Re: Digest Number 795

[Guest guest]

Hi

I had the angiogram several times after I was dx with RP. I have had several

heart attacks, that necessitated the tests. Extra precautions were taken,

e.g., smaller catheter used but other than that all went well. hope this

helps.

love, hugs and hope

Angie

[Guest guest]

Hi everyone.

I am sneaking on in the middle of the night since I cannot sleep and I just

came off my darn machine.

I have to THANK everyone that sent cards, etc., your kindness was truly

unbelievable and appreciated. Everyone around here was astounded by the

kindness and generosity of people that I know only through email. You are

really a loving caring group of people that I am so proud to be a part of.

Thank you all again.

welcome back hope you had a great time, you deserve it.

Welcome all newcomers hope you find a place in our family here, and I look

forward to getting to know you.

Hello to old friends I have missed you all.

I am hanging in, have to see the ENT doctor tomorrow morning. will update on

that as soon as I am able.

I am trying to persuade to print out the digests for me, he has such a

busy life you know he is balking at taking the time but I will prevail and

win this one. With him.

so everyone give me updates on how you are all doing. I need to be informed.

I felt so lost being offline so long and out of the loop. I have to get back

in gear I miss you all too much

love, hugs and hope

Angie

[Guest guest]

Angie--it's great to see you posting, have missed you! Will keep you in my

prayers. As far as me, I'm dealing with a PE in my right lower lung (small

and stable) and a sizeable clot in my right lower leg (lots of swelling and

pain). Being treated with Coumadin (10 mg/day), did the Fragmin injections,

using stockings, keeping leg elevated, etc. Can't work this week again--more

than anything, this is very hard for me. Am constantly on the go there so

work doesn't pile up. Have been doing as much as I can through my computer

(bless technology!), but truly miss the work scene, as weird as that sounds!

I sure hope and pray all goes well for you with your docs. Know that you're

very important to all of us here in RP land. Hopefully will understand

how important the postings, etc. are to you and print as much as he can.

Take good care. Carol.

[Guest guest]

Carol, Sorry you are having such problems. You just follow the dr orders and

stay down. I know how hard that is!! I hope and pray that all is better

soon. Know that I am thinking about you and you are in my prayers.

Love ya

[Guest guest]

Elaine, Take that deep breathe and relax. I know how hard this is on you.

My daughter is a single mom and has gone through the court thing for about 3

years. Stress! yucckk!!!! Let us know how everything turns out . You know

I'm here for you if you need anything.

Hope you are feeling a little better. Did you get alot done on your house?

Also let us know what you find out at your dr appt.

You're in my thoughts today.

Love

[Guest guest]

Hi Angie,

Good to have you back. I too have been up since 4:30 this morning. Can't

sleep as I have a court case this morning. My stress level is way up there

right now and my heart is doing loops. It stopped doing it for almost a

week until now. I've been off work on my vacation time but haven't gone

anywhere, just been working on the house. The doc says I need to rest but

as a single mom in the middle of a child support battle who can rest! I

finally see the Rheumy tomorrow and I hope he has some answers for me. I

hope you are doing well and am glad to see you posting. We really do miss

you. Take care and be well.

Elaine

----------

> From: rpawareness@...

> To: Rpolychondritisegroups

> Subject: Re: Digest Number 795

> Date: July 25, 2000 12:58 AM

>

> Hi everyone.

> I am sneaking on in the middle of the night since I cannot sleep and I

just

> came off my darn machine.

> I have to THANK everyone that sent cards, etc., your kindness was truly

> unbelievable and appreciated. Everyone around here was astounded by the

> kindness and generosity of people that I know only through email. You are

> really a loving caring group of people that I am so proud to be a part

of.

> Thank you all again.

> welcome back hope you had a great time, you deserve it.

> Welcome all newcomers hope you find a place in our family here, and I

look

> forward to getting to know you.

> Hello to old friends I have missed you all.

> I am hanging in, have to see the ENT doctor tomorrow morning. will update

on

> that as soon as I am able.

> I am trying to persuade to print out the digests for me, he has

such a

> busy life you know he is balking at taking the time but I will prevail

and

> win this one. With him.

> so everyone give me updates on how you are all doing. I need to be

informed.

> I felt so lost being offline so long and out of the loop. I have to get

back

> in gear I miss you all too much

>

>

> love, hugs and hope

> Angie

>

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>