the super > woman who walks her every day - they're big buds.> > To see my family's faces after surgery was something I'll > never ever forget. Then last night in the wee hours God and > I had a long talk about my young donor, and I'm totally at > peace. I'm very, very grateful for this miraculous gift. > > The kids have found several prospects for apartments> for me to rent for the next 2-3 months. ..which means I'll> be here when you guys come to San ! I may be> out of the Big House as early as sometime this week - > UNREAL - but we'll see how things progress.> > Got to get off and do my spirometry thingy and rest, > but I wanted to tell you guys how well things have been> going so far. I love you all and thank you so much for > your support and prayers.> > Hugs and blessings,> Gwynne 57 TRANSPLANTED 4-3-08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 What a inspiration you are. Still telling my wife and thinking about you daily. Keep on improving. Steve59 from WA IPF 2006 Reply-To: Breathe-Support To: Breathe-Support Subject: Gwynne's Update 4/6Date: Mon, 07 Apr 2008 03:35:16 -0000 Hi dear friends,I'm sitting on the bed in my stepdown room on my son'scomputer. I can't believe my transplant was only this last Thursday - and on my birthday!!!!!!!!!!! I'll check inwith you, then you can read a site my son set up thisafternoon to update people, and I think there are a fewphotos and an address. I'm probably just restating stuff he's already written, but oh, well. My kids have been truly amazing. I'm off all oxygen now, saturating at about 94%. Mythoracotomy incision hurts like hell - it's huge, but I knew itIwould be. Unfortunately, pain meds aren't very successfulon me, but I'm sure I'll feel a bit better every day. Hope so!When I got the call, Kate was home (she'd driven home formy birthday the next day) and we were about to watch a movie when the phone rang at 9:45. I became sort of a mess of excitement and emotion as you can imagine, and so of course my sats dropped, but I kept it together pretty well, I think. My transplant team here is absolutely wonderful - ALLso good but also so caring and compassionate. My surgeryThursday lasted only about 2.5 hours - single lung, type O.They said it couldn't have been a better match for me. I sawan x-ray of it yesterday - such a shock and thrill to see all that big black area instead of puny white. I was off the vent in about 5 hours, I think. Friday I spentmost of the afternoon in a chair in my ICU room, thenyesterday I was moved to a room on another floor..They take EARLY morning x-rays - ouch; then usually see several doctors and/or teams of docs and an r.t.;take a nebulizer antibiotic. And of course they're always taking your vitals. Tonight I was at 99.3 so we'll be watching that. My b.p. is a little elevated due to themeds. I'm on 150mg twice daily of Prednisone, butso far am not crazy. I'm really not on any more meds than I was before, just different. I'm on Narco and Lubain for pain and itching. I haven't gotten much sleep due to those pesky critters. This afternoon I walked about250' down the hall, and took my first shower. I look likeI belong to a prison gang, with all the tattoe-like bruisesup and down my arms. I don't cough a lot, but they wantyou to cough some - again, ouch!By the way, Misha's in good hands. You heard that shegot a good doc report. :-) She's staying with the super woman who walks her every day - they're big buds.To see my family's faces after surgery was something I'll never ever forget. Then last night in the wee hours God and I had a long talk about my young donor, and I'm totally at peace. I'm very, very grateful for this miraculous gift. The kids have found several prospects for apartmentsfor me to rent for the next 2-3 months. ..which means I'llbe here when you guys come to San ! I may beout of the Big House as early as sometime this week - UNREAL - but we'll see how things progress.Got to get off and do my spirometry thingy and rest, but I wanted to tell you guys how well things have beengoing so far. I love you all and thank you so much for your support and prayers.Hugs and blessings,Gwynne 57 TRANSPLANTED 4-3-08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Gwynne, I have to tell you, You're Superwoman!!!! I am in such disbelief that you're posting to us only 3 days after having a transplant!!! That is so absolutely wonderful that I can't even describe how fantastic it is!!!! Blessings to you and your family, your transplant team, and a special prayer to your donor. May you continue to heal quickly and soon be walking out of those doors into your new life! Hugs, hugs and such BIG hugs to you!!! Babs > > Hi dear friends, > I'm sitting on the bed in my stepdown room on my son's > computer. I can't believe my transplant was only this > last Thursday - and on my birthday!!!!!!!!!!! I'll check in > with you, then you can read a site my son set up this > afternoon to update people, and I think there are a few > photos and an address. I'm probably just restating stuff > he's already written, but oh, well. My kids have been truly > amazing. > I'm off all oxygen now, saturating at about 94%. My > thoracotomy incision hurts like hell - it's huge, but I knew it > Iwould be. Unfortunately, pain meds aren't very successful > on me, but I'm sure I'll feel a bit better every day. Hope so! > When I got the call, Kate was home (she'd driven home for > my birthday the next day) and we were about to watch a > movie when the phone rang at 9:45. I became sort of a mess > of excitement and emotion as you can imagine, and so of > course my sats dropped, but I kept it together pretty well, I > think. > My transplant team here is absolutely wonderful - ALL > so good but also so caring and compassionate. My surgery > Thursday lasted only about 2.5 hours - single lung, type O. > They said it couldn't have been a better match for me. I saw > an x-ray of it yesterday - such a shock and thrill to see all > that big black area instead of puny white. > I was off the vent in about 5 hours, I think. Friday I spent > most of the afternoon in a chair in my ICU room, then > yesterday I was moved to a room on another floor. > . > They take EARLY morning x-rays - ouch; then usually > see several doctors and/or teams of docs and an r.t.; > take a nebulizer antibiotic. And of course they're always > taking your vitals. Tonight I was at 99.3 so we'll be > watching that. My b.p. is a little elevated due to the > meds. I'm on 150mg twice daily of Prednisone, but > so far am not crazy. I'm really not on any more meds > than I was before, just different. I'm on Narco and > Lubain for pain and itching. I haven't gotten much sleep > due to those pesky critters. This afternoon I walked about > 250' down the hall, and took my first shower. I look like > I belong to a prison gang, with all the tattoe-like bruises > up and down my arms. I don't cough a lot, but they want > you to cough some - again, ouch! > By the way, Misha's in good hands. You heard that she > got a good doc report. :-) She's staying with the super > woman who walks her every day - they're big buds. > > To see my family's faces after surgery was something I'll > never ever forget. Then last night in the wee hours God and > I had a long talk about my young donor, and I'm totally at > peace. I'm very, very grateful for this miraculous gift. > > The kids have found several prospects for apartments > for me to rent for the next 2-3 months. ..which means I'll > be here when you guys come to San ! I may be > out of the Big House as early as sometime this week - > UNREAL - but we'll see how things progress. > > Got to get off and do my spirometry thingy and rest, > but I wanted to tell you guys how well things have been > going so far. I love you all and thank you so much for > your support and prayers. > > Hugs and blessings, > Gwynne 57 TRANSPLANTED 4-3-08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Hi Gwynne: I am so happy to see you post and I have to tell you that your details are great. You make getting a transplant sound " not so bad " . I am so happy that everything went well for you. I hope my experience is just like yours - someday. Take care and recover as fast as you can! God Bless, Tina IPF PH Ohio > > Hi dear friends, > I'm sitting on the bed in my stepdown room on my son's > computer. I can't believe my transplant was only this > last Thursday - and on my birthday!!!!!!!!!!! I'll check in > with you, then you can read a site my son set up this > afternoon to update people, and I think there are a few > photos and an address. I'm probably just restating stuff > he's already written, but oh, well. My kids have been truly > amazing. > I'm off all oxygen now, saturating at about 94%. My > thoracotomy incision hurts like hell - it's huge, but I knew it > Iwould be. Unfortunately, pain meds aren't very successful > on me, but I'm sure I'll feel a bit better every day. Hope so! > When I got the call, Kate was home (she'd driven home for > my birthday the next day) and we were about to watch a > movie when the phone rang at 9:45. I became sort of a mess > of excitement and emotion as you can imagine, and so of > course my sats dropped, but I kept it together pretty well, I > think. > My transplant team here is absolutely wonderful - ALL > so good but also so caring and compassionate. My surgery > Thursday lasted only about 2.5 hours - single lung, type O. > They said it couldn't have been a better match for me. I saw > an x-ray of it yesterday - such a shock and thrill to see all > that big black area instead of puny white. > I was off the vent in about 5 hours, I think. Friday I spent > most of the afternoon in a chair in my ICU room, then > yesterday I was moved to a room on another floor. > . > They take EARLY morning x-rays - ouch; then usually > see several doctors and/or teams of docs and an r.t.; > take a nebulizer antibiotic. And of course they're always > taking your vitals. Tonight I was at 99.3 so we'll be > watching that. My b.p. is a little elevated due to the > meds. I'm on 150mg twice daily of Prednisone, but > so far am not crazy. I'm really not on any more meds > than I was before, just different. I'm on Narco and > Lubain for pain and itching. I haven't gotten much sleep > due to those pesky critters. This afternoon I walked about > 250' down the hall, and took my first shower. I look like > I belong to a prison gang, with all the tattoe-like bruises > up and down my arms. I don't cough a lot, but they want > you to cough some - again, ouch! > By the way, Misha's in good hands. You heard that she > got a good doc report. :-) She's staying with the super > woman who walks her every day - they're big buds. > > To see my family's faces after surgery was something I'll > never ever forget. Then last night in the wee hours God and > I had a long talk about my young donor, and I'm totally at > peace. I'm very, very grateful for this miraculous gift. > > The kids have found several prospects for apartments > for me to rent for the next 2-3 months. ..which means I'll > be here when you guys come to San ! I may be > out of the Big House as early as sometime this week - > UNREAL - but we'll see how things progress. > > Got to get off and do my spirometry thingy and rest, > but I wanted to tell you guys how well things have been > going so far. I love you all and thank you so much for > your support and prayers. > > Hugs and blessings, > Gwynne 57 TRANSPLANTED 4-3-08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Gwynne, You amaze me, astound me, astonish me...there is just not big enough language to express what I'm feeling right now. I am so very thrilled for you and it's hard to fathom that we're actually hearing directly from you only a couple of days after your transplant! This is just so thrilling. I'm so glad that your daughter was with you when you got the call, I can't even imagine the excitement. Bet you can't even remember what movie you were going to watch...who cares! Gwynne continue to heal and recuperate. Know that we are here loving you and pulling for you every minute of every day! Looking forward to seeing the site your son set up and the pictures!! Love, Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Gwynne's Update 4/6 Hi dear friends,I'm sitting on the bed in my stepdown room on my son'scomputer. I can't believe my transplant was only this last Thursday - and on my birthday!!!! !!!!!!! I'll check inwith you, then you can read a site my son set up thisafternoon to update people, and I think there are a fewphotos and an address. I'm probably just restating stuff he's already written, but oh, well. My kids have been truly amazing. I'm off all oxygen now, saturating at about 94%. Mythoracotomy incision hurts like hell - it's huge, but I knew itIwould be. Unfortunately, pain meds aren't very successfulon me, but I'm sure I'll feel a bit better every day. Hope so!When I got the call, Kate was home (she'd driven home formy birthday the next day) and we were about to watch a movie when the phone rang at 9:45. I became sort of a mess of excitement and emotion as you can imagine, and so of course my sats dropped, but I kept it together pretty well, I think. My transplant team here is absolutely wonderful - ALLso good but also so caring and compassionate. My surgeryThursday lasted only about 2.5 hours - single lung, type O.They said it couldn't have been a better match for me. I sawan x-ray of it yesterday - such a shock and thrill to see all that big black area instead of puny white. I was off the vent in about 5 hours, I think. Friday I spentmost of the afternoon in a chair in my ICU room, thenyesterday I was moved to a room on another floor..They take EARLY morning x-rays - ouch; then usually see several doctors and/or teams of docs and an r.t.;take a nebulizer antibiotic. And of course they're always taking your vitals. Tonight I was at 99.3 so we'll be watching that. My b.p. is a little elevated due to themeds. I'm on 150mg twice daily of Prednisone, butso far am not crazy. I'm really not on any more meds than I was before, just different. I'm on Narco and Lubain for pain and itching. I haven't gotten much sleep due to those pesky critters. This afternoon I walked about250' down the hall, and took my first shower. I look likeI belong to a prison gang, with all the tattoe-like bruisesup and down my arms. I don't cough a lot, but they wantyou to cough some - again, ouch!By the way, Misha's in good hands. You heard that shegot a good doc report. :-) She's staying with the super woman who walks her every day - they're big buds.To see my family's faces after surgery was something I'll never ever forget. Then last night in the wee hours God and I had a long talk about my young donor, and I'm totally at peace. I'm very, very grateful for this miraculous gift. The kids have found several prospects for apartmentsfor me to rent for the next 2-3 months. ..which means I'llbe here when you guys come to San ! I may beout of the Big House as early as sometime this week - UNREAL - but we'll see how things progress.Got to get off and do my spirometry thingy and rest, but I wanted to tell you guys how well things have beengoing so far. I love you all and thank you so much for your support and prayers.Hugs and blessings,Gwynne 57 TRANSPLANTED 4-3-08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Gwynne, What an amazing surgery and recovery...and it must have felt GREAT to say the least that your signature had to be changed! YEAH and God Bless you and the family that made this possible.   JOE/JOANIE JOE 59 IPF1/2008 -- Gwynne's Update 4/6 Hi dear friends,I'm sitting on the bed in my stepdown room on my son'scomputer. I can't believe my transplant was only this last Thursday - and on my birthday!!!!!!!!!!! I'll check inwith you, then you can read a site my son set up thisafternoon to update people, and I think there are a fewphotos and an address. I'm probably just restating stuff he's already written, but oh, well. My kids have been truly amazing. I'm off all oxygen now, saturating at about 94%. Mythoracotomy incision hurts like hell - it's huge, but I knew itIwould be. Unfortunately, pain meds aren't very successfulon me, but I'm sure I'll feel a bit better every day. Hope so!When I got the call, Kate was home (she'd driven home formy birthday the next day) and we were about to watch a movie when the phone rang at 9:45. I became sort of a mess of excitement and emotion as you can imagine, and so of course my sats dropped, but I kept it together pretty well, I think. My transplant team here is absolutely wonderful - ALLso good but also so caring and compassionate. My surgeryThursday lasted only about 2.5 hours - single lung, type O.They said it couldn't have been a better match for me. I sawan x-ray of it yesterday - such a shock and thrill to see all that big black area instead of puny white. I was off the vent in about 5 hours, I think. Friday I spentmost of the afternoon in a chair in my ICU room, thenyesterday I was moved to a room on another floor..They take EARLY morning x-rays - ouch; then usually see several doctors and/or teams of docs and an r.t.;take a nebulizer antibiotic. And of course they're always taking your vitals. Tonight I was at 99.3 so we'll be watching that. My b.p. is a little elevated due to themeds. I'm on 150mg twice daily of Prednisone, butso far am not crazy. I'm really not on any more meds than I was before, just different. I'm on Narco and Lubain for pain and itching. I haven't gotten much sleep due to those pesky critters. This afternoon I walked about250' down the hall, and took my first shower. I look likeI belong to a prison gang, with all the tattoe-like bruisesup and down my arms. I don't cough a lot, but they wantyou to cough some - again, ouch!By the way, Misha's in good hands. You heard that shegot a good doc report. :-) She's staying with the super woman who walks her every day - they're big buds.To see my family's faces after surgery was something I'll never ever forget. Then last night in the wee hours God and I had a long talk about my young donor, and I'm totally at peace. I'm very, very grateful for this miraculous gift. The kids have found several prospects for apartmentsfor me to rent for the next 2-3 months. ..which means I'llbe here when you guys come to San ! I may beout of the Big House as early as sometime this week - UNREAL - but we'll see how things progress.Got to get off and do my spirometry thingy and rest, but I wanted to tell you guys how well things have beengoing so far. I love you all and thank you so much for your support and prayers.Hugs and blessings,Gwynne 57 TRANSPLANTED 4-3-08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 gwynne truly truly amazing. long may your recovery continue to go so well. thanks very much for thinking of us and giving us your personal touch. you and your family must be feeling so surreal. love and respect may, scotland > > Hi dear friends, > I'm sitting on the bed in my stepdown room on my son's > computer. I can't believe my transplant was only this > last Thursday - and on my birthday!!!!!!!!!!! I'll check in > with you, then you can read a site my son set up this > afternoon to update people, and I think there are a few > photos and an address. I'm probably just restating stuff > he's already written, but oh, well. My kids have been truly > amazing. > I'm off all oxygen now, saturating at about 94%. My > thoracotomy incision hurts like hell - it's huge, but I knew it > Iwould be. Unfortunately, pain meds aren't very successful > on me, but I'm sure I'll feel a bit better every day. Hope so! > When I got the call, Kate was home (she'd driven home for > my birthday the next day) and we were about to watch a > movie when the phone rang at 9:45. I became sort of a mess > of excitement and emotion as you can imagine, and so of > course my sats dropped, but I kept it together pretty well, I > think. > My transplant team here is absolutely wonderful - ALL > so good but also so caring and compassionate. My surgery > Thursday lasted only about 2.5 hours - single lung, type O. > They said it couldn't have been a better match for me. I saw > an x-ray of it yesterday - such a shock and thrill to see all > that big black area instead of puny white. > I was off the vent in about 5 hours, I think. Friday I spent > most of the afternoon in a chair in my ICU room, then > yesterday I was moved to a room on another floor. > . > They take EARLY morning x-rays - ouch; then usually > see several doctors and/or teams of docs and an r.t.; > take a nebulizer antibiotic. And of course they're always > taking your vitals. Tonight I was at 99.3 so we'll be > watching that. My b.p. is a little elevated due to the > meds. I'm on 150mg twice daily of Prednisone, but > so far am not crazy. I'm really not on any more meds > than I was before, just different. I'm on Narco and > Lubain for pain and itching. I haven't gotten much sleep > due to those pesky critters. This afternoon I walked about > 250' down the hall, and took my first shower. I look like > I belong to a prison gang, with all the tattoe-like bruises > up and down my arms. I don't cough a lot, but they want > you to cough some - again, ouch! > By the way, Misha's in good hands. You heard that she > got a good doc report. :-) She's staying with the super > woman who walks her every day - they're big buds. > > To see my family's faces after surgery was something I'll > never ever forget. Then last night in the wee hours God and > I had a long talk about my young donor, and I'm totally at > peace. I'm very, very grateful for this miraculous gift. > > The kids have found several prospects for apartments > for me to rent for the next 2-3 months. ..which means I'll > be here when you guys come to San ! I may be > out of the Big House as early as sometime this week - > UNREAL - but we'll see how things progress. > > Got to get off and do my spirometry thingy and rest, > but I wanted to tell you guys how well things have been > going so far. I love you all and thank you so much for > your support and prayers. > > Hugs and blessings, > Gwynne 57 TRANSPLANTED 4-3-08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 I would say thats the best birthday present you could have got Gwynne! And of course to have your family right there by your side what an amazing gift that all came together. Take care of you and your new lung! sandie > > Hi dear friends, > I'm sitting on the bed in my stepdown room on my son's > computer. I can't believe my transplant was only this > last Thursday - and on my birthday!!!!!!!!!!! I'll check in > with you, then you can read a site my son set up this > afternoon to update people, and I think there are a few > photos and an address. I'm probably just restating stuff > he's already written, but oh, well. My kids have been truly > amazing. > I'm off all oxygen now, saturating at about 94%. My > thoracotomy incision hurts like hell - it's huge, but I knew it > Iwould be. Unfortunately, pain meds aren't very successful > on me, but I'm sure I'll feel a bit better every day. Hope so! > When I got the call, Kate was home (she'd driven home for > my birthday the next day) and we were about to watch a > movie when the phone rang at 9:45. I became sort of a mess > of excitement and emotion as you can imagine, and so of > course my sats dropped, but I kept it together pretty well, I > think. > My transplant team here is absolutely wonderful - ALL > so good but also so caring and compassionate. My surgery > Thursday lasted only about 2.5 hours - single lung, type O. > They said it couldn't have been a better match for me. I saw > an x-ray of it yesterday - such a shock and thrill to see all > that big black area instead of puny white. > I was off the vent in about 5 hours, I think. Friday I spent > most of the afternoon in a chair in my ICU room, then > yesterday I was moved to a room on another floor. > . > They take EARLY morning x-rays - ouch; then usually > see several doctors and/or teams of docs and an r.t.; > take a nebulizer antibiotic. And of course they're always > taking your vitals. Tonight I was at 99.3 so we'll be > watching that. My b.p. is a little elevated due to the > meds. I'm on 150mg twice daily of Prednisone, but > so far am not crazy. I'm really not on any more meds > than I was before, just different. I'm on Narco and > Lubain for pain and itching. I haven't gotten much sleep > due to those pesky critters. This afternoon I walked about > 250' down the hall, and took my first shower. I look like > I belong to a prison gang, with all the tattoe-like bruises > up and down my arms. I don't cough a lot, but they want > you to cough some - again, ouch! > By the way, Misha's in good hands. You heard that she > got a good doc report. :-) She's staying with the super > woman who walks her every day - they're big buds. > > To see my family's faces after surgery was something I'll > never ever forget. Then last night in the wee hours God and > I had a long talk about my young donor, and I'm totally at > peace. I'm very, very grateful for this miraculous gift. > > The kids have found several prospects for apartments > for me to rent for the next 2-3 months. ..which means I'll > be here when you guys come to San ! I may be > out of the Big House as early as sometime this week - > UNREAL - but we'll see how things progress. > > Got to get off and do my spirometry thingy and rest, > but I wanted to tell you guys how well things have been > going so far. I love you all and thank you so much for > your support and prayers. > > Hugs and blessings, > Gwynne 57 TRANSPLANTED 4-3-08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 What a truly amazing gift to get on your birthday and to have your family sitting by you! My goodness to you being out of bed and moving around. Your not wasting anytime!~ Take care of you and your new lung! Sandie > > Hi dear friends, > I'm sitting on the bed in my stepdown room on my son's > computer. I can't believe my transplant was only this > last Thursday - and on my birthday!!!!!!!!!!! I'll check in > with you, then you can read a site my son set up this > afternoon to update people, and I think there are a few > photos and an address. I'm probably just restating stuff > he's already written, but oh, well. My kids have been truly > amazing. > I'm off all oxygen now, saturating at about 94%. My > thoracotomy incision hurts like hell - it's huge, but I knew it > Iwould be. Unfortunately, pain meds aren't very successful > on me, but I'm sure I'll feel a bit better every day. Hope so! > When I got the call, Kate was home (she'd driven home for > my birthday the next day) and we were about to watch a > movie when the phone rang at 9:45. I became sort of a mess > of excitement and emotion as you can imagine, and so of > course my sats dropped, but I kept it together pretty well, I > think. > My transplant team here is absolutely wonderful - ALL > so good but also so caring and compassionate. My surgery > Thursday lasted only about 2.5 hours - single lung, type O. > They said it couldn't have been a better match for me. I saw > an x-ray of it yesterday - such a shock and thrill to see all > that big black area instead of puny white. > I was off the vent in about 5 hours, I think. Friday I spent > most of the afternoon in a chair in my ICU room, then > yesterday I was moved to a room on another floor. > . > They take EARLY morning x-rays - ouch; then usually > see several doctors and/or teams of docs and an r.t.; > take a nebulizer antibiotic. And of course they're always > taking your vitals. Tonight I was at 99.3 so we'll be > watching that. My b.p. is a little elevated due to the > meds. I'm on 150mg twice daily of Prednisone, but > so far am not crazy. I'm really not on any more meds > than I was before, just different. I'm on Narco and > Lubain for pain and itching. I haven't gotten much sleep > due to those pesky critters. This afternoon I walked about > 250' down the hall, and took my first shower. I look like > I belong to a prison gang, with all the tattoe-like bruises > up and down my arms. I don't cough a lot, but they want > you to cough some - again, ouch! > By the way, Misha's in good hands. You heard that she > got a good doc report. :-) She's staying with the super > woman who walks her every day - they're big buds. > > To see my family's faces after surgery was something I'll > never ever forget. Then last night in the wee hours God and > I had a long talk about my young donor, and I'm totally at > peace. I'm very, very grateful for this miraculous gift. > > The kids have found several prospects for apartments > for me to rent for the next 2-3 months. ..which means I'll > be here when you guys come to San ! I may be > out of the Big House as early as sometime this week - > UNREAL - but we'll see how things progress. > > Got to get off and do my spirometry thingy and rest, > but I wanted to tell you guys how well things have been > going so far. I love you all and thank you so much for > your support and prayers. > > Hugs and blessings, > Gwynne 57 TRANSPLANTED 4-3-08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Thank you so very much for this wonderful info. Being so newly diagnosed, it feels good to know there may be a light at the end of this tunnel! So happy for you and your family!!!! I'll keep the prayers going, TerryGwynne Keyland wrote: Hi dear friends,I'm sitting on the bed in my stepdown room on my son'scomputer. I can't believe my transplant was only this last Thursday - and on my birthday!!!!!!!!!!! I'll check inwith you, then you can read a site my son set up thisafternoon to update people, and I think there are a fewphotos and an address. I'm probably just restating stuff he's already written, but oh, well. My kids have been truly amazing. I'm off all oxygen now, saturating at about 94%. Mythoracotomy incision hurts like hell - it's huge, but I knew itIwould be. Unfortunately, pain meds aren't very successfulon me, but I'm sure I'll feel a bit better every day. Hope so!When I got the call, Kate was home (she'd driven home formy birthday the next day) and we were about to watch a movie when the phone rang at 9:45. I became sort of a mess of excitement and emotion as you can imagine, and so of course my sats dropped, but I kept it together pretty well, I think. My transplant team here is absolutely wonderful - ALLso good but also so caring and compassionate. My surgeryThursday lasted only about 2.5 hours - single lung, type O.They said it couldn't have been a better match for me. I sawan x-ray of it yesterday - such a shock and thrill to see all that big black area instead of puny white. I was off the vent in about 5 hours, I think. Friday I spentmost of the afternoon in a chair in my ICU room, thenyesterday I was moved to a room on another floor..They take EARLY morning x-rays - ouch; then usually see several doctors and/or teams of docs and an r.t.;take a nebulizer antibiotic. And of course they're always taking your vitals. Tonight I was at 99.3 so we'll be watching that. My b.p. is a little elevated due to themeds. I'm on 150mg twice daily of Prednisone, butso far am not crazy. I'm really not on any more meds than I was before, just different. I'm on Narco and Lubain for pain and itching. I haven't gotten much sleep due to those pesky critters. This afternoon I walked about250' down the hall, and took my first shower. I look likeI belong to a prison gang, with all the tattoe-like bruisesup and down my arms. I don't cough a lot, but they wantyou to cough some - again, ouch!By the way, Misha's in good hands. You heard that shegot a good doc report. :-) She's staying with the super woman who walks her every day - they're big buds.To see my family's faces after surgery was something I'll never ever forget. Then last night in the wee hours God and I had a long talk about my young donor, and I'm totally at peace. I'm very, very grateful for this miraculous gift. The kids have found several prospects for apartmentsfor me to rent for the next 2-3 months. ..which means I'llbe here when you guys come to San ! I may beout of the Big House as early as sometime this week - UNREAL - but we'll see how things progress.Got to get off and do my spirometry thingy and rest, but I wanted to tell you guys how well things have beengoing so far. I love you all and thank you so much for your support and prayers.Hugs and blessings,Gwynne 57 TRANSPLANTED 4-3-08 Terry Pennisi 11/07 IPF Nevada You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Gwynnie!!!!! I can not express myself over my joy and gratitude about you and your amazing recovery so far. No doubt about it....a God Job!! I have a card waiting to mail when I get an address...I mention it so you will know you would have had one already if I had a dependable address. Love love love to you and another gentle mama-sher hug! Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there! Re: Gwynne's Update 4/6 Thank you so very much for this wonderful info. Being so newly diagnosed, it feels good to know there may be a light at the end of this tunnel! So happy for you and your family!!!! I'll keep the prayers going, TerryGwynne Keyland <gwynneksbcglobal (DOT) net> wrote: Hi dear friends,I'm sitting on the bed in my stepdown room on my son'scomputer. I can't believe my transplant was only this last Thursday - and on my birthday!!!!!!!!!!! I'll check inwith you, then you can read a site my son set up thisafternoon to update people, and I think there are a fewphotos and an address. I'm probably just restating stuff he's already written, but oh, well. My kids have been truly amazing. I'm off all oxygen now, saturating at about 94%. Mythoracotomy incision hurts like hell - it's huge, but I knew itIwould be. Unfortunately, pain meds aren't very successfulon me, but I'm sure I'll feel a bit better every day. Hope so!When I got the call, Kate was home (she'd driven home formy birthday the next day) and we were about to watch a movie when the phone rang at 9:45. I became sort of a mess of excitement and emotion as you can imagine, and so of course my sats dropped, but I kept it together pretty well, I think. My transplant team here is absolutely wonderful - ALLso good but also so caring and compassionate. My surgeryThursday lasted only about 2.5 hours - single lung, type O.They said it couldn't have been a better match for me. I sawan x-ray of it yesterday - such a shock and thrill to see all that big black area instead of puny white. I was off the vent in about 5 hours, I think. Friday I spentmost of the afternoon in a chair in my ICU room, thenyesterday I was moved to a room on another floor..They take EARLY morning x-rays - ouch; then usually see several doctors and/or teams of docs and an r.t.;take a nebulizer antibiotic. And of course they're always taking your vitals. Tonight I was at 99.3 so we'll be watching that. My b.p. is a little elevated due to themeds. I'm on 150mg twice daily of Prednisone, butso far am not crazy. I'm really not on any more meds than I was before, just different. I'm on Narco and Lubain for pain and itching. I haven't gotten much sleep due to those pesky critters. This afternoon I walked about250' down the hall, and took my first shower. I look likeI belong to a prison gang, with all the tattoe-like bruisesup and down my arms. I don't cough a lot, but they wantyou to cough some - again, ouch!By the way, Misha's in good hands. You heard that shegot a good doc report. :-) She's staying with the super woman who walks her every day - they're big buds.To see my family's faces after surgery was something I'll never ever forget. Then last night in the wee hours God and I had a long talk about my young donor, and I'm totally at peace. I'm very, very grateful for this miraculous gift. The kids have found several prospects for apartmentsfor me to rent for the next 2-3 months. ..which means I'llbe here when you guys come to San ! I may beout of the Big House as early as sometime this week - UNREAL - but we'll see how things progress.Got to get off and do my spirometry thingy and rest, but I wanted to tell you guys how well things have beengoing so far. I love you all and thank you so much for your support and prayers.Hugs and blessings,Gwynne 57 TRANSPLANTED 4-3-08 Terry Pennisi 11/07 IPF Nevada You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 > > > > Hi dear friends, > > I'm sitting on the bed in my stepdown room on my son's > > computer. I can't believe my transplant was only this > > last Thursday - and on my birthday!!!!!!!!!!! I'll check in > > with you, then you can read a site my son set up this > > afternoon to update people, and I think there are a few > > photos and an address. I'm probably just restating stuff > > he's already written, but oh, well. My kids have been truly > > amazing. > > I'm off all oxygen now, saturating at about 94%. My > > thoracotomy incision hurts like hell - it's huge, but I knew it > > Iwould be. Unfortunately, pain meds aren't very successful > > on me, but I'm sure I'll feel a bit better every day. Hope so! > > When I got the call, Kate was home (she'd driven home for > > my birthday the next day) and we were about to watch a > > movie when the phone rang at 9:45. I became sort of a mess > > of excitement and emotion as you can imagine, and so of > > course my sats dropped, but I kept it together pretty well, I > > think. > > My transplant team here is absolutely wonderful - ALL > > so good but also so caring and compassionate. My surgery > > Thursday lasted only about 2.5 hours - single lung, type O. > > They said it couldn't have been a better match for me. I saw > > an x-ray of it yesterday - such a shock and thrill to see all > > that big black area instead of puny white. > > I was off the vent in about 5 hours, I think. Friday I spent > > most of the afternoon in a chair in my ICU room, then > > yesterday I was moved to a room on another floor. > > . > > They take EARLY morning x-rays - ouch; then usually > > see several doctors and/or teams of docs and an r.t.; > > take a nebulizer antibiotic. And of course they're always > > taking your vitals. Tonight I was at 99.3 so we'll be > > watching that. My b.p. is a little elevated due to the > > meds. I'm on 150mg twice daily of Prednisone, but > > so far am not crazy. I'm really not on any more meds > > than I was before, just different. I'm on Narco and > > Lubain for pain and itching. I haven't gotten much sleep > > due to those pesky critters. This afternoon I walked about > > 250' down the hall, and took my first shower. I look like > > I belong to a prison gang, with all the tattoe-like bruises > > up and down my arms. I don't cough a lot, but they want > > you to cough some - again, ouch! > > By the way, Misha's in good hands. You heard that she > > got a good doc report. :-) She's staying with the super > > woman who walks her every day - they're big buds. > > > > To see my family's faces after surgery was something I'll > > never ever forget. Then last night in the wee hours God and > > I had a long talk about my young donor, and I'm totally at > > peace. I'm very, very grateful for this miraculous gift. > > > > The kids have found several prospects for apartments > > for me to rent for the next 2-3 months. ..which means I'll > > be here when you guys come to San ! I may be > > out of the Big House as early as sometime this week - > > UNREAL - but we'll see how things progress. > > > > Got to get off and do my spirometry thingy and rest, > > but I wanted to tell you guys how well things have been > > going so far. I love you all and thank you so much for > > your support and prayers. > > > > Hugs and blessings, > > Gwynne 57 TRANSPLANTED 4-3-08 > > > How awsome to hear all the good news! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Gwynne, I am speechless! I can't believe you are well enough already to write to us! How amazing you are! May God bless you and continue to heal you quickly. Sarcoid/PF 3/2006 California Gwynne's Update 4/6 Hi dear friends,I'm sitting on the bed in my stepdown room on my son'scomputer. I can't believe my transplant was only this last Thursday - and on my birthday!!!! !!!!!!! I'll check inwith you, then you can read a site my son set up thisafternoon to update people, and I think there are a fewphotos and an address. I'm probably just restating stuff he's already written, but oh, well. My kids have been truly amazing. I'm off all oxygen now, saturating at about 94%. Mythoracotomy incision hurts like hell - it's huge, but I knew itIwould be. Unfortunately, pain meds aren't very successfulon me, but I'm sure I'll feel a bit better every day. Hope so!When I got the call, Kate was home (she'd driven home formy birthday the next day) and we were about to watch a movie when the phone rang at 9:45. I became sort of a mess of excitement and emotion as you can imagine, and so of course my sats dropped, but I kept it together pretty well, I think. My transplant team here is absolutely wonderful - ALLso good but also so caring and compassionate. My surgeryThursday lasted only about 2.5 hours - single lung, type O.They said it couldn't have been a better match for me. I sawan x-ray of it yesterday - such a shock and thrill to see all that big black area instead of puny white. I was off the vent in about 5 hours, I think. Friday I spentmost of the afternoon in a chair in my ICU room, thenyesterday I was moved to a room on another floor..They take EARLY morning x-rays - ouch; then usually see several doctors and/or teams of docs and an r.t.;take a nebulizer antibiotic. And of course they're always taking your vitals. Tonight I was at 99.3 so we'll be watching that. My b.p. is a little elevated due to themeds. I'm on 150mg twice daily of Prednisone, butso far am not crazy. I'm really not on any more meds than I was before, just different. I'm on Narco and Lubain for pain and itching. I haven't gotten much sleep due to those pesky critters. This afternoon I walked about250' down the hall, and took my first shower. I look likeI belong to a prison gang, with all the tattoe-like bruisesup and down my arms. I don't cough a lot, but they wantyou to cough some - again, ouch!By the way, Misha's in good hands. You heard that shegot a good doc report. :-) She's staying with the super woman who walks her every day - they're big buds.To see my family's faces after surgery was something I'll never ever forget. Then last night in the wee hours God and I had a long talk about my young donor, and I'm totally at peace. I'm very, very grateful for this miraculous gift. The kids have found several prospects for apartmentsfor me to rent for the next 2-3 months. ..which means I'llbe here when you guys come to San ! I may beout of the Big House as early as sometime this week - UNREAL - but we'll see how things progress.Got to get off and do my spirometry thingy and rest, but I wanted to tell you guys how well things have beengoing so far. I love you all and thank you so much for your support and prayers.Hugs and blessings,Gwynne 57 TRANSPLANTED 4-3-08 You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
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