Re: Re: nurse in the group?

[Guest guest]

Hello everyone -- I am finally on-line. My kids are here right now, but is there anyone in the support group that is a nurse? Don is having some problems and I have a few questions. I can't wait to get back in the groove of things. K Central Il.Joyce wrote: Sher, As far as we have been told, there is no nurse help approved to assist in the

treatment with Flolan. They told us that they had patients as young as 15 and old as 82 doing it themselves. Well, it is not that easy, let me tell you. Insurance paid for a home health nurse to train us to do sterile dressings, but that was 3 visits. Nurses came several times to train us to mix and administer the medicine. Then we were on our own. Hasn't been fool proof! It is just by the grace of God that I am still alive. It has been a fiasco at times. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of

my hands. Isaiah 49: 15-16 > > > >> > > >> > > > joyce> > > > wishing you the best of luck for the 14th.> > > > i will be crossing my fingers and praying> > > > that it all goes smoothly without incident.> > > >> > > > may> > > >> > >> >> K Central Il Hubby ipf- 2006 As

for me and my house, we will serve the Lord 14 __________________________________________________

[Guest guest]

,

I'm a nurse by education, though I haven't worked as a nurse for quite some time. If there's any way I can help I will without giving medical advice. (that sort of goes without saying).

Ask away.

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Re: Re: nurse in the group?

Hello everyone -- I am finally on-line. My kids are here right now, but is there anyone in the support group that is a nurse? Don is having some problems and I have a few questions.

I can't wait to get back in the groove of things.

K

Central Il.Joyce <janne5303yahoo (DOT) com> wrote:

Sher,

As far as we have been told, there is no nurse help approved to assist in the treatment with Flolan. They told us that they had patients as young as 15 and old as 82 doing it themselves. Well, it is not that easy, let me tell you. Insurance paid for a home health nurse to train us to do sterile dressings, but that was 3 visits. Nurses came several times to train us to mix and administer the medicine. Then we were on our own. Hasn't been fool proof!

It is just by the grace of God that I am still alive. It has been a fiasco at times.

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 > > > >> > > >> > > > joyce> > > >

wishing you the best of luck for the 14th.> > > > i will be crossing my fingers and praying> > > > that it all goes smoothly without incident.> > > >> > > > may> > > >> > >> >>

K

Central Il

Hubby ipf- 2006

As for me and my house, we will serve the Lord

14

____________ _________ _________ _________ _________ __

[Guest guest]

Terrific!!!!! I knew someone could help. Don has irregular red/brown spots from the size of a pin prick to the size of a dime on his arms. They look like blood bruises. They are numerous. I wonder if it could be the prednisone, or even the Immuran. They just came 3 or 4 days ago. Do you think it is something we need to be worried about? K Central Il Beth wrote: , I'm a nurse by education, though I haven't worked as a nurse for quite some time. If there's any way I can help I will without giving medical advice. (that sort of goes without saying). Ask away. Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Re: Re: nurse in the group? Hello everyone -- I am finally

on-line. My kids are here right now, but is there anyone in the support group that is a nurse? Don is having some problems and I have a few questions. I can't wait to get back in the groove of things. K Central Il.Joyce <janne5303yahoo (DOT) com> wrote: Sher, As far as we have been told, there is no nurse help approved to assist in the treatment with Flolan. They told us that they had patients as young as 15 and old as 82 doing it themselves. Well, it is not that easy, let me tell you. Insurance paid for a home health nurse to train us to do sterile dressings, but that was 3 visits. Nurses came several times to train us to mix and administer the medicine. Then we

were on our own. Hasn't been fool proof! It is just by the grace of God that I am still alive. It has been a fiasco at times. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 > > > >> > > >> > > > joyce> > > > wishing you the best of luck for the 14th.> > > > i will be crossing my fingers and praying> > > > that it all goes smoothly without incident.> > > >> > > > may> > > >> > >> >> K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 ____________ _________ _________ _________ _________ __

[Guest guest]

,

What I can tell you (and this has nothing to do with being a nurse) is that when I was on prednisone I bruised very easily and did get some spots like that. especially on my arms and legs. Are they painful? And do they seem to be getting more numerous rapidly? If they are just there and they don't hurt, I would just wait till morning and then give the doctor a call and ask. When I was on pred, the bruises would come and go seemingly unprovoked. I don't know if the Immuran has anything to do with it, as I was never on it.

If Don is in pain or if they are multiplying rapidly, you might want to try to get in touch with a doctor today.

Hope that helps!

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Re: Re: nurse in the group?

Hello everyone -- I am finally on-line. My kids are here right now, but is there anyone in the support group that is a nurse? Don is having some problems and I have a few questions.

I can't wait to get back in the groove of things.

K

Central Il.Joyce <janne5303yahoo (DOT) com> wrote:

Sher,

As far as we have been told, there is no nurse help approved to assist in the treatment with Flolan. They told us that they had patients as young as 15 and old as 82 doing it themselves. Well, it is not that easy, let me tell you. Insurance paid for a home health nurse to train us to do sterile dressings, but that was 3 visits. Nurses came several times to train us to mix and administer the medicine. Then we were on our own. Hasn't been fool proof!

It is just by the grace of God that I am still alive. It has been a fiasco at times.

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 > > > >> > > >> > > > joyce> > > >

wishing you the best of luck for the 14th.> > > > i will be crossing my fingers and praying> > > > that it all goes smoothly without incident.> > > >> > > > may> > > >> > >> >>

K

Central Il

Hubby ipf- 2006

As for me and my house, we will serve the Lord

14

____________ _________ _________ _________ _________ __