RE: Choking, Swallowing, Strangling and Twitching

[Guest guest]

Hi!

I hope everyone is having a good evening. I don't write often, but I am a

avid reader of all the e-mail.

Over the years I have suffered from all of the above. At times I can't even

swallow my food, or if I can start to swallow it always gets stuck and then

my husband and son are both coming at me to help, one is pounding on my back

and the other is trying to do the Heimlich manuever. I not sure what is

worse my husband and son trying to help or the actual choking, lol.

I could never wear a turtle neck that had any type of spandex in the neck for

cuff. It would feel like someone was strangling me and my face would always

turn red. I have no idea as to the reason why I can't stand anything tight,

elastic, spandex, lycra, or even a watch around by wrist.

The twitching or involuntary movement of my fingers, hands and legs started

not long after my surgery for ACM 1.

I'm not sure if this information is of any help, but at least you know you

are not alone.

I also have a quick question. Before I was diagnosed and operated on for ACM

I was an avid horse rider. I did alot of eventing and show jumping. This is

something I really miss, but I was advised not to push my luck by getting

back on a horse and falling off and breaking my back or worse. Is there

anyone of you who still ride with ACM?

Thank you.

kvitale01@...

V. in Illinois

ACM 1 Surgery, 1995

[Guest guest]

Hi!

I developed choking and swallowing problems about one

year after my surgery. It's not real bad, but I hate

the feeling. I dont know how to deal with it yet. I

feel like I'm going to choke!

I too was very active before I fell and Chiari

manifested itself in my life. I jogged 6 miles every

other day. I was in the army and was very

gymnastically inclined and now I can't walk a mile.

Some Chiarians can. I have tried so many times and

usually after 1 1/2 weeks all the symptoms become

agravated until I cant even touch my legs without

screaming. All my nerve endings feel like there on

fire.

My doc told me not to do it anymore even though he was

the one who told me to try in the first place. I

gained alot of weight which is unhealthy too and now

I'm doing 25 minutes of exercise at home (floor

exercises that don't strain the neck or back). So

far, so good!

Have a good day tomorrow!

Carmen

--- kvitale01@... wrote:

> Hi!

>

> I hope everyone is having a good evening. I don't

> write often, but I am a

> avid reader of all the e-mail.

>

> Over the years I have suffered from all of the

> above. At times I can't even

> swallow my food, or if I can start to swallow it

> always gets stuck and then

> my husband and son are both coming at me to help,

> one is pounding on my back

> and the other is trying to do the Heimlich manuever.

> I not sure what is

> worse my husband and son trying to help or the

> actual choking, lol.

>

> I could never wear a turtle neck that had any type

> of spandex in the neck for

> cuff. It would feel like someone was strangling me

> and my face would always

> turn red. I have no idea as to the reason why I

> can't stand anything tight,

> elastic, spandex, lycra, or even a watch around by

> wrist.

>

> The twitching or involuntary movement of my fingers,

> hands and legs started

> not long after my surgery for ACM 1.

>

> I'm not sure if this information is of any help, but

> at least you know you

> are not alone.

>

> I also have a quick question. Before I was

> diagnosed and operated on for ACM

> I was an avid horse rider. I did alot of eventing

> and show jumping. This is

> something I really miss, but I was advised not to

> push my luck by getting

> back on a horse and falling off and breaking my

> back or worse. Is there

> anyone of you who still ride with ACM?

>

> Thank you.

>

> kvitale01@...

> V. in Illinois

> ACM 1 Surgery, 1995

>

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