Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Marti if you knew what I went thru prior to my major onset you would have a better idea as to why my condition worsened as it did. Someday I will e-mail you personally and tell you my story and I believe after you read it you will hace a greater understanding of my situation! GOD Bless YOU Marti ! ! ! . . . ................................ . . . GOD grant me the serenityto accept the things I cannot change the courage to change the things I canand the wisdom to know the difference. Amen ! ! ! To: Fibromyalgia_Support_Group@...: martibowenboguski@...: Thu, 7 Feb 2008 07:35:54 -0800Subject: Re: If it isn't progressive why am I in such worse condition 2-1/2 yrs. later? I know it does too. It has progressed with me little by little rather than a huge step at a time, like for you. It teases me and I think it's going to stay where it is and then it just jerks the rug out from under me right when I think I can start making long range plans again. This is God forsaken stuff we are dealing with.Martidebra van ness wrote:It is progressive . I know from my own experience. I don't see myself able to keep working until I am 65. The last 5 years have attacked me and the fibro went 10 fold. You know I told you that I use to have very mild symptoms for years... so mild I did not realize I was sick. Just tired all the time, numnbness and tingling in the fingers, and also fibro fog which I did not recognize it to be fibro fog. Now the tired has turned to exhaustion and the pain set when I had that flare 5 years ago. My body was never the same after that flare. I also get the stiffness I never had in my younger years. So bad that sometimes I have to literally roll myself out of bed because my back won't bend and all my joints stiffen.love ya,Debra V. Honeycutt wrote:GOD grant me the serenityto accept the things I cannot change the courage to change the things I canand the wisdom to know the difference. Amen ! ! !__________________________________________________________Climb to the top of the charts! Play the word scramble challenge with star power.http://club.live.com/star_shuffle.aspx?icid=starshuffle_wlmailtextlink_jan\ [Non-text portions of this message have been removed]---------------------------------Never miss a thing. Make Yahoo your homepage.[Non-text portions of this message have been removed]---------------------------------Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 > when I'm not feeling quite as lousy I come up with all of these > things I'm going to do and get excited about them. Then I make > preparations and plans and get started. but when the pain gets > more intense and mostly when the fibro fog settles in along with > the fatigue I have to put everything on hold or give up entirely. And this is the cruellest thing about this disease, IMGLO. It dangles normalcy in front of us, then snatches it away. It robs us of the ability to make and carry through on plans. Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Isn't that the truth. I like the way you put it. Dangles normalcy in front of us. That's the monster! Marti Zimmy wrote: > when I'm not feeling quite as lousy I come up with all of these > things I'm going to do and get excited about them. Then I make > preparations and plans and get started. but when the pain gets > more intense and mostly when the fibro fog settles in along with > the fatigue I have to put everything on hold or give up entirely. And this is the cruellest thing about this disease, IMGLO. It dangles normalcy in front of us, then snatches it away. It robs us of the ability to make and carry through on plans. Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 its a dice roll 25% are seriously ill 25% are on disabiilty and 50% are waxing and waning similar to rhuematoid arthritis. Re: If it isn't progressive why am I in such worse condition 2-1/2 yrs. later? I know it does too. It has progressed with me little by little rather than a huge step at a time, like for you. It teases me and I think it's going to stay where it is and then it just jerks the rug out from under me right when I think I can start making long range plans again. This is God forsaken stuff we are dealing with.Martidebra van ness wrote:It is progressive . I know from my own experience. I don't see myself able to keep working until I am 65. The last 5 years have attacked me and the fibro went 10 fold. You know I told you that I use to have very mild symptoms for years... so mild I did not realize I was sick. Just tired all the time, numnbness and tingling in the fingers, and also fibro fog which I did not recognize it to be fibro fog. Now the tired has turned to exhaustion and the pain set when I had that flare 5 years ago. My body was never the same after that flare. I also get the stiffness I never had in my younger years. So bad that sometimes I have to literally roll myself out of bed because my back won't bend and all my joints stiffen.love ya,Debra V. Honeycutt wrote:GOD grant me the serenityto accept the things I cannot change the courage to change the things I canand the wisdom to know the difference. Amen ! ! !__________________________________________________________Climb to the top of the charts! Play the word scramble challenge with star power.http://club.live.com/star_shuffle..aspx?icid=starshuffle_wlmailtextlink_ja\ n[Non-text portions of this message have been removed]---------------------------------Never miss a thing. Make Yahoo your homepage.[Non-text portions of this message have been removed]---------------------------------Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
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