Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 P, Just like you like sitting on your Deere, I like sitting on my stool working my magic in the kitchen. Go for it! Do you wear a mask outside? I smother with those things. But, recently they have brought me the fold out masks that I am to wear when my sterile bandage on my picc line is being changed. Those do not smother me at all. I wonder if they would work outdoors for dust, etc. as well. You have moved one digit up on me. I am sticking on 8L unless I am up and active, like cooking or showering, then I go to 10L, even 15L sometimes. Whatever it takes to get me through. I hope you get to see that little boy often. He is the best medicine for you! Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 >> HI P from here in the "Burg" Good to here Don got out of the house and on the tractor. I Did the same thing Sunday but on a much smaller scale. Went out to the shed and charged up the Deer lawnmower and road it back to the garage and parallel parked it to get ready for the first mowing. Just kind a sat there after I shut it off enjoying the feel. > Does Don see a Peoria or Springfield Doctor? I see K Patel at the Galesburg Clinic. He has been watching over me since early 2000. Did go to Iowa City for a second opinion. Saw Doctor Hunninghake who is on the PF Board. Took all my records and he and his staff reviewed them and agreed with everything Patel was doing with a few minor suggestions. > I have UIP 8/200 secondary to Polymositis (PM) 12/98 a muscle disease. Also o2 24/7 8/04 now at 9 LPM, Type 2 Diabetic 8/04, Acid Reflex 2/06, Pulmonary Hypertension (PM) 3/06 and Col Pulmonale 4/06 enlargement of the heart and almost forgot Bronchiectasis 1/07. Had to get out my spread sheet for all this info. > My signature goes to the bottom also, so just delete everything after my post to get it to the bottom of my reply.> > > > P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 8/04, PH 3/06, ILL yo 59> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Hello I didn't realize you are in Galesburg. Hey we are close. We went to Peoria and they told us that to go home (because of the cough) and take cough medicine. It is only the fibrosis. He gave us a brochure on pf and sent us home. The cough was terrible. When we got to Mayo, he gave us a script for pred. I also talked to Jewish National in Denver and she said "You don't want to just "go home and take cough medicine". Here is why. In 6 months the lung could be filled with scar tissue and that is irreversible. Then we heard about a guy in Springfield. He is older, but is aggressive and gave us a plan. We jumped at it. He put Don on 80 mg of pred, then down to 40, and now on 20. He hasn't had a recent cat scan. Is Patel in Peoria too? I've heard of him. Wow, you have a lot of stuff I've never heard of. All except for the acid reflux and Don has that too. Don is really hoping that he will be able to mow this spring and summer. He was really bad yesterday and today as the day wears on it is getting worse. He can tell that second front is coming. Thanks for emailing. We need to keep in contact. K K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 john thats wonderful that you have boone and his mum this week. enjoy. may > > > > HI P from here in the " Burg " Good to here Don got out of the house and on the tractor. I Did the same thing Sunday but on a much smaller scale. Went out to the shed and charged up the Deer lawnmower and road it back to the garage and parallel parked it to get ready for the first mowing. Just kind a sat there after I shut it off enjoying the feel. > > Does Don see a Peoria or Springfield Doctor? I see K Patel at the Galesburg Clinic. He has been watching over me since early 2000. Did go to Iowa City for a second opinion. Saw Doctor Hunninghake who is on the PF Board. Took all my records and he and his staff reviewed them and agreed with everything Patel was doing with a few minor suggestions. > > I have UIP 8/200 secondary to Polymositis (PM) 12/98 a muscle disease. Also o2 24/7 8/04 now at 9 LPM, Type 2 Diabetic 8/04, Acid Reflex 2/06, Pulmonary Hypertension (PM) 3/06 and Col Pulmonale 4/06 enlargement of the heart and almost forgot Bronchiectasis 1/07. Had to get out my spread sheet for all this info. > > My signature goes to the bottom also, so just delete everything after my post to get it to the bottom of my reply. > > > > > > > > P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 8/04, PH 3/06, ILL yo 59 > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Hi The Doc Patel in Peoria is a heart guy. Is Don taking anything for his Gerds?You should look in the breath-support database at all the meds I take. P Kennelly wrote: Hello I didn't realize you are in Galesburg. Hey we are close. We went to Peoria and they told us that to go home (because of the cough) and take cough medicine. It is only the fibrosis. He gave us a brochure on pf and sent us home. The cough was terrible. When we got to Mayo, he gave us a script for pred. I also talked to Jewish National in Denver and she said "You don't want to just "go home and take cough medicine". Here is why. In 6 months the lung could be filled with scar tissue and that is irreversible. Then we heard about a guy in Springfield. He is older, but is aggressive and gave us a plan. We jumped at it. He put Don on 80 mg of pred, then down to 40, and now on 20. He hasn't had a recent cat scan. Is Patel in Peoria too? I've heard of him. Wow, you have a lot of stuff I've never heard of. All except for the acid reflux and Don has that too. Don is really hoping that he will be able to mow this spring and summer. He was really bad yesterday and today as the day wears on it is getting worse. He can tell that second front is coming. Thanks for emailing. We need to keep in contact. K K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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