Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 Welcome Callie! Sorry, cant help you with the buddy situation since I already had my TR. hello everyone hi my name is callie i am 32 and live right here in kentucky. i am looking for a buddy to share a surgery date with either in june or july i have already had my consult it went wonderfully *S*.also if anyone has any questions about kentucky i can try to help.plese feel free to email me at tlkisses@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 Tina, Such a smart girl! You sound like you've got a good handle on it. I know that you will do all that you can do to do the best for you. I'm sending you good thoughts and encouragement! Kerry 37 IPF '01 S. IN > > > > > > > > Well, I went to see the transplant team on March 18th, as many > of > > you > > > > know from my previous posts, and my doc said they were going to > list > > > > me. But, I found out today, that the " team " has voted against > > > > listing me yet. It is the weight issue. I still need to lose 30 > > > > more pounds. So now they suggested that I see the bariatric > surgeon > > > > to discuss gastric bypass and/or lapband surgery. And, to their > > > > surprise, I refused. I will not undergo gastric bypass surgery > to > > > > lose 30 pounds! It just isn't worth it for me. Surgery is too > risky > > > > for us IPFers anyway. And, I am just too reluctant to undergo > any > > > > kind of unnecessary surgery. If I can't lose the weight, then I > > > > suppose I will never get listed. That will be fine too. I will > deal > > > > with whatever comes my way. I am going to go for another sleep > study > > > > on Monday, April 7th and see where that leads me. I also got the > > > > results back from my MRI. I have arthritis in my neck - thus the > > > > pain. It doesn't explain the arm and leg numbness, but the > > > > neurologist couldn't explain it either. He told me to let him > know > > > > if things worsen, but otherwise to just " deal with it " . I am > back to > > > > pulmonary rehab next week too. I enjoy the exercise more than > what I > > > > thought I would. And, another month has passed! I am looking > > > > forward to May to see everyone who will be able to be in San > > > > . And, I am looking forward to May because it will be the > > > > first month in the last 14 months that I don't have any > scheduled > > > > doctor's appointments, tests, or any kind of medical > appointment! > > > > And, our pool will go up in May. Yippee for warmer weather!!! > > > > > > > > God Bless, > > > > Tina > > > > IPF 04/07 PH 11/07 Ohio > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 Tina and Kerry There's a beautiful person already there. Now, she'll probably never be skinny, but I'm confident she'll get down her 30 pounds. I second what Kerry is saying about your control over the situation. You have listened to them, you know the choices, you know the ramifications of those choices, and you're managing your care and doing what is most appropriate for you. Thats the model way to do it. Its the model way to live in general. You are just doing so well with all you've faced and have going on. You should be incredibly proud of yourself. > > > > > > > > > > Well, I went to see the transplant team on March 18th, as > many > > of > > > you > > > > > know from my previous posts, and my doc said they were going > to > > list > > > > > me. But, I found out today, that the " team " has voted against > > > > > listing me yet. It is the weight issue. I still need to lose > 30 > > > > > more pounds. So now they suggested that I see the bariatric > > surgeon > > > > > to discuss gastric bypass and/or lapband surgery. And, to > their > > > > > surprise, I refused. I will not undergo gastric bypass > surgery > > to > > > > > lose 30 pounds! It just isn't worth it for me. Surgery is > too > > risky > > > > > for us IPFers anyway. And, I am just too reluctant to > undergo > > any > > > > > kind of unnecessary surgery. If I can't lose the weight, > then I > > > > > suppose I will never get listed. That will be fine too. I > will > > deal > > > > > with whatever comes my way. I am going to go for another > sleep > > study > > > > > on Monday, April 7th and see where that leads me. I also got > the > > > > > results back from my MRI. I have arthritis in my neck - thus > the > > > > > pain. It doesn't explain the arm and leg numbness, but the > > > > > neurologist couldn't explain it either. He told me to let > him > > know > > > > > if things worsen, but otherwise to just " deal with it " . I am > > back to > > > > > pulmonary rehab next week too. I enjoy the exercise more > than > > what I > > > > > thought I would. And, another month has passed! I am looking > > > > > forward to May to see everyone who will be able to be in San > > > > > . And, I am looking forward to May because it will be > the > > > > > first month in the last 14 months that I don't have any > > scheduled > > > > > doctor's appointments, tests, or any kind of medical > > appointment! > > > > > And, our pool will go up in May. Yippee for warmer weather!!! > > > > > > > > > > God Bless, > > > > > Tina > > > > > IPF 04/07 PH 11/07 Ohio > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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