Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 MB/Sher Isn't BWBB enough? Of course many things I've been called couldn't be typed here. But among friends, I don't care what you call me. > > > > Sue, > > If Sher's a weirdo, then so am I. I get the postings as individual > emails, like Sher it's just easier for me to keep track. I find the > digests difficult to follow and I don't like reading from the web. > > > > I had a lung biopsy nearly two years ago. They attempted VATS but > switched to an open lung biopsy when I had problems with the anesthesia. > I would say I'm in the minority with no lingering problems from the > biopsy. Alot of the people here who have had one describe long lasting > pain, and some a decline in lung function post biopsy. It's invasive > surgery and sometimes our lungs are just too compromised to bounce back > the way we would like them too. I've heard other say the same thing that > you imply, that if you had it to do over again, you wouldn't. > > > > I think all of us over exert at times and our sats fall. If they come > back up quickly as you describe, I wouldn't worry about it. It's > prolonged (more than a few minutes) low O2 levels that can hurt us. > Yours seem to recover very quickly (mine do too). As long as that's the > case, I wouldn't worry too much. But of course these are all questions, > you might want to ask your doctor too! > > > > Beth > > Age 48 Fibrotic NSIP 06/06 > > > > Change everything. Love and Forgive > > > > > > > > > > > > Couple of questions > > > > > > My first question is pretty dumb -- I get the digest and I think > I'm seeing the same postings. Is there a " right " way to read > them or should I subscribe to individual e-mails? I have yet to figure > out how the list works—maybe it's just my foggy brain. > > My next question is more on topic regarding sat levels. I am on 6L > continuous on exertion which is what I use around the house--I don't > bother turning it up and down depending on what I'm doing. If > I'm doing something particularly exerting, my sats might drop as low > as 79 . I usually sit down, get the reading off the oximeter, and within > a minute or less they come back up to 90 or above. Is this the way it is > for you or do your sats stay down for a long while? > > And lastly (I saved up my questions J) since having that VATS lung > biopsy I have been much more shorter of breath, which I've told my > dr. I may have needed some o2 before the biopsy (because I keep denying > what the doc was telling me) but now it's worse. I wish I hadn't > had the biopsy. Have others felt that way. > > Sorry I went on so long, but would appreciate your comments. > > Sue D. > > 62 ,Fibrotic NSIP dx 9/07, VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Sher, Beth, Bruce, No matter what you call yourselves..I think you are all wonderful!!!! I also read individual emails..it keeps me in touch and I can follow the thread of thoughts more easily. May I join the weirdos? Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Bruce Moreland wrote: MB/Sher Isn't BWBB enough? Of course many things I've been called couldn't be typed here. But among friends, I don't care what you call me. > > > > Sue, > > If Sher's a weirdo, then so am I. I get the postings as individual > emails, like Sher it's just easier for me to keep track. I find the > digests difficult to follow and I don't like reading from the web. > > > > I had a lung biopsy nearly two years ago. They attempted VATS but > switched to an open lung biopsy when I had problems with the anesthesia. > I would say I'm in the minority with no lingering problems from the > biopsy. Alot of the people here who have had one describe long lasting > pain, and some a decline in lung function post biopsy. It's invasive > surgery and sometimes our lungs are just too compromised to bounce back > the way we would like them too. I've heard other say the same thing that > you imply, that if you had it to do over again, you wouldn't. > > > > I think all of us over exert at times and our sats fall. If they come > back up quickly as you describe, I wouldn't worry about it. It's > prolonged (more than a few minutes) low O2 levels that can hurt us. > Yours seem to recover very quickly (mine do too). As long as that's the > case, I wouldn't worry too much. But of course these are all questions, > you might want to ask your doctor too! > > > > Beth > > Age 48 Fibrotic NSIP 06/06 > > > > Change everything. Love and Forgive > > > > > > > > > > > > Couple of questions > > > > > > My first question is pretty dumb -- I get the digest and I think > I'm seeing the same postings. Is there a "right" way to read > them or should I subscribe to individual e-mails? I have yet to figure > out how the list works—maybe it's just my foggy brain. > > My next question is more on topic regarding sat levels. I am on 6L > continuous on exertion which is what I use around the house--I don't > bother turning it up and down depending on what I'm doing. If > I'm doing something particularly exerting, my sats might drop as low > as 79 . I usually sit down, get the reading off the oximeter, and within > a minute or less they come back up to 90 or above. Is this the way it is > for you or do your sats stay down for a long while? > > And lastly (I saved up my questions J) since having that VATS lung > biopsy I have been much more shorter of breath, which I've told my > dr. I may have needed some o2 before the biopsy (because I keep denying > what the doc was telling me) but now it's worse. I wish I hadn't > had the biopsy. Have others felt that way. > > Sorry I went on so long, but would appreciate your comments. > > Sue D. > > 62 ,Fibrotic NSIP dx 9/07, VA > > > No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.13/1375 - Release Date: 4/12/2008 11:32 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Of course you may join, but have to regularly exhibit the weirdness for all to see. I can see where individual emails could be easier than digests if not overwhelming. Actually reading web and individual emails is more similar than either is to the digests. Thats what we're actually doing when reading on web is individual. > > > > > > > > Sue, > > > > If Sher's a weirdo, then so am I. I get the postings as individual > > > emails, like Sher it's just easier for me to keep track. I find the > > > digests difficult to follow and I don't like reading from the web. > > > > > > > > I had a lung biopsy nearly two years ago. They attempted VATS but > > > switched to an open lung biopsy when I had problems with the > > anesthesia. > > > I would say I'm in the minority with no lingering problems from the > > > biopsy. Alot of the people here who have had one describe long lasting > > > pain, and some a decline in lung function post biopsy. It's invasive > > > surgery and sometimes our lungs are just too compromised to bounce > > back > > > the way we would like them too. I've heard other say the same thing > > that > > > you imply, that if you had it to do over again, you wouldn't. > > > > > > > > I think all of us over exert at times and our sats fall. If they > > come > > > back up quickly as you describe, I wouldn't worry about it. It's > > > prolonged (more than a few minutes) low O2 levels that can hurt us. > > > Yours seem to recover very quickly (mine do too). As long as that's > > the > > > case, I wouldn't worry too much. But of course these are all > > questions, > > > you might want to ask your doctor too! > > > > > > > > Beth > > > > Age 48 Fibrotic NSIP 06/06 > > > > > > > > Change everything. Love and Forgive > > > > > > > > > > > > > > > > > > > > > > > > Couple of questions > > > > > > > > > > > > My first question is pretty dumb -- I get the digest and I think > > > I'm seeing the same postings. Is there a " right " way to read > > > them or should I subscribe to individual e-mails? I have yet to figure > > > out how the list works--maybe it's just my foggy brain. > > > > My next question is more on topic regarding sat levels. I am on 6L > > > continuous on exertion which is what I use around the house--I don't > > > bother turning it up and down depending on what I'm doing. If > > > I'm doing something particularly exerting, my sats might drop as low > > > as 79 . I usually sit down, get the reading off the oximeter, and > > within > > > a minute or less they come back up to 90 or above. Is this the way it > > is > > > for you or do your sats stay down for a long while? > > > > And lastly (I saved up my questions J) since having that VATS lung > > > biopsy I have been much more shorter of breath, which I've told my > > > dr. I may have needed some o2 before the biopsy (because I keep > > denying > > > what the doc was telling me) but now it's worse. I wish I hadn't > > > had the biopsy. Have others felt that way. > > > > Sorry I went on so long, but would appreciate your comments. > > > > Sue D. > > > > 62 ,Fibrotic NSIP dx 9/07, VA > > > > > > > > > > > > > > >-----------------------------------------------------------------------\ - > > > >No virus found in this incoming message. > >Checked by AVG. > >Version: 7.5.519 / Virus Database: 269.22.13/1375 - Release Date: 4/12/2008 11:32 AM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Ohhhh dear....you asked! Bruce should be weird balls! Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Couple of questions>>> My first question is pretty dumb -- I get the digest and I thinkI'm seeing the same postings. Is there a "right" way to readthem or should I subscribe to individual e-mails? I have yet to figureout how the list works—maybe it's just my foggy brain.> My next question is more on topic regarding sat levels. I am on 6Lcontinuous on exertion which is what I use around the house--I don'tbother turning it up and down depending on what I'm doing. IfI'm doing something particularly exerting, my sats might drop as lowas 79 . I usually sit down, get the reading off the oximeter, and withina minute or less they come back up to 90 or above. Is this the way it isfor you or do your sats stay down for a long while?> And lastly (I saved up my questions J) since having that VATS lungbiopsy I have been much more shorter of breath, which I've told mydr. I may have needed some o2 before the biopsy (because I keep denyingwhat the doc was telling me) but now it's worse. I wish I hadn'thad the biopsy. Have others felt that way.> Sorry I went on so long, but would appreciate your comments.> Sue D.> 62 ,Fibrotic NSIP dx 9/07, VA> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Z....of course! You guys are weirdos and I'm the oddball. See??? Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Couple of questions> >> >> > My first question is pretty dumb -- I get the digest and I think> I'm seeing the same postings. Is there a "right" way to read> them or should I subscribe to individual e-mails? I have yet to figure> out how the list works—maybe it's just my foggy brain.> > My next question is more on topic regarding sat levels. I am on 6L> continuous on exertion which is what I use around the house--I don't> bother turning it up and down depending on what I'm doing. If> I'm doing something particularly exerting, my sats might drop as low> as 79 . I usually sit down, get the reading off the oximeter, andwithin> a minute or less they come back up to 90 or above. Is this the way itis> for you or do your sats stay down for a long while?> > And lastly (I saved up my questions J) since having that VATS lung> biopsy I have been much more shorter of breath, which I've told my> dr. I may have needed some o2 before the biopsy (because I keepdenying> what the doc was telling me) but now it's worse. I wish I hadn't> had the biopsy. Have others felt that way.> > Sorry I went on so long, but would appreciate your comments.> > Sue D.> > 62 ,Fibrotic NSIP dx 9/07, VA> >> No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.13/1375 - Release Date: 4/12/2008 11:32 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Bruce.... sorry. The devil made me do it! Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Couple of questions>>> My first question is pretty dumb -- I get the digest and I thinkI'm seeing the same postings. Is there a "right" way to readthem or should I subscribe to individual e-mails? I have yet to figureout how the list works—maybe it's just my foggy brain.> My next question is more on topic regarding sat levels. I am on 6Lcontinuous on exertion which is what I use around the house--I don'tbother turning it up and down depending on what I'm doing. IfI'm doing something particularly exerting, my sats might drop as lowas 79 . I usually sit down, get the reading off the oximeter, and withina minute or less they come back up to 90 or above. Is this the way it isfor you or do your sats stay down for a long while?> And lastly (I saved up my questions J) since having that VATS lungbiopsy I have been much more shorter of breath, which I've told mydr. I may have needed some o2 before the biopsy (because I keep denyingwhat the doc was telling me) but now it's worse. I wish I hadn'thad the biopsy. Have others felt that way.> Sorry I went on so long, but would appreciate your comments.> Sue D.> 62 ,Fibrotic NSIP dx 9/07, VA> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Sher I thought it, just didn't say it.....but, now you, you just had to say it.....bad girl....lol > > > > Sue, > > If Sher's a weirdo, then so am I. I get the postings as individual > emails, like Sher it's just easier for me to keep track. I find the > digests difficult to follow and I don't like reading from the web. > > > > I had a lung biopsy nearly two years ago. They attempted VATS but > switched to an open lung biopsy when I had problems with the anesthesia. > I would say I'm in the minority with no lingering problems from the > biopsy. Alot of the people here who have had one describe long lasting > pain, and some a decline in lung function post biopsy. It's invasive > surgery and sometimes our lungs are just too compromised to bounce back > the way we would like them too. I've heard other say the same thing that > you imply, that if you had it to do over again, you wouldn't. > > > > I think all of us over exert at times and our sats fall. If they come > back up quickly as you describe, I wouldn't worry about it. It's > prolonged (more than a few minutes) low O2 levels that can hurt us. > Yours seem to recover very quickly (mine do too). As long as that's the > case, I wouldn't worry too much. But of course these are all questions, > you might want to ask your doctor too! > > > > Beth > > Age 48 Fibrotic NSIP 06/06 > > > > Change everything. Love and Forgive > > > > > > > > > > > > Couple of questions > > > > > > My first question is pretty dumb -- I get the digest and I think > I'm seeing the same postings. Is there a " right " way to read > them or should I subscribe to individual e-mails? I have yet to figure > out how the list works—maybe it's just my foggy brain. > > My next question is more on topic regarding sat levels. I am on 6L > continuous on exertion which is what I use around the house--I don't > bother turning it up and down depending on what I'm doing. If > I'm doing something particularly exerting, my sats might drop as low > as 79 . I usually sit down, get the reading off the oximeter, and within > a minute or less they come back up to 90 or above. Is this the way it is > for you or do your sats stay down for a long while? > > And lastly (I saved up my questions J) since having that VATS lung > biopsy I have been much more shorter of breath, which I've told my > dr. I may have needed some o2 before the biopsy (because I keep denying > what the doc was telling me) but now it's worse. I wish I hadn't > had the biopsy. Have others felt that way. > > Sorry I went on so long, but would appreciate your comments. > > Sue D. > > 62 ,Fibrotic NSIP dx 9/07, VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Bruce....well, that's why we're friends...we can't insult each other seriously! Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Couple of questions> >> >> > My first question is pretty dumb -- I get the digest and I think> I'm seeing the same postings. Is there a "right" way to read> them or should I subscribe to individual e-mails? I have yet to figure> out how the list works—maybe it's just my foggy brain.> > My next question is more on topic regarding sat levels. I am on 6L> continuous on exertion which is what I use around the house--I don't> bother turning it up and down depending on what I'm doing. If> I'm doing something particularly exerting, my sats might drop as low> as 79 . I usually sit down, get the reading off the oximeter, andwithin> a minute or less they come back up to 90 or above. Is this the way itis> for you or do your sats stay down for a long while?> > And lastly (I saved up my questions J) since having that VATS lung> biopsy I have been much more shorter of breath, which I've told my> dr. I may have needed some o2 before the biopsy (because I keepdenying> what the doc was telling me) but now it's worse. I wish I hadn't> had the biopsy. Have others felt that way.> > Sorry I went on so long, but would appreciate your comments.> > Sue D.> > 62 ,Fibrotic NSIP dx 9/07, VA> >> Quote Link to comment Share on other sites More sharing options...
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