Pred or No Pred; Thank you for responding; Homeopathic Treatment

[Guest guest]

Thank you all for responding. Mama-Sher, your posts always put a

smile on my face.

Ok, The results are in; they vary btw " I will never take PRED "

to " PRED has been a life saver "

My biopsy reports states " chronic interstitial inflammation " . The

nurse made it clear that there was a ton of inflammation but not a

lot of fibrosis in my biopsy. The nurse was adamant (without

telling me what to do) that I get on PRED. Your responses have made

the decision much easier for me. Beth, in particular,

wrote " Part of the disease process that we have is that the

inflammation eventually scars and becomes fibrotic " . Since PRED can

reduce inflammation, I have no choice but to start taking it. Now

if it causes me to lose my hair, I would be really mad.

Another good suggestion was to participate in " Evaluation for

Transplant " . I don't have to commit to it while gaining valuable

information.

I was not able to complete the DLCO part of the PFT in Oct 07. I

would end up coughing. I was asked to attempt the DLCO when I

visited UCSF. At first I refused due to the phantom pain. When the

nurse stressed how important it would be for the panel to know my

diffusion capacity, I gave it a shot. My diffusion capacity came at

38%. I think I can improve upon that number in a few months. This

is based on two main reasons. One, I will be ~6 months away from

smoking. I have not smoked since 2/2/08. Second, I'm hoping that

in a few months I will be free from this phantom pain and perhaps

give a better effort.

Homeopathic Treatment:

What is the consensus on homeopathic treatment? Is anyone being

treated by a homeopathic doctor? Has any one looked into it?

I have received a lot of calls from back home (Pakistan). Many

folks have recommended (with testaments) that I consider homeopathic

treatment. A family member, who is a medical doctor (MBBS), told me

that his wife was diagnosed with interstitial lung disease

approximately fifteen years ago. She has been treated with both,

steroids and the homeopathic treatment. She has maintained her

stats over the years. He recommended that I speak with two

homeopathic doctors. I did. One of those doctors also has an MD.

He sounded very optimistic after reviewing my medical records,

family history, and current symptoms. He projected that with my

current condition I `should' live a fairly normal life for another

20+ yrs. I told him that my Pulmo is giving me " 6 mo – 2 yrs " while

you are making it sound like I have a common cold. So, with a grain

of salt, I would take his prescribed medicine as well. I will

receive the homeopathic medicine in a few days. Thus, I'm eager to

find out if anyone else has already tried homeopathic treatment?

Brett, my kids just turned thirteen. I have a twin boy/girl. My

son is a jock. He stars in baseball, basketball and football. My

daughter is the complete opposite. She is a Barbie doll. She

excels in academia. She has taken my illness very seriously. She

is internet savvy and there is a lot of depressing data out there

when it comes to UIP. I constantly assure her that I will do my

utmost to be around her for as long as I possibly can. My son, on

the other hand, does not show much emotion. He quietly went to his

room when first told of my illness. It was the day I returned from

the hospital. He did not say a word to me for a couple of days. On

third day he comes up to me and says, and I quote " hey dad, I'm

getting tired of you sitting on this sofa; why don't you go walk a

mile or something " , end quote. I don't think he loves me any less

than his sister. It is just hard for us guys to show emotions. I

think daughters in general are more caring. You have a beautiful

daughter. Here is hoping that you are around when she

celebrates her fiftieth birthday.

Dilwala

[Guest guest]

Hi Dilwala, I am one of the biggest prednisone haters on this board. BUT you know you have inflammation, That is why I was put on it in the beginning after diagnosis. So I would strongly advise it. Just lock away all sweets and only eat off small plates. It gives you such an appetite. I gained 70 pounds in 8 weeks.. yep, still fat. or I fluffy. It also comes with a lot of side effects. Try not to stay on it for long periods. Your Dr. will know.All I can tell you is have your DR. give you an anti anxiety medicine. Prednisone messes with your mind too.Now all that happy talk done I want to say something about your son.When he went to his bedroom after being told, I think, like all our children do, he was trying to think of what he could do for you. Well our kids are told exercise and stay healthy so I think he thought he was helping. I  am so sorry your family has to deal with this. Teenagers have such a hard time.Anyhow Just want to tell you that you are not alone, we have all been right where you are. Be sure to let your Dr. know the medicine you start taking and be careful, some don't mix to well.God Bless You, Take care of you.  Love and Prayers, PeggyIPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up." Thank you all for responding. Mama-Sher, your posts always put a smile on my face. Ok, The results are in; they vary btw "I will never take PRED" to "PRED has been a life saver"My biopsy reports states "chronic interstitial inflammation". The nurse made it clear that there was a ton of inflammation but not a lot of fibrosis in my biopsy. The nurse was adamant (without telling me what to do) that I get on PRED. Your responses have made the decision much easier for me. Beth, in particular, wrote "Part of the disease process that we have is that the inflammation eventually scars and becomes fibrotic". Since PRED can reduce inflammation, I have no choice but to start taking it. Now if it causes me to lose my hair, I would be really mad. Another good suggestion was to participate in "Evaluation for Transplant". I don't have to commit to it while gaining valuable information.I was not able to complete the DLCO part of the PFT in Oct 07. I would end up coughing. I was asked to attempt the DLCO when I visited UCSF. At first I refused due to the phantom pain. When the nurse stressed how important it would be for the panel to know my diffusion capacity, I gave it a shot. My diffusion capacity came at 38%. I think I can improve upon that number in a few months. This is based on two main reasons. One, I will be ~6 months away from smoking. I have not smoked since 2/2/08. Second, I'm hoping that in a few months I will be free from this phantom pain and perhaps give a better effort.Homeopathic Treatment:What is the consensus on homeopathic treatment? Is anyone being treated by a homeopathic doctor? Has any one looked into it? I have received a lot of calls from back home (Pakistan). Many folks have recommended (with testaments) that I consider homeopathic treatment. A family member, who is a medical doctor (MBBS), told me that his wife was diagnosed with interstitial lung disease approximately fifteen years ago. She has been treated with both, steroids and the homeopathic treatment. She has maintained her stats over the years. He recommended that I speak with two homeopathic doctors. I did. One of those doctors also has an MD. He sounded very optimistic after reviewing my medical records, family history, and current symptoms. He projected that with my current condition I `should' live a fairly normal life for another 20+ yrs. I told him that my Pulmo is giving me "6 mo – 2 yrs" while you are making it sound like I have a common cold. So, with a grain of salt, I would take his prescribed medicine as well. I will receive the homeopathic medicine in a few days. Thus, I'm eager to find out if anyone else has already tried homeopathic treatment?Brett, my kids just turned thirteen. I have a twin boy/girl. My son is a jock. He stars in baseball, basketball and football. My daughter is the complete opposite. She is a Barbie doll. She excels in academia. She has taken my illness very seriously. She is internet savvy and there is a lot of depressing data out there when it comes to UIP. I constantly assure her that I will do my utmost to be around her for as long as I possibly can. My son, on the other hand, does not show much emotion. He quietly went to his room when first told of my illness. It was the day I returned from the hospital. He did not say a word to me for a couple of days. On third day he comes up to me and says, and I quote "hey dad, I'm getting tired of you sitting on this sofa; why don't you go walk a mile or something", end quote. I don't think he loves me any less than his sister. It is just hard for us guys to show emotions. I think daughters in general are more caring. You have a beautiful daughter. Here is hoping that you are around when she celebrates her fiftieth birthday. Dilwala 

[Guest guest]

Dilwala.... Oh what good news that you quit smoking! Whoo Hoo.... Think of the money you're saving! lol.

Did your son's comment cause you to take a little walk?

I have two daughters, one son.

Lysa is the compassionate, loving and caring one....Zoë is the straight to the point, tell it like it is... it's not as bad as you may think...

(Just like her mom!! ) You're right, they both love us but differently. I'm so glad you have older kids now, they will be such enjoyment..."friends" as well. To a point of course.

I think it's important we talk openly and share our feelings w/our kids. These are the days they will remember!

Isn't this hard though Dilwala! I believe things happen for a reason and I'm trying to think that maybe, through this disease, I can teach my children something they would otherwise not know. God(...Allah? I don't know for you...) knows what they need and I think we are earthly teachers. We will walk through fire for our kids so I can walk through this damned disease!

Love ya Dilwala...regards to your family.

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Re: Pred or No Pred; Thank you for responding; Homeopathic Treatment

Hi Dilwala, I am one of the biggest prednisone haters on this board. BUT you know you have inflammation, That is why I was put on it in the beginning after diagnosis. So I would strongly advise it. Just lock away all sweets and only eat off small plates. It gives you such an appetite. I gained 70 pounds in 8 weeks.. yep, still fat. or I fluffy. It also comes with a lot of side effects. Try not to stay on it for long periods. Your Dr. will know.

All I can tell you is have your DR. give you an anti anxiety medicine. Prednisone messes with your mind too.

Now all that happy talk done I want to say something about your son.

When he went to his bedroom after being told, I think, like all our children do, he was trying to think of what he could do for you. Well our kids are told exercise and stay healthy so I think he thought he was helping. I am so sorry your family has to deal with this. Teenagers have such a hard time.

Anyhow Just want to tell you that you are not alone, we have all been right where you are. Be sure to let your Dr. know the medicine you start taking and be careful, some don't mix to well.

God Bless You, Take care of you.

Love and Prayers, Peggy

IPF 2004, Florida

"Worry looks around,

Sorry looks back,

Faith looks up."

Thank you all for responding. Mama-Sher, your posts always put a smile on my face. Ok, The results are in; they vary btw "I will never take PRED" to "PRED has been a life saver"My biopsy reports states "chronic interstitial inflammation". The nurse made it clear that there was a ton of inflammation but not a lot of fibrosis in my biopsy. The nurse was adamant (without telling me what to do) that I get on PRED. Your responses have made the decision much easier for me. Beth, in particular, wrote "Part of the disease process that we have is that the inflammation eventually scars and becomes fibrotic". Since PRED can reduce inflammation, I have no choice but to start taking it. Now if it causes me to lose my hair, I would be really mad. Another good suggestion was to participate in "Evaluation for Transplant". I don't have to commit to it while gaining valuable information.I was not able to complete the DLCO part of the PFT in Oct 07. I would end up coughing. I was asked to attempt the DLCO when I visited UCSF. At first I refused due to the phantom pain. When the nurse stressed how important it would be for the panel to know my diffusion capacity, I gave it a shot. My diffusion capacity came at 38%. I think I can improve upon that number in a few months. This is based on two main reasons. One, I will be ~6 months away from smoking. I have not smoked since 2/2/08. Second, I'm hoping that in a few months I will be free from this phantom pain and perhaps give a better effort.Homeopathic Treatment:What is the consensus on homeopathic treatment? Is anyone being treated by a homeopathic doctor? Has any one looked into it? I have received a lot of calls from back home (Pakistan). Many folks have recommended (with testaments) that I consider homeopathic treatment. A family member, who is a medical doctor (MBBS), told me that his wife was diagnosed with interstitial lung disease approximately fifteen years ago. She has been treated with both, steroids and the homeopathic treatment. She has maintained her stats over the years. He recommended that I speak with two homeopathic doctors. I did. One of those doctors also has an MD. He sounded very optimistic after reviewing my medical records, family history, and current symptoms. He projected that with my current condition I `should' live a fairly normal life for another 20+ yrs. I told him that my Pulmo is giving me "6 mo – 2 yrs" while you are making it sound like I have a common cold. So, with a grain of salt, I would take his prescribed medicine as well. I will receive the homeopathic medicine in a few days. Thus, I'm eager to find out if anyone else has already tried homeopathic treatment?Brett, my kids just turned thirteen. I have a twin boy/girl. My son is a jock. He stars in baseball, basketball and football. My daughter is the complete opposite. She is a Barbie doll. She excels in academia. She has taken my illness very seriously. She is internet savvy and there is a lot of depressing data out there when it comes to UIP. I constantly assure her that I will do my utmost to be around her for as long as I possibly can. My son, on the other hand, does not show much emotion. He quietly went to his room when first told of my illness. It was the day I returned from the hospital. He did not say a word to me for a couple of days. On third day he comes up to me and says, and I quote "hey dad, I'm getting tired of you sitting on this sofa; why don't you go walk a mile or something", end quote. I don't think he loves me any less than his sister. It is just hard for us guys to show emotions. I think daughters in general are more caring. You have a beautiful daughter. Here is hoping that you are around when she celebrates her fiftieth birthday. Dilwala

[Guest guest]

Diwala,

I have spent literally thousands of dollars on homeopathic treatments and the end result is I am still getting worse each year. I have now gone to three different homeopathic doctors, the last recommended by a friend who was cured of cancer ( she has since died). I have taken expensive vitamins, envibe, xymogen, mona vie, ambresol,chinese lung formula,had my blood tested for food allergies ( $600.00!) foot detoxes, and accupressure and tried several detox diets including the lemonade fast. The only things that have made a difference is giving up coffee ( sorry fellow coffee addicts) and sticking to an anti-inflammatory diet AND!!! prednisone. I too have active inflammation ( along with a lot of scarring) and the prednisone seems to keep it in check. I hate taking it but I don't cough near as much, my lung volume increases from 34% to 60 and the scarring progresses much

slower. Every doctor said that coffee increases inflammation and since I have stopped drinking it I notice an immediate difference if I have a cup. My chest is tighter and I get a dull ache in my lungs. The anti inflammtion diet ( no breads or processed foods) doesn't make a big difference in how I feel but I don't get puffy from the steroids or gain more weight. I think some people get PF and it never progresses while others of us keep getting worse no matter what we do. I do have a theory that it progresses quicker if we are too active. It seems like the younger people with this ( especially those who still work) get worse faster than those who are retired and lead less active lives. I have no proof of this, but since I have quit work and greatly slowed my lifestyle down mine has not been progressing as quick as before. My big goal is to make it to 60. Hope this

helps-

Sarcoid/PF 3/2006 California

Pred or No Pred; Thank you for responding; Homeopathic Treatment

Thank you all for responding. Mama-Sher, your posts always put a smile on my face. Ok, The results are in; they vary btw "I will never take PRED" to "PRED has been a life saver"My biopsy reports states "chronic interstitial inflammation" . The nurse made it clear that there was a ton of inflammation but not a lot of fibrosis in my biopsy. The nurse was adamant (without telling me what to do) that I get on PRED. Your responses have made the decision much easier for me. Beth, in particular, wrote "Part of the disease process that we have is that the inflammation eventually scars and becomes fibrotic". Since PRED can reduce inflammation, I have no choice but to start taking it. Now if it causes me to lose my hair, I would be really mad. Another good suggestion was to participate in "Evaluation for Transplant". I don't have to commit to it while gaining valuable information.I was not able

to complete the DLCO part of the PFT in Oct 07. I would end up coughing. I was asked to attempt the DLCO when I visited UCSF. At first I refused due to the phantom pain. When the nurse stressed how important it would be for the panel to know my diffusion capacity, I gave it a shot. My diffusion capacity came at 38%. I think I can improve upon that number in a few months. This is based on two main reasons. One, I will be ~6 months away from smoking. I have not smoked since 2/2/08. Second, I'm hoping that in a few months I will be free from this phantom pain and perhaps give a better effort.Homeopathic Treatment:What is the consensus on homeopathic treatment? Is anyone being treated by a homeopathic doctor? Has any one looked into it? I have received a lot of calls from back home (Pakistan). Many folks have recommended (with testaments) that I consider homeopathic treatment. A family

member, who is a medical doctor (MBBS), told me that his wife was diagnosed with interstitial lung disease approximately fifteen years ago. She has been treated with both, steroids and the homeopathic treatment. She has maintained her stats over the years. He recommended that I speak with two homeopathic doctors. I did. One of those doctors also has an MD. He sounded very optimistic after reviewing my medical records, family history, and current symptoms. He projected that with my current condition I `should' live a fairly normal life for another 20+ yrs. I told him that my Pulmo is giving me "6 mo – 2 yrs" while you are making it sound like I have a common cold. So, with a grain of salt, I would take his prescribed medicine as well. I will receive the homeopathic medicine in a few days. Thus, I'm eager to find out if anyone else has already tried homeopathic treatment?Brett, my kids just

turned thirteen. I have a twin boy/girl. My son is a jock. He stars in baseball, basketball and football. My daughter is the complete opposite. She is a Barbie doll. She excels in academia. She has taken my illness very seriously. She is internet savvy and there is a lot of depressing data out there when it comes to UIP. I constantly assure her that I will do my utmost to be around her for as long as I possibly can. My son, on the other hand, does not show much emotion. He quietly went to his room when first told of my illness. It was the day I returned from the hospital. He did not say a word to me for a couple of days. On third day he comes up to me and says, and I quote "hey dad, I'm getting tired of you sitting on this sofa; why don't you go walk a mile or something", end quote. I don't think he loves me any less than his sister. It is just hard for us guys to show emotions. I think daughters

in general are more caring. You have a beautiful daughter. Here is hoping that you are around when she celebrates her fiftieth birthday. Dilwala __________________________________________________

[Guest guest]

denise

thanks for this response, i found it very useful.

i too stopped wheat or at least only have a minimal amount.

i also stopped dairy. sometimes i have a roll with boiled

egg which i feel is a real treat and once in a while a bit

of mozzarella or parmesan reggiano. i dont drink coffee and

now, after your reply, i'm glad. i drink my tea black with

no sugar and am so proud of myself for cutting out the ready

meals and processed food this year. i do use a bit of yoghurt.

i am also convinced that if i had stayed on at work i would

have exacerbated my condition faster. exercise, good food,

least stress as possible and for me nac and imuran are working

great. having the oximeter is amazing. yesterday i had to

parallel park (which isn't my forte) and when i'd finished

(it was only six inches further from the sidewalk than andy

would have got it) my sats were very low 80s, a combination

of physical effort and stress.

i found reflexology unblocked my sinuses and i use off the

shelf homeopathic cough and cold remedies as soon as i sense

a cold starting. if i take these fast enough it keeps it

developing.

btw, i loved your flower view. its wonderful.

dilwala

i would be interested to hear what you are recommended and

what it does. will it be ayuveric (sp?).

may uip 0606

glasgow, scotland

>

> Diwala,

> I have spent literally thousands of dollars on homeopathic

treatments and the end result is I am still getting worse each year.

I have now gone to three different homeopathic doctors, the last

recommended by a friend who was cured of cancer ( she has since

died). I have taken expensive vitamins, envibe, xymogen, mona vie,

ambresol,chinese lung formula,had my blood tested for food allergies

( $600.00!) foot detoxes, and accupressure and tried several detox

diets including the lemonade fast. The only things that have made a

difference is giving up coffee ( sorry fellow coffee addicts) and

sticking to an anti-inflammatory diet AND!!! prednisone. I too have

active inflammation ( along with a lot of scarring) and the

prednisone seems to keep it in check. I hate taking it but I don't

cough near as much, my lung volume increases from 34% to 60 and the

scarring progresses much slower. Every doctor said that coffee

increases inflammation and since I have

> stopped drinking it I notice an immediate difference if I have a

cup. My chest is tighter and I get a dull ache in my lungs. The

anti inflammtion diet ( no breads or processed foods) doesn't make a

big difference in how I feel but I don't get puffy from the steroids

or gain more weight. I think some people get PF and it never

progresses while others of us keep getting worse no matter what we

do. I do have a theory that it progresses quicker if we are too

active. It seems like the younger people with this ( especially

those who still work) get worse faster than those who are retired and

lead less active lives. I have no proof of this, but since I have

quit work and greatly slowed my lifestyle down mine has not been

progressing as quick as before. My big goal is to make it to 60.

Hope this helps-

>

>

> Sarcoid/PF 3/2006 California

>

>

>

>

> Pred or No Pred; Thank you for

responding; Homeopathic Treatment

>

> Thank you all for responding. Mama-Sher, your posts always put a

> smile on my face.

> Ok, The results are in; they vary btw " I will never take PRED "

> to " PRED has been a life saver "

> My biopsy reports states " chronic interstitial inflammation " . The

> nurse made it clear that there was a ton of inflammation but not a

> lot of fibrosis in my biopsy. The nurse was adamant (without

> telling me what to do) that I get on PRED. Your responses have made

> the decision much easier for me. Beth, in particular,

> wrote " Part of the disease process that we have is that the

> inflammation eventually scars and becomes fibrotic " . Since PRED can

> reduce inflammation, I have no choice but to start taking it. Now

> if it causes me to lose my hair, I would be really mad.

> Another good suggestion was to participate in " Evaluation for

> Transplant " . I don't have to commit to it while gaining valuable

> information.

> I was not able to complete the DLCO part of the PFT in Oct 07. I

> would end up coughing. I was asked to attempt the DLCO when I

> visited UCSF. At first I refused due to the phantom pain. When the

> nurse stressed how important it would be for the panel to know my

> diffusion capacity, I gave it a shot. My diffusion capacity came at

> 38%. I think I can improve upon that number in a few months. This

> is based on two main reasons. One, I will be ~6 months away from

> smoking. I have not smoked since 2/2/08. Second, I'm hoping that

> in a few months I will be free from this phantom pain and perhaps

> give a better effort.

>

> Homeopathic Treatment:

>

> What is the consensus on homeopathic treatment? Is anyone being

> treated by a homeopathic doctor? Has any one looked into it?

> I have received a lot of calls from back home (Pakistan). Many

> folks have recommended (with testaments) that I consider

homeopathic

> treatment. A family member, who is a medical doctor (MBBS), told me

> that his wife was diagnosed with interstitial lung disease

> approximately fifteen years ago. She has been treated with both,

> steroids and the homeopathic treatment. She has maintained her

> stats over the years. He recommended that I speak with two

> homeopathic doctors. I did. One of those doctors also has an MD.

> He sounded very optimistic after reviewing my medical records,

> family history, and current symptoms. He projected that with my

> current condition I `should' live a fairly normal life for another

> 20+ yrs. I told him that my Pulmo is giving me " 6 mo – 2 yrs " while

> you are making it sound like I have a common cold. So, with a grain

> of salt, I would take his prescribed medicine as well. I will

> receive the homeopathic medicine in a few days. Thus, I'm eager to

> find out if anyone else has already tried homeopathic treatment?

>

> Brett, my kids just turned thirteen. I have a twin boy/girl. My

> son is a jock. He stars in baseball, basketball and football. My

> daughter is the complete opposite. She is a Barbie doll. She

> excels in academia. She has taken my illness very seriously. She

> is internet savvy and there is a lot of depressing data out there

> when it comes to UIP. I constantly assure her that I will do my

> utmost to be around her for as long as I possibly can. My son, on

> the other hand, does not show much emotion. He quietly went to his

> room when first told of my illness. It was the day I returned from

> the hospital. He did not say a word to me for a couple of days. On

> third day he comes up to me and says, and I quote " hey dad, I'm

> getting tired of you sitting on this sofa; why don't you go walk a

> mile or something " , end quote. I don't think he loves me any less

> than his sister. It is just hard for us guys to show emotions. I

> think daughters in general are more caring. You have a beautiful

> daughter. Here is hoping that you are around when she

> celebrates her fiftieth birthday.

>

> Dilwala

>

>

>

>

> __________________________________________________

>

[Guest guest]

, May, , Peggy, Mama-Sher, Others,

Thank you for updates. Based on your comments, I need to make some

serious changes in my life:

You say don't be too active; I remain very active. My avg day

remains from 5 a.m. – 10:30 p.m. I manage to get the `to do's'

done but per your experiences I'm hurting myself in the process!

You say don't drink coffee; I drink roughly 5 cups of coffee (black)

per day. In addition to that I drink 1-2 cups of tea/day. I have

done this for years. No more, my last cup of coffee and/or tea was

four days ago.

You say limit dairy products; I start my day off with a tall glass

of low fat milk. Then it is coffee for next 3-4 hours. Then it is

water, fruit and veggies for next few hours. My last glass of milk

was on Friday a.m.

You say stay away from breads, process foods; I mainly eat bread,

rice and curry at home. My wife is an excellent cook which makes it

hard to stick to just my portion. I'm working on this part as

well. This one is hard as it excludes a lot of stuff.

What I'm having a difficult time with is the `activity' part. The

leisure activities such as kids' sports are fun, and somewhat

healthy (exercise). The work related activities are enjoyable but

totally stressful. However, there are a lot of financial

implications tied with work related activities. I am now entering

the `prime' earning stage of my life. How ironic it is to stop

working now....... It seems like such a cruel joke…but since I

cannot change the hand God dealt me, I have no choice but to adapt.

I spoke with my PC about it yesterday; he agreed and will support

me. I have an appt with the Pulmo on the 22nd. He has already told

me to start making plans so I'm certain that he will support my

decision as well. So, how do I go about the disability process?

What are the steps, in order, that one must undertake? What happens

to my family's health insurance needs? I'm sure there will be many

more questions. I have started to gather information about the

process. I could certainly use someone's help who has been through

the process, particularly in California.

Concerning the homeopathic treatment, I'm not sure what I'm getting

as far as the type/name of the medicine. I will share the info once

I have the medicine. It is not pricy; it is about $40 for three

months supply. This doctor, who also has an MD, prescribed the

medicine for three months and then repeat the PFT. He thinks that

there will be considerable improvement.

, here is hoping that you make it to 60 plus an additional 20

years for helping me make a crucial decision.

Dilwala, 47, UIP 2/08, Southern California

>

> Diwala,

> I have spent literally thousands of dollars on homeopathic

treatments and the end result is I am still getting worse each

year. I have now gone to three different homeopathic doctors, the

last recommended by a friend who was cured of cancer ( she has since

died). I have taken expensive vitamins, envibe, xymogen, mona vie,

ambresol,chinese lung formula,had my blood tested for food allergies

( $600.00!) foot detoxes, and accupressure and tried several detox

diets including the lemonade fast. The only things that have made a

difference is giving up coffee ( sorry fellow coffee addicts) and

sticking to an anti-inflammatory diet AND!!! prednisone. I too have

active inflammation ( along with a lot of scarring) and the

prednisone seems to keep it in check. I hate taking it but I don't

cough near as much, my lung volume increases from 34% to 60 and the

scarring progresses much slower. Every doctor said that coffee

increases inflammation and since I have

> stopped drinking it I notice an immediate difference if I have a

cup. My chest is tighter and I get a dull ache in my lungs. The

anti inflammtion diet ( no breads or processed foods) doesn't make a

big difference in how I feel but I don't get puffy from the steroids

or gain more weight. I think some people get PF and it never

progresses while others of us keep getting worse no matter what we

do. I do have a theory that it progresses quicker if we are too

active. It seems like the younger people with this ( especially

those who still work) get worse faster than those who are retired

and lead less active lives. I have no proof of this, but since I

have quit work and greatly slowed my lifestyle down mine has not

been progressing as quick as before. My big goal is to make it to

60. Hope this helps-

>

>

> Sarcoid/PF 3/2006 California

>

>

>

>

> Pred or No Pred; Thank you for

responding; Homeopathic Treatment

>

> Thank you all for responding. Mama-Sher, your posts always put a

> smile on my face.

> Ok, The results are in; they vary btw " I will never take PRED "

> to " PRED has been a life saver "

> My biopsy reports states " chronic interstitial inflammation " . The

> nurse made it clear that there was a ton of inflammation but not a

> lot of fibrosis in my biopsy. The nurse was adamant (without

> telling me what to do) that I get on PRED. Your responses have

made

> the decision much easier for me. Beth, in particular,

> wrote " Part of the disease process that we have is that the

> inflammation eventually scars and becomes fibrotic " . Since PRED

can

> reduce inflammation, I have no choice but to start taking it. Now

> if it causes me to lose my hair, I would be really mad.

> Another good suggestion was to participate in " Evaluation for

> Transplant " . I don't have to commit to it while gaining valuable

> information.

> I was not able to complete the DLCO part of the PFT in Oct 07. I

> would end up coughing. I was asked to attempt the DLCO when I

> visited UCSF. At first I refused due to the phantom pain. When the

> nurse stressed how important it would be for the panel to know my

> diffusion capacity, I gave it a shot. My diffusion capacity came

at

> 38%. I think I can improve upon that number in a few months. This

> is based on two main reasons. One, I will be ~6 months away from

> smoking. I have not smoked since 2/2/08. Second, I'm hoping that

> in a few months I will be free from this phantom pain and perhaps

> give a better effort.

>

> Homeopathic Treatment:

>

> What is the consensus on homeopathic treatment? Is anyone being

> treated by a homeopathic doctor? Has any one looked into it?

> I have received a lot of calls from back home (Pakistan). Many

> folks have recommended (with testaments) that I consider

homeopathic

> treatment. A family member, who is a medical doctor (MBBS), told

me

> that his wife was diagnosed with interstitial lung disease

> approximately fifteen years ago. She has been treated with both,

> steroids and the homeopathic treatment. She has maintained her

> stats over the years. He recommended that I speak with two

> homeopathic doctors. I did. One of those doctors also has an MD.

> He sounded very optimistic after reviewing my medical records,

> family history, and current symptoms. He projected that with my

> current condition I `should' live a fairly normal life for another

> 20+ yrs. I told him that my Pulmo is giving me " 6 mo – 2 yrs "

while

> you are making it sound like I have a common cold. So, with a

grain

> of salt, I would take his prescribed medicine as well. I will

> receive the homeopathic medicine in a few days. Thus, I'm eager to

> find out if anyone else has already tried homeopathic treatment?

>

> Brett, my kids just turned thirteen. I have a twin boy/girl. My

> son is a jock. He stars in baseball, basketball and football. My

> daughter is the complete opposite. She is a Barbie doll. She

> excels in academia. She has taken my illness very seriously. She

> is internet savvy and there is a lot of depressing data out there

> when it comes to UIP. I constantly assure her that I will do my

> utmost to be around her for as long as I possibly can. My son, on

> the other hand, does not show much emotion. He quietly went to his

> room when first told of my illness. It was the day I returned from

> the hospital. He did not say a word to me for a couple of days. On

> third day he comes up to me and says, and I quote " hey dad, I'm

> getting tired of you sitting on this sofa; why don't you go walk a

> mile or something " , end quote. I don't think he loves me any less

> than his sister. It is just hard for us guys to show emotions. I

> think daughters in general are more caring. You have a beautiful

> daughter. Here is hoping that you are around when she

> celebrates her fiftieth birthday.

>

> Dilwala

>

>

>

>

> __________________________________________________

>

[Guest guest]

Diwala....good morning!

I'm reading your post from yesterday and may I share my personal reaction??? I'm goin' whooo, those are some dramatic changes!!

I think moderation in all things works pretty good. 1-2 cups of coffee may not bother YOU as it does . (Now I'm not being critical of her...she has tried and proven whats good for her for sure!)

Or maybe decaf...ugg, I know. I don't especially like it either but could it be an alternative for you?

I'm thinking your family may follow a diet of your culture...is this accurate? If so, then maybe a few tweaks would work rather than total elimination, since you say "it excludes a lot of stuff".Whole grain breads are good in moderation...brown rice is really good.

Are you overweight? I doubt it as busy as you are....also when you are that busy you need to eat well.

Maybe the 'activity' part is a place you could cut back as well, based on you saying it's "totally stressful". I may have missed something Diwala...you say you are active over 17 hrs daily but yet you are going to stop working? I'm sorry it seems to be one extreme to the other for you.

Since this is your 'prime earning stage' I know you have already considered options to work less hours and still retain insurance. These are such hard choices with a family...

I don't remember your age as far as SSI/disability. I do know when one is already on SS a person can't get disability.

Why I'll never understand. At least that's what I'm told when I tried to apply for disability.

I know there are others who can be of more help in that area.

I went to a Homeopathic Dr (MD) too and all I did was spend more money....let me quickly add this may not be your experience! I'm only sharing mine. It's discouraging to face how persistent our disease is and nothing seems to be effective treatment.

I hope I don't sound totally negative here Diwala. I just hate to see you adding MORE stress on yourself by maybe trying to do TOO MUCH all at once.

Wow. I'm thinking I'm trying to get my morning going at 8:30 and you've been up and about since 5!

Pred or No Pred; Thank you for responding; Homeopathic Treatment> > Thank you all for responding. Mama-Sher, your posts always put a > smile on my face. > Ok, The results are in; they vary btw "I will never take PRED" > to "PRED has been a life saver"> My biopsy reports states "chronic interstitial inflammation" . The > nurse made it clear that there was a ton of inflammation but not a > lot of fibrosis in my biopsy. The nurse was adamant (without > telling me what to do) that I get on PRED. Your responses have made > the decision much easier for me. Beth, in particular, > wrote "Part of the disease process that we have is that the > inflammation eventually scars and becomes fibrotic". Since PRED can > reduce inflammation, I have no choice but to start taking it. Now > if it causes me to lose my hair, I would be really mad. > Another good suggestion was to participate in "Evaluation for > Transplant". I don't have to commit to it while gaining valuable > information.> I was not able to complete the DLCO part of the PFT in Oct 07. I > would end up coughing. I was asked to attempt the DLCO when I > visited UCSF. At first I refused due to the phantom pain. When the > nurse stressed how important it would be for the panel to know my > diffusion capacity, I gave it a shot. My diffusion capacity came at > 38%. I think I can improve upon that number in a few months. This > is based on two main reasons. One, I will be ~6 months away from > smoking. I have not smoked since 2/2/08. Second, I'm hoping that > in a few months I will be free from this phantom pain and perhaps > give a better effort.> > Homeopathic Treatment:> > What is the consensus on homeopathic treatment? Is anyone being > treated by a homeopathic doctor? Has any one looked into it? > I have received a lot of calls from back home (Pakistan). Many > folks have recommended (with testaments) that I consider homeopathic > treatment. A family member, who is a medical doctor (MBBS), told me > that his wife was diagnosed with interstitial lung disease > approximately fifteen years ago. She has been treated with both, > steroids and the homeopathic treatment. She has maintained her > stats over the years. He recommended that I speak with two > homeopathic doctors. I did. One of those doctors also has an MD. > He sounded very optimistic after reviewing my medical records, > family history, and current symptoms. He projected that with my > current condition I `should' live a fairly normal life for another > 20+ yrs. I told him that my Pulmo is giving me "6 mo – 2 yrs" while > you are making it sound like I have a common cold. So, with a grain > of salt, I would take his prescribed medicine as well. I will > receive the homeopathic medicine in a few days. Thus, I'm eager to > find out if anyone else has already tried homeopathic treatment?> > Brett, my kids just turned thirteen. I have a twin boy/girl. My > son is a jock. He stars in baseball, basketball and football. My > daughter is the complete opposite. She is a Barbie doll. She > excels in academia. She has taken my illness very seriously. She > is internet savvy and there is a lot of depressing data out there > when it comes to UIP. I constantly assure her that I will do my > utmost to be around her for as long as I possibly can. My son, on > the other hand, does not show much emotion. He quietly went to his > room when first told of my illness. It was the day I returned from > the hospital. He did not say a word to me for a couple of days. On > third day he comes up to me and says, and I quote "hey dad, I'm > getting tired of you sitting on this sofa; why don't you go walk a > mile or something", end quote. I don't think he loves me any less > than his sister. It is just hard for us guys to show emotions. I > think daughters in general are more caring. You have a beautiful > daughter. Here is hoping that you are around when she > celebrates her fiftieth birthday. > > Dilwala > > > > > __________________________________________________>

[Guest guest]

dilwala

i agree with sher. you need to decide what changes you feel

resonate with you rather than everything we all talk about.

the changes i made, i made very slowly. firstly giving up

cheese as whenever i had a sandwich at lunchtime, when i was

working, i had a lump of phlegm at the back of my throat that

meant i couldn't clear my throat to talk. i then gave up the

rest of dairy, slowly, cos i felt better for it. the same

with wheat. i wanted to have a nutrient rich diet to assist

my liver with coping with imuran and wanted to drop salt from

my food in anticipation of needing pred one day.

i also needed to lose weight to qualify for lung transplant

evaluation and - guess what - its been the curry spices that

have enabled me to do that. without cumin, coriander, chili

i couldn't have done it. onions, garlic and especially tumeric

are reputed to be great for lungs. tumeric is i believe an ayuvedic

medicine itself. i just saute in spray oil and water instead

of oil or ghee. i have also found the thai flavours of lime

leaves, lemongrass, fish sauce and galangal. wonderful.

i am in scotland so can't help you with your social security.

i didn't enjoy my job but if i had i would have tried part time

before giving it up completely. whilst working full time i simply

didn't have the energy to go any social activities. coughing all

night long and getting to work in the morning took all my energy.

i am always thinking of what small business type thing i can do for

myself for about 2/3 days now that i have stabilised and gotten more

fit. i am thinking of jewellery making or perhaps making low fat

no sugar products for farmers markets. who knows - certainly not

me yet.

i am really interested in what your homeopathic doctor has given

you. has it got a name so we can google it and see if it is a

miraculous cure to eat scar tissue. (we can live in hope).

may uip 0606

glasgow, scotland

> >

> > Diwala,

> > I have spent literally thousands of dollars on homeopathic

> treatments and the end result is I am still getting worse each

> year. I have now gone to three different homeopathic doctors, the

> last recommended by a friend who was cured of cancer ( she has

since

> died). I have taken expensive vitamins, envibe, xymogen, mona

vie,

> ambresol,chinese lung formula,had my blood tested for food

allergies

> ( $600.00!) foot detoxes, and accupressure and tried several

detox

> diets including the lemonade fast. The only things that have made

a

> difference is giving up coffee ( sorry fellow coffee addicts) and

> sticking to an anti-inflammatory diet AND!!! prednisone. I too

have

> active inflammation ( along with a lot of scarring) and the

> prednisone seems to keep it in check. I hate taking it but I

don't

> cough near as much, my lung volume increases from 34% to 60 and

the

> scarring progresses much slower. Every doctor said that coffee

> increases inflammation and since I have

> > stopped drinking it I notice an immediate difference if I have

a

> cup. My chest is tighter and I get a dull ache in my lungs. The

> anti inflammtion diet ( no breads or processed foods) doesn't

make a

> big difference in how I feel but I don't get puffy from the

steroids

> or gain more weight. I think some people get PF and it never

> progresses while others of us keep getting worse no matter what

we

> do. I do have a theory that it progresses quicker if we are too

> active. It seems like the younger people with this ( especially

> those who still work) get worse faster than those who are retired

> and lead less active lives. I have no proof of this, but since I

> have quit work and greatly slowed my lifestyle down mine has not

> been progressing as quick as before. My big goal is to make it to

> 60. Hope this helps-

> >

> >

> > Sarcoid/PF 3/2006 California

> >

> >

> >

> >

> > Pred or No Pred; Thank you for

> responding; Homeopathic Treatment

> >

> > Thank you all for responding. Mama-Sher, your posts always put

a

> > smile on my face.

> > Ok, The results are in; they vary btw " I will never take PRED "

> > to " PRED has been a life saver "

> > My biopsy reports states " chronic interstitial inflammation " .

The

> > nurse made it clear that there was a ton of inflammation but

not a

> > lot of fibrosis in my biopsy. The nurse was adamant (without

> > telling me what to do) that I get on PRED. Your responses have

> made

> > the decision much easier for me. Beth, in particular,

> > wrote " Part of the disease process that we have is that the

> > inflammation eventually scars and becomes fibrotic " . Since PRED

> can

> > reduce inflammation, I have no choice but to start taking it.

Now

> > if it causes me to lose my hair, I would be really mad.

> > Another good suggestion was to participate in " Evaluation for

> > Transplant " . I don't have to commit to it while gaining

valuable

> > information.

> > I was not able to complete the DLCO part of the PFT in Oct 07.

I

> > would end up coughing. I was asked to attempt the DLCO when I

> > visited UCSF. At first I refused due to the phantom pain. When

the

> > nurse stressed how important it would be for the panel to know

my

> > diffusion capacity, I gave it a shot. My diffusion capacity

came

> at

> > 38%. I think I can improve upon that number in a few months.

This

> > is based on two main reasons. One, I will be ~6 months away

from

> > smoking. I have not smoked since 2/2/08. Second, I'm hoping

that

> > in a few months I will be free from this phantom pain and

perhaps

> > give a better effort.

> >

> > Homeopathic Treatment:

> >

> > What is the consensus on homeopathic treatment? Is anyone being

> > treated by a homeopathic doctor? Has any one looked into it?

> > I have received a lot of calls from back home (Pakistan). Many

> > folks have recommended (with testaments) that I consider

> homeopathic

> > treatment. A family member, who is a medical doctor (MBBS),

told

> me

> > that his wife was diagnosed with interstitial lung disease

> > approximately fifteen years ago. She has been treated with

both,

> > steroids and the homeopathic treatment. She has maintained her

> > stats over the years. He recommended that I speak with two

> > homeopathic doctors. I did. One of those doctors also has an

MD.

> > He sounded very optimistic after reviewing my medical records,

> > family history, and current symptoms. He projected that with my

> > current condition I `should' live a fairly normal life for

another

> > 20+ yrs. I told him that my Pulmo is giving me " 6 mo - 2 yrs "

> while

> > you are making it sound like I have a common cold. So, with a

> grain

> > of salt, I would take his prescribed medicine as well. I will

> > receive the homeopathic medicine in a few days. Thus, I'm eager

to

> > find out if anyone else has already tried homeopathic treatment?

> >

> > Brett, my kids just turned thirteen. I have a twin boy/girl. My

> > son is a jock. He stars in baseball, basketball and football.

My

> > daughter is the complete opposite. She is a Barbie doll. She

> > excels in academia. She has taken my illness very seriously.

She

> > is internet savvy and there is a lot of depressing data out

there

> > when it comes to UIP. I constantly assure her that I will do my

> > utmost to be around her for as long as I possibly can. My son,

on

> > the other hand, does not show much emotion. He quietly went to

his

> > room when first told of my illness. It was the day I returned

from

> > the hospital. He did not say a word to me for a couple of days.

On

> > third day he comes up to me and says, and I quote " hey dad, I'm

> > getting tired of you sitting on this sofa; why don't you go

walk a

> > mile or something " , end quote. I don't think he loves me any

less

> > than his sister. It is just hard for us guys to show emotions.

I

> > think daughters in general are more caring. You have a

beautiful

> > daughter. Here is hoping that you are around when she

> > celebrates her fiftieth birthday.

> >

> > Dilwala

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

I know when it all hits it feels like you have to do and change

everything at once. Sit back, breathe deeply, relax and move ahead one

thing at a time. Trying to do too much too fast will only stress you

more and magnify the impact of the disease on you. If you think through

and make the changes at the pace right for you then they won't be

overwhelming.

As to SSDI, its handled differently on every disease and in every state.

However, for respiratory diseases they do have some very specific

measurements and guidelines based on PFT's. I'd suggest comparing yours

to the tables on their site. Now, in addition they are going to read

doctor's reports and recommendations and look at facts such as how long

you've not been working and why you stopped. Obviously, you wouldn't be

approved if working.

You have so many life choices, but you'll think through them and choose

what is right for you. Emphasis is on " you " as we're all quite

different. I'm comfortable with my life today because I honestly believe

I've done what was best for me. I've listened to others, I've read, I've

evaluated, I've analyzed, I've thought. But, ultimately it has come down

to what I felt. But, I've also not rushed choices. I don't know my

choice on transplant because I'm not at the point I have to decide. I

don't even know my choices for next year. I know I like where I live

now, like my plans for the next few months, like what I'm doing today.

Now, meanwhile I do face some decisions. For instance, do I renew my

lease where I am in August and, if so, for how long. If I feel exactly

as I do today in June and July, then I'll renew for a year. But, I'm

evaluating alternatives that would be appropriate if I had a decline

between now and then. Again, I can start thinking now, but don't need to

rush to a decision. In fact, even then I can delay the decision if I am

not ready through a shorter lease or month to month.

> > >

> > > Diwala,

> > > I have spent literally thousands of dollars on homeopathic

> > treatments and the end result is I am still getting worse each

> > year. I have now gone to three different homeopathic doctors, the

> > last recommended by a friend who was cured of cancer ( she has

> since

> > died). I have taken expensive vitamins, envibe, xymogen, mona

> vie,

> > ambresol,chinese lung formula,had my blood tested for food

> allergies

> > ( $600.00!) foot detoxes, and accupressure and tried several

> detox

> > diets including the lemonade fast. The only things that have made

> a

> > difference is giving up coffee ( sorry fellow coffee addicts) and

> > sticking to an anti-inflammatory diet AND!!! prednisone. I too

> have

> > active inflammation ( along with a lot of scarring) and the

> > prednisone seems to keep it in check. I hate taking it but I

> don't

> > cough near as much, my lung volume increases from 34% to 60 and

> the

> > scarring progresses much slower. Every doctor said that coffee

> > increases inflammation and since I have

> > > stopped drinking it I notice an immediate difference if I have

> a

> > cup. My chest is tighter and I get a dull ache in my lungs. The

> > anti inflammtion diet ( no breads or processed foods) doesn't

> make a

> > big difference in how I feel but I don't get puffy from the

> steroids

> > or gain more weight. I think some people get PF and it never

> > progresses while others of us keep getting worse no matter what

> we

> > do. I do have a theory that it progresses quicker if we are too

> > active. It seems like the younger people with this ( especially

> > those who still work) get worse faster than those who are retired

> > and lead less active lives. I have no proof of this, but since I

> > have quit work and greatly slowed my lifestyle down mine has not

> > been progressing as quick as before. My big goal is to make it to

> > 60. Hope this helps-

> > >

> > >

> > > Sarcoid/PF 3/2006 California

> > >

> > >

> > >

> > >

> > > Pred or No Pred; Thank you for

> > responding; Homeopathic Treatment

> > >

> > > Thank you all for responding. Mama-Sher, your posts always put

> a

> > > smile on my face.

> > > Ok, The results are in; they vary btw " I will never take PRED "

> > > to " PRED has been a life saver "

> > > My biopsy reports states " chronic interstitial inflammation " .

> The

> > > nurse made it clear that there was a ton of inflammation but

> not a

> > > lot of fibrosis in my biopsy. The nurse was adamant (without

> > > telling me what to do) that I get on PRED. Your responses have

> > made

> > > the decision much easier for me. Beth, in particular,

> > > wrote " Part of the disease process that we have is that the

> > > inflammation eventually scars and becomes fibrotic " . Since PRED

> > can

> > > reduce inflammation, I have no choice but to start taking it.

> Now

> > > if it causes me to lose my hair, I would be really mad.

> > > Another good suggestion was to participate in " Evaluation for

> > > Transplant " . I don't have to commit to it while gaining

> valuable

> > > information.

> > > I was not able to complete the DLCO part of the PFT in Oct 07.

> I

> > > would end up coughing. I was asked to attempt the DLCO when I

> > > visited UCSF. At first I refused due to the phantom pain. When

> the

> > > nurse stressed how important it would be for the panel to know

> my

> > > diffusion capacity, I gave it a shot. My diffusion capacity

> came

> > at

> > > 38%. I think I can improve upon that number in a few months.

> This

> > > is based on two main reasons. One, I will be ~6 months away

> from

> > > smoking. I have not smoked since 2/2/08. Second, I'm hoping

> that

> > > in a few months I will be free from this phantom pain and

> perhaps

> > > give a better effort.

> > >

> > > Homeopathic Treatment:

> > >

> > > What is the consensus on homeopathic treatment? Is anyone being

> > > treated by a homeopathic doctor? Has any one looked into it?

> > > I have received a lot of calls from back home (Pakistan). Many

> > > folks have recommended (with testaments) that I consider

> > homeopathic

> > > treatment. A family member, who is a medical doctor (MBBS),

> told

> > me

> > > that his wife was diagnosed with interstitial lung disease

> > > approximately fifteen years ago. She has been treated with

> both,

> > > steroids and the homeopathic treatment. She has maintained her

> > > stats over the years. He recommended that I speak with two

> > > homeopathic doctors. I did. One of those doctors also has an

> MD.

> > > He sounded very optimistic after reviewing my medical records,

> > > family history, and current symptoms. He projected that with my

> > > current condition I `should' live a fairly normal life for

> another

> > > 20+ yrs. I told him that my Pulmo is giving me " 6 mo - 2 yrs "

> > while

> > > you are making it sound like I have a common cold. So, with a

> > grain

> > > of salt, I would take his prescribed medicine as well. I will

> > > receive the homeopathic medicine in a few days. Thus, I'm eager

> to

> > > find out if anyone else has already tried homeopathic treatment?

> > >

> > > Brett, my kids just turned thirteen. I have a twin boy/girl. My

> > > son is a jock. He stars in baseball, basketball and football.

> My

> > > daughter is the complete opposite. She is a Barbie doll. She

> > > excels in academia. She has taken my illness very seriously.

> She

> > > is internet savvy and there is a lot of depressing data out

> there

> > > when it comes to UIP. I constantly assure her that I will do my

> > > utmost to be around her for as long as I possibly can. My son,

> on

> > > the other hand, does not show much emotion. He quietly went to

> his

> > > room when first told of my illness. It was the day I returned

> from

> > > the hospital. He did not say a word to me for a couple of days.

> On

> > > third day he comes up to me and says, and I quote " hey dad, I'm

> > > getting tired of you sitting on this sofa; why don't you go

> walk a

> > > mile or something " , end quote. I don't think he loves me any

> less

> > > than his sister. It is just hard for us guys to show emotions.

> I

> > > think daughters in general are more caring. You have a

> beautiful

> > > daughter. Here is hoping that you are around when she

> > > celebrates her fiftieth birthday.

> > >

> > > Dilwala

> > >

> > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

All,

Thank you for your input, concerns. Yes, I've made some changes.

All I'm attempting to do is to give it my best in fighting this

thing.

Everyone on this board has something valuable to add. I want to

adapt to that `value add'.

Giving up coffee, fatty foods, etc is not that difficult. It has

been ~a week and I'm already feeling better.

I work as a Systems Engineer (Infrastructure Engineering) for a

highly successful (billion dollars +) internet company involved in e-

commerce. It is 7x24x365 responsibility. A downtime of a single

second is seriously frowned upon. Salary, benefits, etc are

excellent. However, work whether high paying or not, remains work.

It brings inherent stress with it. I want to eliminate that stress

to give myself a better chance. Albeit it is a tough choice, I feel

that it is a very important choice. How do I actually go about it

though seems about as clear as mud. I will certainly look at all

aspects before moving ahead with it.

We all have dreams, or at least we did before we got hit with PF.

My dream was to promote Baseball in Pakistan. The dream was to get

one player (from Pakistan) signed to the Major Leagues by tenth

year. I was fortunate to be in the thick of high-tech boom. I was

fortunate to make some wise investments as well. I acquired a huge

chunk of land in Pakistan in the late-90's for a baseball stadium.

I planned to retire at my kids' high school graduation (2012). This

was all well before any signs of PF.

Then my son started to excel in sports. He stood out among his

peers. It appeared that he had a good chance to make it to the

collegiate sports of his choice. So the plan was somewhat modified;

if he made it to the collegiate sports then we (wife & I) will stick

around in the states and watch him play. If he did not make it to

the collegiate sports then we will start working on the stadium

plans. The plan to retire in 2012 remained. This was also well

before any signs of PF.

Thus, I have been preparing to stop working within few years

anyway. PF, obviously has derailed the dream. Instead, now there

is fight to survive. We're all fighting to survive this for as long

as we could. So, I'm eager to learn/adapt to what is working for

others. Perhaps it will work for me; perhaps it won't. All I want

to do is to give it my best shot. While I'm fully functional at the

moment, I know that it won't last for long. So, when I really think

about what is most important to me, my health, wife and the kids top

that list. I want to be around them for as long as I can. Giving

up on things that can help me to be around them longer is now a

piece of cake.

Dilwala, 47, UIP 02/08, Northern California

> > > >

> > > > Diwala,

> > > > I have spent literally thousands of dollars on homeopathic

> > > treatments and the end result is I am still getting worse each

> > > year. I have now gone to three different homeopathic doctors,

the

> > > last recommended by a friend who was cured of cancer ( she has

> > since

> > > died). I have taken expensive vitamins, envibe, xymogen, mona

> > vie,

> > > ambresol,chinese lung formula,had my blood tested for food

> > allergies

> > > ( $600.00!) foot detoxes, and accupressure and tried several

> > detox

> > > diets including the lemonade fast. The only things that have

made

> > a

> > > difference is giving up coffee ( sorry fellow coffee addicts)

and

> > > sticking to an anti-inflammatory diet AND!!! prednisone. I too

> > have

> > > active inflammation ( along with a lot of scarring) and the

> > > prednisone seems to keep it in check. I hate taking it but I

> > don't

> > > cough near as much, my lung volume increases from 34% to 60 and

> > the

> > > scarring progresses much slower. Every doctor said that coffee

> > > increases inflammation and since I have

> > > > stopped drinking it I notice an immediate difference if I

have

> > a

> > > cup. My chest is tighter and I get a dull ache in my lungs. The

> > > anti inflammtion diet ( no breads or processed foods) doesn't

> > make a

> > > big difference in how I feel but I don't get puffy from the

> > steroids

> > > or gain more weight. I think some people get PF and it never

> > > progresses while others of us keep getting worse no matter what

> > we

> > > do. I do have a theory that it progresses quicker if we are too

> > > active. It seems like the younger people with this ( especially

> > > those who still work) get worse faster than those who are

retired

> > > and lead less active lives. I have no proof of this, but since

I

> > > have quit work and greatly slowed my lifestyle down mine has

not

> > > been progressing as quick as before. My big goal is to make it

to

> > > 60. Hope this helps-

> > > >

> > > >

> > > > Sarcoid/PF 3/2006 California

> > > >

> > > >

> > > >

> > > >

> > > > Pred or No Pred; Thank you for

> > > responding; Homeopathic Treatment

> > > >

> > > > Thank you all for responding. Mama-Sher, your posts always

put

> > a

> > > > smile on my face.

> > > > Ok, The results are in; they vary btw " I will never take

PRED "

> > > > to " PRED has been a life saver "

> > > > My biopsy reports states " chronic interstitial

inflammation " .

> > The

> > > > nurse made it clear that there was a ton of inflammation but

> > not a

> > > > lot of fibrosis in my biopsy. The nurse was adamant (without

> > > > telling me what to do) that I get on PRED. Your responses

have

> > > made

> > > > the decision much easier for me. Beth, in particular,

> > > > wrote " Part of the disease process that we have is that the

> > > > inflammation eventually scars and becomes fibrotic " . Since

PRED

> > > can

> > > > reduce inflammation, I have no choice but to start taking it.

> > Now

> > > > if it causes me to lose my hair, I would be really mad.

> > > > Another good suggestion was to participate in " Evaluation for

> > > > Transplant " . I don't have to commit to it while gaining

> > valuable

> > > > information.

> > > > I was not able to complete the DLCO part of the PFT in Oct

07.

> > I

> > > > would end up coughing. I was asked to attempt the DLCO when I

> > > > visited UCSF. At first I refused due to the phantom pain.

When

> > the

> > > > nurse stressed how important it would be for the panel to

know

> > my

> > > > diffusion capacity, I gave it a shot. My diffusion capacity

> > came

> > > at

> > > > 38%. I think I can improve upon that number in a few months.

> > This

> > > > is based on two main reasons. One, I will be ~6 months away

> > from

> > > > smoking. I have not smoked since 2/2/08. Second, I'm hoping

> > that

> > > > in a few months I will be free from this phantom pain and

> > perhaps

> > > > give a better effort.

> > > >

> > > > Homeopathic Treatment:

> > > >

> > > > What is the consensus on homeopathic treatment? Is anyone

being

> > > > treated by a homeopathic doctor? Has any one looked into it?

> > > > I have received a lot of calls from back home (Pakistan).

Many

> > > > folks have recommended (with testaments) that I consider

> > > homeopathic

> > > > treatment. A family member, who is a medical doctor (MBBS),

> > told

> > > me

> > > > that his wife was diagnosed with interstitial lung disease

> > > > approximately fifteen years ago. She has been treated with

> > both,

> > > > steroids and the homeopathic treatment. She has maintained

her

> > > > stats over the years. He recommended that I speak with two

> > > > homeopathic doctors. I did. One of those doctors also has an

> > MD.

> > > > He sounded very optimistic after reviewing my medical

records,

> > > > family history, and current symptoms. He projected that with

my

> > > > current condition I `should' live a fairly normal life for

> > another

> > > > 20+ yrs. I told him that my Pulmo is giving me " 6 mo - 2 yrs "

> > > while

> > > > you are making it sound like I have a common cold. So, with a

> > > grain

> > > > of salt, I would take his prescribed medicine as well. I will

> > > > receive the homeopathic medicine in a few days. Thus, I'm

eager

> > to

> > > > find out if anyone else has already tried homeopathic

treatment?

> > > >

> > > > Brett, my kids just turned thirteen. I have a twin boy/girl.

My

> > > > son is a jock. He stars in baseball, basketball and football.

> > My

> > > > daughter is the complete opposite. She is a Barbie doll. She

> > > > excels in academia. She has taken my illness very seriously.

> > She

> > > > is internet savvy and there is a lot of depressing data out

> > there

> > > > when it comes to UIP. I constantly assure her that I will do

my

> > > > utmost to be around her for as long as I possibly can. My

son,

> > on

> > > > the other hand, does not show much emotion. He quietly went

to

> > his

> > > > room when first told of my illness. It was the day I returned

> > from

> > > > the hospital. He did not say a word to me for a couple of

days.

> > On

> > > > third day he comes up to me and says, and I quote " hey dad,

I'm

> > > > getting tired of you sitting on this sofa; why don't you go

> > walk a

> > > > mile or something " , end quote. I don't think he loves me any

> > less

> > > > than his sister. It is just hard for us guys to show

emotions.

> > I

> > > > think daughters in general are more caring. You have a

> > beautiful

> > > > daughter. Here is hoping that you are around when

she

> > > > celebrates her fiftieth birthday.

> > > >

> > > > Dilwala

> > > >

> > > >

> > > >

> > > >

> > > > __________________________________________________

> > > >

[Guest guest]

Wow Diwala,

What an interesting life you have! I admire you not only for having such wonderful dreams, but also for putting family first. I pray the answers you are seking come soon.

Sarcoid/PF 3/2006 California

Pred or No Pred; Thank you for> > > responding; Homeopathic Treatment> > > >> > > > Thank you all for responding. Mama-Sher, your posts always put> > a> > > > smile on my face.> > > > Ok, The results are in; they vary btw "I will never take PRED"> > > > to "PRED has been a life saver"> > > > My biopsy reports states "chronic interstitial inflammation" .> > The> > > > nurse made it clear that there was

a ton of inflammation but> > not a> > > > lot of fibrosis in my biopsy. The nurse was adamant (without> > > > telling me what to do) that I get on PRED. Your responses have> > > made> > > > the decision much easier for me. Beth, in particular,> > > > wrote "Part of the disease process that we have is that the> > > > inflammation eventually scars and becomes fibrotic". Since PRED> > > can> > > > reduce inflammation, I have no choice but to start taking it.> > Now> > > > if it causes me to lose my hair, I would be really mad.> > > > Another good suggestion was to participate in "Evaluation for> > > > Transplant". I don't have to commit to it while gaining> > valuable> > > > information.> > > > I was not able to

complete the DLCO part of the PFT in Oct 07.> > I> > > > would end up coughing. I was asked to attempt the DLCO when I> > > > visited UCSF. At first I refused due to the phantom pain. When> > the> > > > nurse stressed how important it would be for the panel to know> > my> > > > diffusion capacity, I gave it a shot. My diffusion capacity> > came> > > at> > > > 38%. I think I can improve upon that number in a few months.> > This> > > > is based on two main reasons. One, I will be ~6 months away> > from> > > > smoking. I have not smoked since 2/2/08. Second, I'm hoping> > that> > > > in a few months I will be free from this phantom pain and> > perhaps> > > > give a better effort.> > > >>

> > > Homeopathic Treatment:> > > >> > > > What is the consensus on homeopathic treatment? Is anyone being> > > > treated by a homeopathic doctor? Has any one looked into it?> > > > I have received a lot of calls from back home (Pakistan). Many> > > > folks have recommended (with testaments) that I consider> > > homeopathic> > > > treatment. A family member, who is a medical doctor (MBBS),> > told> > > me> > > > that his wife was diagnosed with interstitial lung disease> > > > approximately fifteen years ago. She has been treated with> > both,> > > > steroids and the homeopathic treatment. She has maintained her> > > > stats over the years. He recommended that I speak with two> > > > homeopathic doctors. I did. One

of those doctors also has an> > MD.> > > > He sounded very optimistic after reviewing my medical records,> > > > family history, and current symptoms. He projected that with my> > > > current condition I `should' live a fairly normal life for> > another> > > > 20+ yrs. I told him that my Pulmo is giving me "6 mo - 2 yrs"> > > while> > > > you are making it sound like I have a common cold. So, with a> > > grain> > > > of salt, I would take his prescribed medicine as well. I will> > > > receive the homeopathic medicine in a few days. Thus, I'm eager> > to> > > > find out if anyone else has already tried homeopathic treatment?> > > >> > > > Brett, my kids just turned thirteen. I have a twin boy/girl. My> > >

> son is a jock. He stars in baseball, basketball and football.> > My> > > > daughter is the complete opposite. She is a Barbie doll. She> > > > excels in academia. She has taken my illness very seriously.> > She> > > > is internet savvy and there is a lot of depressing data out> > there> > > > when it comes to UIP. I constantly assure her that I will do my> > > > utmost to be around her for as long as I possibly can. My son,> > on> > > > the other hand, does not show much emotion. He quietly went to> > his> > > > room when first told of my illness. It was the day I returned> > from> > > > the hospital. He did not say a word to me for a couple of days.> > On> > > > third day he comes up to me and says, and I quote "hey dad,

I'm> > > > getting tired of you sitting on this sofa; why don't you go> > walk a> > > > mile or something", end quote. I don't think he loves me any> > less> > > > than his sister. It is just hard for us guys to show emotions.> > I> > > > think daughters in general are more caring. You have a> > beautiful> > > > daughter. Here is hoping that you are around when she> > > > celebrates her fiftieth birthday.> > > >> > > > Dilwala> > > >> > > >> > > >> > > >> > > > ____________ _________ _________ _________ _________ __> > > >

[Guest guest]

Dilwala

You'll be amazed I think on those dreams you have. Oh, you may not

fulfill the exact same ones, but with your attitude and determination, I

have no doubt that you'll live more dreams than you imagine. You may

live more than you would have otherwise because of your focus on the

things we treasure most. I have a feeling these next eight years of high

school and college you will have more quality time with your son than

would have happened in spite of your plans for 2012. I see you there on

the sidelines, probably with oxygen but thats not important. Who knows

what four more years of stress would have brought. Now, just find a way

to enjoy life and not stress over the disease you can't control. All

your ideas of healthy things are great. They all would have been good

without the disease but their wasn't the motivation.

Baseball in Pakistan...oh what do the Cricket fans think about that? An

incredible dream. But quality time with family and friends to me is the

ultimate dream. You and I are both at relatively early stages, you still

earlier than me. I can tell you that my life today is better than its

ever been. I was in high paying, high stress jobs and know very well the

environment you're in. I went to Chicago, didn't stay at Palmer House

downtown for $300 a night. Stayed at Fairfield Inn just south of town

for $89. Room was larger and staff was incredible. Now I did eat at the

best steak house (not cheap but worth every penny) in the country. I

will travel as much this year for pleasure as I did in my entire

employed adult life combined. Before, it was always job first and

couldn't get away. We are the worst country in the world for not

scheduling and taking the appropriate time off, completely off, not on

the computer checking in while we're on vacation.

You and I are lucky. We still feel good. We owe it to all those who

don't feel like getting out and around to do more than our share. Think

ahead to the first trip you take with your family where you don't have a

care in the world, don't constantly think about work or what kind of

mess you'll return to. As strange as it sounds, I firmly believe the

best years of your life are ahead of you. Good luck sorting it all out.

> > > > >

> > > > > Diwala,

> > > > > I have spent literally thousands of dollars on homeopathic

> > > > treatments and the end result is I am still getting worse each

> > > > year. I have now gone to three different homeopathic doctors,

> the

> > > > last recommended by a friend who was cured of cancer ( she has

> > > since

> > > > died). I have taken expensive vitamins, envibe, xymogen, mona

> > > vie,

> > > > ambresol,chinese lung formula,had my blood tested for food

> > > allergies

> > > > ( $600.00!) foot detoxes, and accupressure and tried several

> > > detox

> > > > diets including the lemonade fast. The only things that have

> made

> > > a

> > > > difference is giving up coffee ( sorry fellow coffee addicts)

> and

> > > > sticking to an anti-inflammatory diet AND!!! prednisone. I too

> > > have

> > > > active inflammation ( along with a lot of scarring) and the

> > > > prednisone seems to keep it in check. I hate taking it but I

> > > don't

> > > > cough near as much, my lung volume increases from 34% to 60 and

> > > the

> > > > scarring progresses much slower. Every doctor said that coffee

> > > > increases inflammation and since I have

> > > > > stopped drinking it I notice an immediate difference if I

> have

> > > a

> > > > cup. My chest is tighter and I get a dull ache in my lungs. The

> > > > anti inflammtion diet ( no breads or processed foods) doesn't

> > > make a

> > > > big difference in how I feel but I don't get puffy from the

> > > steroids

> > > > or gain more weight. I think some people get PF and it never

> > > > progresses while others of us keep getting worse no matter what

> > > we

> > > > do. I do have a theory that it progresses quicker if we are too

> > > > active. It seems like the younger people with this ( especially

> > > > those who still work) get worse faster than those who are

> retired

> > > > and lead less active lives. I have no proof of this, but since

> I

> > > > have quit work and greatly slowed my lifestyle down mine has

> not

> > > > been progressing as quick as before. My big goal is to make it

> to

> > > > 60. Hope this helps-

> > > > >

> > > > >

> > > > > Sarcoid/PF 3/2006 California

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Pred or No Pred; Thank you for

> > > > responding; Homeopathic Treatment

> > > > >

> > > > > Thank you all for responding. Mama-Sher, your posts always

> put

> > > a

> > > > > smile on my face.

> > > > > Ok, The results are in; they vary btw " I will never take

> PRED "

> > > > > to " PRED has been a life saver "

> > > > > My biopsy reports states " chronic interstitial

> inflammation " .

> > > The

> > > > > nurse made it clear that there was a ton of inflammation but

> > > not a

> > > > > lot of fibrosis in my biopsy. The nurse was adamant (without

> > > > > telling me what to do) that I get on PRED. Your responses

> have

> > > > made

> > > > > the decision much easier for me. Beth, in particular,

> > > > > wrote " Part of the disease process that we have is that the

> > > > > inflammation eventually scars and becomes fibrotic " . Since

> PRED

> > > > can

> > > > > reduce inflammation, I have no choice but to start taking it.

> > > Now

> > > > > if it causes me to lose my hair, I would be really mad.

> > > > > Another good suggestion was to participate in " Evaluation for

> > > > > Transplant " . I don't have to commit to it while gaining

> > > valuable

> > > > > information.

> > > > > I was not able to complete the DLCO part of the PFT in Oct

> 07.

> > > I

> > > > > would end up coughing. I was asked to attempt the DLCO when I

> > > > > visited UCSF. At first I refused due to the phantom pain.

> When

> > > the

> > > > > nurse stressed how important it would be for the panel to

> know

> > > my

> > > > > diffusion capacity, I gave it a shot. My diffusion capacity

> > > came

> > > > at

> > > > > 38%. I think I can improve upon that number in a few months.

> > > This

> > > > > is based on two main reasons. One, I will be ~6 months away

> > > from

> > > > > smoking. I have not smoked since 2/2/08. Second, I'm hoping

> > > that

> > > > > in a few months I will be free from this phantom pain and

> > > perhaps

> > > > > give a better effort.

> > > > >

> > > > > Homeopathic Treatment:

> > > > >

> > > > > What is the consensus on homeopathic treatment? Is anyone

> being

> > > > > treated by a homeopathic doctor? Has any one looked into it?

> > > > > I have received a lot of calls from back home (Pakistan).

> Many

> > > > > folks have recommended (with testaments) that I consider

> > > > homeopathic

> > > > > treatment. A family member, who is a medical doctor (MBBS),

> > > told

> > > > me

> > > > > that his wife was diagnosed with interstitial lung disease

> > > > > approximately fifteen years ago. She has been treated with

> > > both,

> > > > > steroids and the homeopathic treatment. She has maintained

> her

> > > > > stats over the years. He recommended that I speak with two

> > > > > homeopathic doctors. I did. One of those doctors also has an

> > > MD.

> > > > > He sounded very optimistic after reviewing my medical

> records,

> > > > > family history, and current symptoms. He projected that with

> my

> > > > > current condition I `should' live a fairly normal life for

> > > another

> > > > > 20+ yrs. I told him that my Pulmo is giving me " 6 mo - 2 yrs "

> > > > while

> > > > > you are making it sound like I have a common cold. So, with a

> > > > grain

> > > > > of salt, I would take his prescribed medicine as well. I will

> > > > > receive the homeopathic medicine in a few days. Thus, I'm

> eager

> > > to

> > > > > find out if anyone else has already tried homeopathic

> treatment?

> > > > >

> > > > > Brett, my kids just turned thirteen. I have a twin boy/girl.

> My

> > > > > son is a jock. He stars in baseball, basketball and football.

> > > My

> > > > > daughter is the complete opposite. She is a Barbie doll. She

> > > > > excels in academia. She has taken my illness very seriously.

> > > She

> > > > > is internet savvy and there is a lot of depressing data out

> > > there

> > > > > when it comes to UIP. I constantly assure her that I will do

> my

> > > > > utmost to be around her for as long as I possibly can. My

> son,

> > > on

> > > > > the other hand, does not show much emotion. He quietly went

> to

> > > his

> > > > > room when first told of my illness. It was the day I returned

> > > from

> > > > > the hospital. He did not say a word to me for a couple of

> days.

> > > On

> > > > > third day he comes up to me and says, and I quote " hey dad,

> I'm

> > > > > getting tired of you sitting on this sofa; why don't you go

> > > walk a

> > > > > mile or something " , end quote. I don't think he loves me any

> > > less

> > > > > than his sister. It is just hard for us guys to show

> emotions.

> > > I

> > > > > think daughters in general are more caring. You have a

> > > beautiful

> > > > > daughter. Here is hoping that you are around when

> she

> > > > > celebrates her fiftieth birthday.

> > > > >

> > > > > Dilwala

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > __________________________________________________

> > > > >

[Guest guest]

Diwala...it's obvious you are such an exceptional husband and father and one with many dreams for your family and retirement. I can see where what you eat easily takes second place to "what do you do next."

My heart hurts for the men on this board who have younger families to consider...our kids are grown and already on their own with kids...

I think it's ingrained in a man to provide for his family and how can he best do that if life is derailed at crucial points?

It's also obvious you have been an information-gatherer and decision-maker and a hard worker! Your family is lucky to have you at the helm as you now face what PF has done to you.

I'm sorry Diwala and I pray for you and your family.

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Pred or No Pred; Thank you for> > > responding; Homeopathic Treatment> > > >> > > > Thank you all for responding. Mama-Sher, your posts always put> > a> > > > smile on my face.> > > > Ok, The results are in; they vary btw "I will never take PRED"> > > > to "PRED has been a life saver"> > > > My biopsy reports states "chronic interstitial inflammation" .> > The> > > > nurse made it clear that there was a ton of inflammation but> > not a> > > > lot of fibrosis in my biopsy. The nurse was adamant (without> > > > telling me what to do) that I get on PRED. Your responses have> > > made> > > > the decision much easier for me. Beth, in particular,> > > > wrote "Part of the disease process that we have is that the> > > > inflammation eventually scars and becomes fibrotic". Since PRED> > > can> > > > reduce inflammation, I have no choice but to start taking it.> > Now> > > > if it causes me to lose my hair, I would be really mad.> > > > Another good suggestion was to participate in "Evaluation for> > > > Transplant". I don't have to commit to it while gaining> > valuable> > > > information.> > > > I was not able to complete the DLCO part of the PFT in Oct 07.> > I> > > > would end up coughing. I was asked to attempt the DLCO when I> > > > visited UCSF. At first I refused due to the phantom pain. When> > the> > > > nurse stressed how important it would be for the panel to know> > my> > > > diffusion capacity, I gave it a shot. My diffusion capacity> > came> > > at> > > > 38%. I think I can improve upon that number in a few months.> > This> > > > is based on two main reasons. One, I will be ~6 months away> > from> > > > smoking. I have not smoked since 2/2/08. Second, I'm hoping> > that> > > > in a few months I will be free from this phantom pain and> > perhaps> > > > give a better effort.> > > >> > > > Homeopathic Treatment:> > > >> > > > What is the consensus on homeopathic treatment? Is anyone being> > > > treated by a homeopathic doctor? Has any one looked into it?> > > > I have received a lot of calls from back home (Pakistan). Many> > > > folks have recommended (with testaments) that I consider> > > homeopathic> > > > treatment. A family member, who is a medical doctor (MBBS),> > told> > > me> > > > that his wife was diagnosed with interstitial lung disease> > > > approximately fifteen years ago. She has been treated with> > both,> > > > steroids and the homeopathic treatment. She has maintained her> > > > stats over the years. He recommended that I speak with two> > > > homeopathic doctors. I did. One of those doctors also has an> > MD.> > > > He sounded very optimistic after reviewing my medical records,> > > > family history, and current symptoms. He projected that with my> > > > current condition I `should' live a fairly normal life for> > another> > > > 20+ yrs. I told him that my Pulmo is giving me "6 mo - 2 yrs"> > > while> > > > you are making it sound like I have a common cold. So, with a> > > grain> > > > of salt, I would take his prescribed medicine as well. I will> > > > receive the homeopathic medicine in a few days. Thus, I'm eager> > to> > > > find out if anyone else has already tried homeopathic treatment?> > > >> > > > Brett, my kids just turned thirteen. I have a twin boy/girl. My> > > > son is a jock. He stars in baseball, basketball and football.> > My> > > > daughter is the complete opposite. She is a Barbie doll. She> > > > excels in academia. She has taken my illness very seriously.> > She> > > > is internet savvy and there is a lot of depressing data out> > there> > > > when it comes to UIP. I constantly assure her that I will do my> > > > utmost to be around her for as long as I possibly can. My son,> > on> > > > the other hand, does not show much emotion. He quietly went to> > his> > > > room when first told of my illness. It was the day I returned> > from> > > > the hospital. He did not say a word to me for a couple of days.> > On> > > > third day he comes up to me and says, and I quote "hey dad, I'm> > > > getting tired of you sitting on this sofa; why don't you go> > walk a> > > > mile or something", end quote. I don't think he loves me any> > less> > > > than his sister. It is just hard for us guys to show emotions.> > I> > > > think daughters in general are more caring. You have a> > beautiful> > > > daughter. Here is hoping that you are around when she> > > > celebrates her fiftieth birthday.> > > >> > > > Dilwala> > > >> > > >> > > >> > > >> > > > __________________________________________________> > > >