Re: (Breathe Support) My dr visit ,my blog and my brother

[Guest guest]

Vicky...oh how lucky you are to have such a wonderful loving brother. I remember our conversation about him and how much you love each other.

I was beginning to be afraid the depression may have raised it's ugly head again and I gave it 'till today and was going to call tomorrow....I will call tomorrow. It's to late now.

Doggone it Vickie, you stopped posting and you changed....your first few posts after being off for so long were so cheerful. Ya come on back now, ya hear me? We need you too. You've been around a couple of years and know a lot of us.

I know how tired you get of just dealing with it all. I won't let you throw the baby out with the bath water! We can get through it together Vickie.

Gwynnie is fighting her way "back" and Joyce will too and you can too. Did you read the mail from Gayleen? If not, see if you can find it. Wow, what she has been through. It doesn't mean some of us don't post because there are others who have it "worse"...we need to cheer each other along...wherever we are. Seeing your posts Vickie, help me because I remember how much you have been through. Don't give up!

I'll call you tomorrow...around noon your time so I know you'll be up.

A big hug to you.

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

(Breathe Support) My dr visit ,my blog and my brother

HI everyone, I havent posted too much lately, I've been having so much pain, shortness of breath and depression I didn't wanna bring anyone down. Besides, what Joyce is dealing with, far out weighs anything I have to say. First I do want to say how happy I am for Gwynne, I just cried when I saw she got the call, I'm so happy for her.

As for me, my dr had ordered full bloodwork and a HRCT. I went to see him today to get the results. MY brother went with me as my husband had to work. Come to find out, my bloodwork has improved, my breathing is a little worse, a few new spots on my lungs but mainly inflamation which is why I hurt and am having trouble breathing. So he put me on 30mg of Prednisone for 3 days, then 25, then to stay at 20. I am a responder to steroids really well. It made me feel good mentally just to know I was going to start feeling better. But the main reason I'm writing this to you is to show what a strong bond and true love exsists between my brother and I.

The following is what I posted on my space page and my brothers reply.

Thursday, April 10, 2008

Let Me Go Current mood: sick Category: Life

Hi everyone, guess you can tell by my headline what I want. I'm so tired of the pain, the being tired and exhausted all the time. I cant even shower myself and get dressed by myself. I feel like I'm slowly suffocating to death, which I guess is what I'm doing. I had bloodwork done and a High Resolution cat scan done and I see my specialist on Monday. If he says I am worse, I want to be admitted into the hosp and just let me slip away quietly. Oh it hurts so much to think about leaving my family but I don't think I can take anymore. I don't tell many people when I'm in a lot of pain. My husband sees it daily, he even admitted it tonite he could see me getting worse. My brother believes me too, he knows I really do hurt. I call him a lot and I know he stresses out easy so I shouldnt but he's my brother, he's been there from the beginning, thats why I have pictures on here of him holding me when I was a baby. I see people walking around with no oxygen and I think , Do they know or even realize how lucky they are? I don't know why this happened to me, it's a horrible monster of a disease, it eats away at your body and mind. But I'm not letting it get my soul, that belongs to God. I will let ya'll know what my dr tells me when I see him Monday. I love you all.

His reply..........

To my sweet, beautiful, loving. caring and most of all My Sissy. I love you soo much. I want you to know how much you have helped me in my life. You always belive in me even when I did not belive in myself. You always have an answer to a question that I trust and find comfort in your answer. If you only knew how special of a person you are. You have always been my hero too. Not just because you are my sister, but the way you have the respect from everyone that knows you. You are rich in so many ways. You have a Husband that loves you so much. Your children, Mom would be very proud of you. Thay are great kids and will do well. You have made a difference. And that is something that makes your life a huge suscess. You have a lot to be proud of Sissy. You are the braveist person I ever met. You live with this disesise and do it with Faith, intergity and still help so many others weather its in your support group or your family and friends. Again I want to say how proud of you I am.It seems like yesterday we were going to the Doctor and finding out the awfull news. As I have told you before my hero is Pope and the way he faced his pain and illness. Well Sis, you have done it just as well. Only God knows why you, but I truely belive it may be how you have touched so many people including me and my family. I will see you Monday, try to enjoy the time with Jean. Call me anytime, I mean it. I love youPark

Have you ever seen such love for a sister from a brother? I cried soooooooooooo hard when I read that, but it was a good cry. And if you read this , and he may cause hes a member of this group, I love you , with an undying forever kind of love. I will be here for you until I'm not here anymore, I love you bubby.....your sissy.

Vicky81856 MI Idiopathic Pulmonary Hemosiderosis/Pulmonary Fibrosis/COPD 4/06

P.S. Beth really touched me in her post, I'm gonna start living my life too instead of just surviving it.

It's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

Vicky, Thank you for sharing such private

thoughts from you and your wonderful brother!

You are so fortunate to have both your husband and brother as loving

support.

We are all lucky to have you!

When your bright pink post shows up we all are thrilled to see your

words.

As one of us recently said,..." Keep on keeping on"

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna be

iron like a lion in Zion” Bob Marley

Ladyvic1@... wrote:

HI everyone, I havent posted too much lately, I've been

having so much pain, shortness of breath and depression I didn't wanna

bring anyone down. Besides, what Joyce is dealing with, far out weighs

anything I have to say. First I do want to say how happy I am for

Gwynne, I just cried when I saw she got the call, I'm so happy for her.

As for me, my dr had ordered full bloodwork and a HRCT.

I went to see him today to get the results. MY brother went with me as

my husband had to work. Come to find out, my bloodwork has improved, my

breathing is a little worse, a few new spots on my lungs but mainly

inflamation which is why I hurt and am having trouble breathing. So he

put me on 30mg of Prednisone for 3 days, then 25, then to stay at 20. I

am a responder to steroids really well. It made me feel good mentally

just to know I was going to start feeling better. But the main reason

I'm writing this to you is to show what a strong bond and true love

exsists between my brother and I.

The following is what I posted on my space page and my

brothers reply.

Thursday, April 10, 2008

Let Me Go

Current mood: sick

Category: Life

Hi everyone, guess you can tell

by my headline what I want. I'm so tired of the pain, the being tired

and exhausted all the time. I cant even shower myself and get dressed

by myself. I feel like I'm slowly suffocating to death, which I guess

is what I'm doing. I had bloodwork done and a High Resolution cat scan

done and I see my specialist on Monday. If he says I am worse, I want

to be admitted into the hosp and just let me slip away quietly. Oh it

hurts so much to think about leaving my family but I don't think I can

take anymore. I don't tell many people when I'm in a lot of pain. My

husband sees it daily, he even admitted it tonite he could see me

getting worse. My brother believes me too, he knows I really do hurt. I

call him a lot and I know he stresses out easy so I shouldnt but he's

my brother, he's been there from the beginning, thats why I have

pictures on here of him holding me when I was a baby. I see people

walking around with no oxygen and I think , Do they know or even

realize how lucky they are? I don't know why this happened to me, it's

a horrible monster of a disease, it eats away at your body and mind.

But I'm not letting it get my soul, that belongs to God. I will let

ya'll know what my dr tells me when I see him Monday. I love you all.

His reply..........

To my sweet, beautiful, loving.

caring and most of all My Sissy. I love you soo much. I want you to

know how much you have helped me in my life. You always belive in me

even when I did not belive in myself. You always have an answer to a

question that I trust and find comfort in your answer. If you only knew

how special of a person you are. You have always been my hero too. Not

just because you are my sister, but the way you have the respect from

everyone that knows you. You are rich in so many ways. You have a

Husband that loves you so much. Your children, Mom would be very proud

of you. Thay are great kids and will do well. You have made a

difference. And that is something that makes your life a huge suscess.

You have a lot to be proud of Sissy. You are the braveist person I ever

met. You live with this disesise and do it with Faith, intergity and

still help so many others weather its in your support group or your

family and friends. Again I want to say how proud of you I am.

It seems like yesterday we were going to the Doctor and finding out the

awfull news. As I have told you before my hero is Pope and

the way he faced his pain and illness. Well Sis, you have done it just

as well. Only God knows why you, but I truely belive it may be how you

have touched so many people including me and my family. I will see you

Monday, try to enjoy the time with Jean. Call me anytime, I mean it. I

love you

Park

Have you ever

seen such love for a sister from a brother? I cried soooooooooooo hard

when I read that, but it was a good cry. And if you read this ,

and he may cause hes a member of this group, I love you , with an

undying forever kind of love. I will be here for you until I'm not here

anymore, I love you bubby.....your sissy.

Vicky81856 MI

Idiopathic Pulmonary Hemosiderosis/Pulmonary Fibrosis/COPD 4/06

P.S. Beth

really touched me in her post, I'm gonna start living my life too

instead of just surviving it.

It's Tax Time! Get tips, forms and advice on AOL Money Finance.

No virus found in this incoming message.

Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM

[Guest guest]

Dear Vicky,

has put it so well...I was going to write you a longer reply but my Hubby is asking for HIS turn at Cyberspace Time.....I've got 2 brothers but don't enjoy that sense of closeness with either...or my sister for that matter! Just because people are siblings it doesn't necessarily make them close... I'm happy for you both that you have that.. it's precious!

in Oz

> > > *HI everyone, I havent posted too much lately, I've been having so > > much pain, shortness of breath and depression I didn't wanna bring > > anyone down. Besides, what Joyce is dealing with, far out weighs > > anything I have to say. First I do want to say how happy I am for > > Gwynne, I just cried when I saw she got the call, I'm so happy for her. *> > *As for me, my dr had ordered full bloodwork and a HRCT. I went to see > > him today to get the results. MY brother went with me as my husband > > had to work. Come to find out, my bloodwork has improved, my breathing > > is a little worse, a few new spots on my lungs but mainly inflamation > > which is why I hurt and am having trouble breathing. So he put me on > > 30mg of Prednisone for 3 days, then 25, then to stay at 20. I am a > > responder to steroids really well. It made me feel good mentally just > > to know I was going to start feeling better. But the main reason I'm > > writing this to you is to show what a strong bond and true love > > exsists between my brother and I. *> > *The following is what I posted on my space page and my brothers reply. *> > ** > >> > Thursday, April 10, 2008> >> > > >> > Let Me Go> > Current mood: sick> > Category: Life > > <http://blog.myspace.com/index.cfm?fuseaction=blog.viewCategory & FriendID=75598839 & BlogCategoryID=12> > >> >> > *Hi everyone, guess you can tell by my headline what I want. I'm so > > tired of the pain, the being tired and exhausted all the time. I cant > > even shower myself and get dressed by myself. I feel like I'm slowly > > suffocating to death, which I guess is what I'm doing. I had bloodwork > > done and a High Resolution cat scan done and I see my specialist on > > Monday. If he says I am worse, I want to be admitted into the hosp and > > just let me slip away quietly. Oh it hurts so much to think about > > leaving my family but I don't think I can take anymore. I don't tell > > many people when I'm in a lot of pain. My husband sees it daily, he > > even admitted it tonite he could see me getting worse. My brother > > believes me too, he knows I really do hurt. I call him a lot and I > > know he stresses out easy so I shouldnt but he's my brother, he's > > been there from the beginning, thats why I have pictures on here of > > him holding me when I was a baby. I see people walking around with no > > oxygen and I think , Do they know or even realize how lucky they are? > > I don't know why this happened to me, it's a horrible monster of a > > disease, it eats away at your body and mind. But I'm not letting it > > get my soul, that belongs to God. I will let ya'll know what my dr > > tells me when I see him Monday. I love you all. *> >> > *His reply..........*> >> > *> >> > To my sweet, beautiful, loving. caring and most of all My Sissy. I > > love you soo much. I want you to know how much you have helped me in > > my life. You always belive in me even when I did not belive in myself. > > You always have an answer to a question that I trust and find comfort > > in your answer. If you only knew how special of a person you are. You > > have always been my hero too. Not just because you are my sister, but > > the way you have the respect from everyone that knows you. You are > > rich in so many ways. You have a Husband that loves you so much. Your > > children, Mom would be very proud of you. Thay are great kids and will > > do well. You have made a difference. And that is something that makes > > your life a huge suscess. You have a lot to be proud of Sissy. You are > > the braveist person I ever met. You live with this disesise and do it > > with Faith, intergity and still help so many others weather its in > > your support group or your family and friends. Again I want to say how > > proud of you I am.> > It seems like yesterday we were going to the Doctor and finding out > > the awfull news. As I have told you before my hero is Pope > > and the way he faced his pain and illness. Well Sis, you have done it > > just as well. Only God knows why you, but I truely belive it may be > > how you have touched so many people including me and my family. I will > > see you Monday, try to enjoy the time with Jean. Call me anytime, I > > mean it. I love you> > Park> >> > Have you ever seen such love for a sister from a brother? I cried > > soooooooooooo hard when I read that, but it was a good cry. And if you > > read this , and he may cause hes a member of this group, I love > > you , with an undying forever kind of love. I will be here for > > you until I'm not here anymore, I love you bubby.....your sissy.> >> > Vicky81856 MI Idiopathic Pulmonary Hemosiderosis/Pulmonary > > Fibrosis/COPD 4/06> >> > P.S. Beth really touched me in her post, I'm gonna start living my > > life too instead of just surviving it.> >> > > >> > *> >> > ** > > ** > >> >> >> > ------------------------------------------------------------------------> > It's Tax Time! Get tips, forms and advice on AOL Money Finance > > <http://money.aol.com/tax?NCID=aolcmp00300000002850>.> > > >> >------------------------------------------------------------------------> >> >No virus found in this incoming message.> >Checked by AVG. > >Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM> > > >>

[Guest guest]

Vicky...whoops, sorry, I misspelled your name. I know better...my fingers get going ahead of my brain!

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Re: (Breathe Support) My dr visit ,my blog and my brother

Vicky, Thank you for sharing such private thoughts from you and your wonderful brother!You are so fortunate to have both your husband and brother as loving support.We are all lucky to have you!When your bright pink post shows up we all are thrilled to see your words.As one of us recently said,..." Keep on keeping on"

Z 64, fibriotic NSIP/o5/PA

And “mild” PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

“I’m gonna be iron like a lion in Zion” Bob Marley

<!--[if !supportEmptyParas]--> <!--[endif]-->

<!--[if !supportEmptyParas]--> <!--[endif]-->Ladyvic1aol wrote:

HI everyone, I havent posted too much lately, I've been having so much pain, shortness of breath and depression I didn't wanna bring anyone down. Besides, what Joyce is dealing with, far out weighs anything I have to say. First I do want to say how happy I am for Gwynne, I just cried when I saw she got the call, I'm so happy for her.

As for me, my dr had ordered full bloodwork and a HRCT. I went to see him today to get the results. MY brother went with me as my husband had to work. Come to find out, my bloodwork has improved, my breathing is a little worse, a few new spots on my lungs but mainly inflamation which is why I hurt and am having trouble breathing. So he put me on 30mg of Prednisone for 3 days, then 25, then to stay at 20. I am a responder to steroids really well. It made me feel good mentally just to know I was going to start feeling better. But the main reason I'm writing this to you is to show what a strong bond and true love exsists between my brother and I.

The following is what I posted on my space page and my brothers reply.

Thursday, April 10, 2008

Let Me Go Current mood: sick Category: Life

Hi everyone, guess you can tell by my headline what I want. I'm so tired of the pain, the being tired and exhausted all the time. I cant even shower myself and get dressed by myself. I feel like I'm slowly suffocating to death, which I guess is what I'm doing. I had bloodwork done and a High Resolution cat scan done and I see my specialist on Monday. If he says I am worse, I want to be admitted into the hosp and just let me slip away quietly. Oh it hurts so much to think about leaving my family but I don't think I can take anymore. I don't tell many people when I'm in a lot of pain. My husband sees it daily, he even admitted it tonite he could see me getting worse. My brother believes me too, he knows I really do hurt. I call him a lot and I know he stresses out easy so I shouldnt but he's my brother, he's been there from the beginning, thats why I have pictures on here of him holding me when I was a baby. I see people walking around with no oxygen and I think , Do they know or even realize how lucky they are? I don't know why this happened to me, it's a horrible monster of a disease, it eats away at your body and mind. But I'm not letting it get my soul, that belongs to God. I will let ya'll know what my dr tells me when I see him Monday. I love you all.

His reply..........

To my sweet, beautiful, loving. caring and most of all My Sissy. I love you soo much. I want you to know how much you have helped me in my life. You always belive in me even when I did not belive in myself. You always have an answer to a question that I trust and find comfort in your answer. If you only knew how special of a person you are. You have always been my hero too. Not just because you are my sister, but the way you have the respect from everyone that knows you. You are rich in so many ways. You have a Husband that loves you so much. Your children, Mom would be very proud of you. Thay are great kids and will do well. You have made a difference. And that is something that makes your life a huge suscess. You have a lot to be proud of Sissy. You are the braveist person I ever met. You live with this disesise and do it with Faith, intergity and still help so many others weather its in your support group or your family and friends. Again I want to say how proud of you I am.It seems like yesterday we were going to the Doctor and finding out the awfull news. As I have told you before my hero is Pope and the way he faced his pain and illness. Well Sis, you have done it just as well. Only God knows why you, but I truely belive it may be how you have touched so many people including me and my family. I will see you Monday, try to enjoy the time with Jean. Call me anytime, I mean it. I love youPark

Have you ever seen such love for a sister from a brother? I cried soooooooooooo hard when I read that, but it was a good cry. And if you read this , and he may cause hes a member of this group, I love you , with an undying forever kind of love. I will be here for you until I'm not here anymore, I love you bubby.....your sissy.

Vicky81856 MI Idiopathic Pulmonary Hemosiderosis/Pulmonary Fibrosis/COPD 4/06

P.S. Beth really touched me in her post, I'm gonna start living my life too instead of just surviving it.

It's Tax Time! Get tips, forms and advice on AOL Money Finance.

No virus found in this incoming message.

Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM

[Guest guest]

How are you feeling? I know you over did it yesterday.. Yes I read this.. I love you and call me Wed when you get up. Hope the steroids start working. Keep a close eye on your sugar.

Love

Park

HI everyone, I havent posted too much lately, I've been having so much pain, shortness of breath and depression I didn't wanna bring anyone down. Besides, what Joyce is dealing with, far out weighs anything I have to say. First I do want to say how happy I am for Gwynne, I just cried when I saw she got the call, I'm so happy for her.

As for me, my dr had ordered full bloodwork and a HRCT. I went to see him today to get the results. MY brother went with me as my husband had to work. Come to find out, my bloodwork has improved, my breathing is a little worse, a few new spots on my lungs but mainly inflamation which is why I hurt and am having trouble breathing. So he put me on 30mg of Prednisone for 3 days, then 25, then to stay at 20. I am a responder to steroids really well. It made me feel good mentally just to know I was going to start feeling better. But the main reason I'm writing this to you is to show what a strong bond and true love exsists between my brother and I.

The following is what I posted on my space page and my brothers reply.

Thursday, April 10, 2008

Let Me Go Current mood: sick Category: Life

Hi everyone, guess you can tell by my headline what I want. I'm so tired of the pain, the being tired and exhausted all the time. I cant even shower myself and get dressed by myself. I feel like I'm slowly suffocating to death, which I guess is what I'm doing. I had bloodwork done and a High Resolution cat scan done and I see my specialist on Monday. If he says I am worse, I want to be admitted into the hosp and just let me slip away quietly. Oh it hurts so much to think about leaving my family but I don't think I can take anymore. I don't tell many people when I'm in a lot of pain. My husband sees it daily, he even admitted it tonite he could see me getting worse. My brother believes me too, he knows I really do hurt. I call him a lot and I know he stresses out easy so I shouldnt but he's my brother, he's been there from the beginning, thats why I have pictures on here of him holding me when I was a baby. I see people walking around with no oxygen and I think , Do they know or even realize how lucky they are? I don't know why this happened to me, it's a horrible monster of a disease, it eats away at your body and mind. But I'm not letting it get my soul, that belongs to God. I will let ya'll know what my dr tells me when I see him Monday. I love you all.

His reply..........

To my sweet, beautiful, loving. caring and most of all My Sissy. I love you soo much. I want you to know how much you have helped me in my life. You always belive in me even when I did not belive in myself. You always have an answer to a question that I trust and find comfort in your answer. If you only knew how special of a person you are. You have always been my hero too. Not just because you are my sister, but the way you have the respect from everyone that knows you. You are rich in so many ways. You have a Husband that loves you so much. Your children, Mom would be very proud of you. Thay are great kids and will do well. You have made a difference. And that is something that makes your life a huge suscess. You have a lot to be proud of Sissy. You are the braveist person I ever met. You live with this disesise and do it with Faith, intergity and still help so many others weather its in your support group or your family and friends. Again I want to say how proud of you I am.It seems like yesterday we were going to the Doctor and finding out the awfull news. As I have told you before my hero is Pope and the way he faced his pain and illness. Well Sis, you have done it just as well. Only God knows why you, but I truely belive it may be how you have touched so many people including me and my family. I will see you Monday, try to enjoy the time with Jean. Call me anytime, I mean it. I love youPark

Have you ever seen such love for a sister from a brother? I cried soooooooooooo hard when I read that, but it was a good cry. And if you read this , and he may cause hes a member of this group, I love you , with an undying forever kind of love. I will be here for you until I'm not here anymore, I love you bubby.....your sissy.

Vicky81856 MI Idiopathic Pulmonary Hemosiderosis/Pulmonary Fibrosis/COPD 4/06

P.S. Beth really touched me in her post, I'm gonna start living my life too instead of just surviving it.

It's Tax Time! Get tips, forms and advice on AOL Money Finance.

It's Tax Time! Get tips, forms and advice on AOL Money Finance.