Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Steve, Something occured to me and I thought I'd mention it. Has anyone mentioned pulmonary rehab to you? If not you might want to ask your doctors about it and see if they think it would be a good idea. It would give you a place to exercise under medical supervision and while you're doing that they'll be monitoring your sats. They may indeed find that under exertion (more than just the exertion of a 6 minute walk) that your sats drop below the 88 threshold. In addition you'll learn things about living with this marvelous disease and keeping yourself healthy. The "catch 22" is knowing you should lose weight and yet not being able to exercise comfortably. When I went to rehab in the summer of 2006 I was on 4-5 liters of O2 for exertion. However it was a few visits before they determined that in orfer to be able to exercise safely I needed 12 liter of O2 to keep my sats above 90. My needs being that high were something no one expected and if I hadn't gone to rehab I would not have known. You may not need O2 for your normal everyday activities but you may need it for exercise or for doing things that are somewhat more strenuous. As I said, this is just a thought, from one of the resident "mother hens". Take it for what it's worth. Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Beth, I am starting my pulm rehab on Jun28 at a hospital in Auburn, WA. They have quite a waiting list. Why the doctors took so long for the referral is any ones guess. But I'm looking forward to it. Thanks again. Steve59 from WA IPF 2006 > >Reply-To: Breathe-Support >To: Breathe-Support >Subject: Steve W--A thought >Date: Wed, 9 Apr 2008 17:12:45 -0700 (PDT) > >Steve, >Something occured to me and I thought I'd mention it. Has anyone mentioned >pulmonary rehab to you? If not you might want to ask your doctors about it >and see if they think it would be a good idea. It would give you a place to >exercise under medical supervision and while you're doing that they'll be >monitoring your sats. They may indeed find that under exertion (more than >just the exertion of a 6 minute walk) that your sats drop below the 88 >threshold. In addition you'll learn things about living with this marvelous >disease and keeping yourself healthy. >The " catch 22 " is knowing you should lose weight and yet not being able to >exercise comfortably. When I went to rehab in the summer of 2006 I was on >4-5 liters of O2 for exertion. However it was a few visits before they >determined that in orfer to be able to exercise safely I needed 12 liter of >O2 to keep my sats above 90. My needs being that high were something no one >expected and if I hadn't gone to rehab I would not have known. >You may not need O2 for your normal everyday activities but you may need it >for exercise or for doing things that are somewhat more strenuous. > >As I said, this is just a thought, from one of the resident " mother hens " . >Take it for what it's worth. > > >Beth >Age 48 Fibrotic NSIP 06/06 > >Change everything. Love and Forgive > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Steve, That's great. I think you'll find it a really great experience! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Steve W--A thought>Date: Wed, 9 Apr 2008 17:12:45 -0700 (PDT)>>Steve,>Something occured to me and I thought I'd mention it. Has anyone mentioned >pulmonary rehab to you? If not you might want to ask your doctors about it >and see if they think it would be a good idea. It would give you a place to >exercise under medical supervision and while you're doing that they'll be >monitoring your sats. They may indeed find that under exertion (more than >just the exertion of a 6 minute walk) that your sats drop below the 88 >threshold. In addition you'll learn things about living with this marvelous >disease and keeping yourself healthy.>The "catch 22" is knowing you should lose weight and yet not being able to >exercise comfortably. When I went to rehab in the summer of 2006 I was on >4-5 liters of O2 for exertion. However it was a few visits before they >determined that in orfer to be able to exercise safely I needed 12 liter of >O2 to keep my sats above 90. My needs being that high were something no one >expected and if I hadn't gone to rehab I would not have known.>You may not need O2 for your normal everyday activities but you may need it >for exercise or for doing things that are somewhat more strenuous.>>As I said, this is just a thought, from one of the resident "mother hens". >Take it for what it's worth.>>>Beth>Age 48 Fibrotic NSIP 06/06>>Change everything. Love and Forgive>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Steve...I've been to rehab and I'm currently waiting to go back. Being monitored all the time by an RT makes me feel secure. I'm hoping to get a baseline, more or less, so I can walk on our treadmill here at home. June does seem a long wait! I'm told they have to wait for one to complete rehab so there is a vacancy for the next one. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Steve W--A thought>Date: Wed, 9 Apr 2008 17:12:45 -0700 (PDT)>>Steve,>Something occured to me and I thought I'd mention it. Has anyone mentioned >pulmonary rehab to you? If not you might want to ask your doctors about it >and see if they think it would be a good idea. It would give you a place to >exercise under medical supervision and while you're doing that they'll be >monitoring your sats. They may indeed find that under exertion (more than >just the exertion of a 6 minute walk) that your sats drop below the 88 >threshold. In addition you'll learn things about living with this marvelous >disease and keeping yourself healthy.>The "catch 22" is knowing you should lose weight and yet not being able to >exercise comfortably. When I went to rehab in the summer of 2006 I was on >4-5 liters of O2 for exertion. However it was a few visits before they >determined that in orfer to be able to exercise safely I needed 12 liter of >O2 to keep my sats above 90. My needs being that high were something no one >expected and if I hadn't gone to rehab I would not have known.>You may not need O2 for your normal everyday activities but you may need it >for exercise or for doing things that are somewhat more strenuous.>>As I said, this is just a thought, from one of the resident "mother hens". >Take it for what it's worth.>>>Beth>Age 48 Fibrotic NSIP 06/06>>Change everything. Love and Forgive>> Quote Link to comment Share on other sites More sharing options...
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