Re: I have a ? And I need help....

[Guest guest]

Anita, it seems that the diagnosis of MS alone would allow the doctor to not

presume you are a drug seeker. MS is proven. I cannot imagine a doctor who

won't prescribe pain meds for that. And the FM is not easy to live with either.

Even if they don't believe the Fibro part, they should believe the MS.

I hope it works out for you. I hate to hear of someone in this kind of pain

without some help.

My heart is with you,

Debra V.

" tubelover2u@... " wrote:

Hello friends! I have a question that I'm hoping someone here may have

an

answer for....

I live in Ohio, and I'm having a HORRIBLE time trying to find a doctor that

will touch me. My family doctor has just had open heart surgery and they

don't know when she'll be back. The doctors I have seen since have been

horrible to me. One in particular had me in tears....I didn't know what to

say or what to do. I am out of pain meds...completely out. And I have NO

one that will give me something.....I'm not a drug addict, I don't want to

be high...I want to be able to function! I can't sleep...I got up Sunday

morning and was up for the next 44 hours. My body won't allow me to calm

down....On top of the Fibro and MS...and a butt load of symptoms...I also

have RLS...restless leg....when I try to lay down, my legs and feet begin to

burn, then I have the what I call...pin pricks usually on top of my toes.

Then the twitching begins...as hard as I try I can't stop moving. I end up

getting up...crying..ready to scream...and then get online. Now I'm blessed

because my husband understands...but...I know he misses holding me...and I

miss being held..

I need to find a doctor and I need to find one fast....the one doctor that I

have heard is great with his Fibro patients isn't taking new patients right

now...so please if anyone out there is from Ohio....do you know of a doctor

who is willing to listen and not jump to the conclusion that I'm nuts and/or

just want to get high...

It's tttoooo bad it would be easier for me to get illegal drugs! But I am a

Christian and I refuse to go that route, but I have to admit, the last month

or so....I've considered it!!!!

Thanks for letting me vent, and I do apologize, I know we are all in pain..

and I have no right to vent to those who are also hurting, but I know you

will understand...thanks!!!

Anita

[Guest guest]

Anita wrote:

> I can't sleep...I got up Sunday

> morning and was up for the next 44 hours. My body won't allow me to

> calm

> down....On top of the Fibro and MS...and a butt load of

> symptoms...I also

> have RLS...restless leg....when I try to lay down, my legs and feet

> begin to

> burn, then I have the what I call...pin pricks usually on top of my

> toes.

> Then the twitching begins...as hard as I try I can't stop moving. I

> end up

> getting up...crying..ready to scream...and then get online.

It sounds like you are going through a very nasty physical withdrawal

from narcotics. I was on pain meds pretty constantly from November,

2006 through May, 2007. When I finally went off, I thought I was

going to crawl out of my skin. It was unbearable and there simply

wasn't anything I could do for it. I took some Xanax to help with

the anxiety, but the withdrawal symptoms simply had to run their

course. And they're going to happen, whether you're a hardened

addict, or a person just trying to cope with chronic pain.

On top of that, you've got all of the pain flooding back. It's

nightmarish. Don't give in to the temptation to go the illegal

route; that's a one-way path into drug addiction. Try to stay as

calm as you can and thank <insert name of annoying deity who I'm not

really happy with over stuff like this> that you have an

understanding hubby. Don't plan on functioning as usual for a few

days, though!

Please let us know how you're doing. If nothing else, when the

withdrawal symptoms subside, you will be able to give hope to people

that it is possible, if really, really unpleasant, to cold-turkey off

of these things.

My thoughts are with you today.

Z

[Guest guest]

Anita - You have just as much right as any of us to vent. That is what a

support group is all about. I pray you find a doc to help you very soon.

Take care.

Jeanne in WI

>

> I live in Ohio, and I'm having a HORRIBLE time trying to find a doctor

> that will touch me. My family doctor has just had open heart surgery and

> they don't know when she'll be back. The doctors I have seen since have

> been

horrible to me. One in particular had me in tears....I didn't know what to

say or what to do. I am out of pain meds...completely out. And I have NO

one that will give me something.....I'm not a drug addict, I don't want to

be high...I want to be able to function! I can't sleep...I got up Sunday

morning and was up for the next 44 hours. My body won't allow me to calm

down....On top of the Fibro and MS...and a butt load of symptoms...I also

have RLS...restless leg....when I try to lay down, my legs and feet begin to

burn, then I have the what I call...pin pricks usually on top of my toes.

> Then the twitching begins...as hard as I try I can't stop moving. I end

> up getting up...crying..ready to scream...and then get online. Now I'm

> blessed

> because my husband understands...but...I know he misses holding me...and I

> miss being held..

>

> I need to find a doctor and I need to find one fast....the one doctor that

> I have heard is great with his Fibro patients isn't taking new patients

> right now...so please if anyone out there is from Ohio....do you know of a

> doctor

who is willing to listen and not jump to the conclusion that I'm nuts and/or

just want to get high...

[Guest guest]

>

> Anita - You have just as much right as any of us to vent. That is

what a

> support group is all about. I pray you find a doc to help you very

soon.

> Take care.

> Jeanne in WI

>

>

> >

> > I live in Ohio, and I'm having a HORRIBLE time trying to find a

doctor

> > that will touch me. My family doctor has just had open heart

surgery and

> > they don't know when she'll be back. The doctors I have seen

since have

> > been

> horrible to me. One in particular had me in tears....I didn't

know what to

> say or what to do. I am out of pain meds...completely out. And I

have NO

> one that will give me something.....I'm not a drug addict, I don't

want to

> be high...I want to be able to function! I can't sleep...I got up

Sunday

> morning and was up for the next 44 hours. My body won't allow me

to calm

> down....On top of the Fibro and MS...and a butt load of

symptoms...I also

> have RLS...restless leg....when I try to lay down, my legs and feet

begin to

> burn, then I have the what I call...pin pricks usually on top of my

toes.

> > Then the twitching begins...as hard as I try I can't stop

moving. I end

> > up getting up...crying..ready to scream...and then get online.

Now I'm

> > blessed

> > because my husband understands...but...I know he misses holding

me...and I

> > miss being held..

> >

> > I need to find a doctor and I need to find one fast....the one

doctor that

> > I have heard is great with his Fibro patients isn't taking new

patients

> > right now...so please if anyone out there is from Ohio....do you

know of a

> > doctor

> who is willing to listen and not jump to the conclusion that I'm

nuts and/or

> just want to get high...

>

Anita, so sorry you are having a difficult time finding a doctor who

can treat you and do so with respect. I fear I will be facing the

same problem when we move from Pittsburgh to So. Illinois in June.

And while talking to one of my grade/high school classmates yesterday

we were really complaining about how bad the restless legs syndrome

can be. She said that she saw a doctor for awhile who at the age of

80 or so, decided to investigage accupunture (sp) and he was the one

who finally diagnosed her with fibro. He was still practicing up

until he died a year or so ago at the age of 90+ --- when I read he

was still practicing medicine, I had to find my baby book to see if

he had delivered me! as he well could have done! What I found

interesting was that yesterday was the first time she even mentioned

the fact that he had been diagnosed her with fibro . But the

restless legs certainly do have an adverse effect on a marriage!! I

well remember the summer I first started developing that nasty

problem -- my entire body would jerk and my husband would be lying in

bed next to me almost yelling " Stop that! " Now I don't seem to have

the problem quite so much, now it is the sleep problems and the only

way I see able to even fall asleep is to read and that causes other

problems because dh can't sleep with the light on (wonder why he can

fall asleep in front of the tv but not in bed????).

And I know that my posts can get very long, but since I am home sooo

much, my major contact with the rest of the world is via this group

and the emails I send and receive from friends, family. I know they

can be long, but if it bothers someone, they can skip my lengthly

writings -- I have a hard time knowing when to shut up!