Re: I feel really crappy!!!!!!

[Guest guest]

In a message dated 08/08/2000 10:49:49 AM Central Daylight Time,

cottage@... writes:

<< Feeling rather grumpy but I guess you've figured that one out already,

Elaine >>

Oh Elaine,

I'm sorry you are having such a tough time. It sounds like its time for a NEW

doctor. Maybe one that will listen and try to help instead of keeping you in

a flare. I'm praying you will have better days soon, and that you find a new

Doc. Take care,

Love

Lu

[Guest guest]

OH God Elaine

i'm so sorry you are not feeling well... what the heck does your doctor

expect to see? it should be enough that you tell him that you are in pain

and there is something wrong...

He just doesn't seem to get it!... maybe you should tell him off and

loudly...in front of other patient's, i mean it, sometimes that's what it

takes...sigh!!.. sorry, but this really stinks... Is there any other doctor

you can go see Elaine?

If this doctor wants you to flare, at least he should give you a sick

leave.. why to into work feeling like you do... it's very upsetting!! and

what if you don't flare? what then?

Elaine, i'm hoping you get this resolved soon and go on the meds you need to

be on, even though Pred is the pits, if you need it, you need it...please

let us know what happens... i'm thinking of you...

take care sweetie

love

Carmela :-)

********************************

>

>Reply-To: Rpolychondritisegroups

>To: " RP Group (E-mail) " <Rpolychondritisegroups>

>Subject: I feel really crappy!!!!!!

>Date: Tue, 8 Aug 2000 08:51:10 -0700

>

>Hi All,

>Just feeling really crappy and want to vent!!!! Yesterday was a really bad

>day and today isn't proving to be much better. I hurt everywhere. They've

>got me on 20mg of pred one day and 25 the next. The Rheumy wants me to

>flare

>but I think he can go to H-E- double hockey sticks (LL) This gradual

>worsening each day is like @#$% & torture! Yesterday it felt like my eyes

>were trying to push themselves right out of their sockets. Felt like they

>were going to pop right out of my head. I felt like someone had taken a

>baseball bat to my nose and kicked me in the butt. Took to Tylenol 3 but it

>did nothing for the pain. My inner ears feel raw and the dizziness is back.

>I'm now having trouble breathing, it feels like my lungs are made of

>concrete and won't expand. But of course nothing is swelling at least that

>you can see!!!!! Why do I need to flare. Isn't the astounding fact that my

>body swells up and I have almost all of the symptoms enough. How many

>doctors need to see me flare, isn't't two enough. I'm sure that there must

>be some damage happening, what are these doctors thinking!!!!! I'm sick and

>tired of being sick and tired!!!! I think I missed a doctors appointment

>last week but can't remember if I even had one. Something is running around

>in my brain saying I had an appointment sometime on Friday but I'm not sure

>if I really did. I feel like I've been hit by a bus. I just want to take

>more prednisone and tell the doctors to @#$%! off! How would they like to

>be

>in this pain. My ankles are gone, they must be somewhere under that thick

>fleshy stuff that has become my legs. Oh yes, leg cramps too, so bad that

>they are in the front and back muscles at the same time. My arm muscles go

>into spasm too and I have to pry my hands open. Horrific pain! Gets worse

>if I take calcium. I rub my muscles with ice, that used to work but it's

>getting harder all the time to make them stop. It's so bad I scream in

>pain.

>I have never screamed in pain before. Ooops I think I've really lost it! I

>really don't want to go to work today, but if I don't no one gets paid. So

>I

>guess I better quit my bitching and get my @ss out of this chair. I think

>I'll go see my doctor and tell him off!!! Hope everyone feel a heck of a

>lot

>better than me. I wouldn't wish this on my worst enemy!

>Feeling rather grumpy but I guess you've figured that one out already,

>Elaine

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi Lu,

I guess I should have clarified, it's the Rheumy who wants to see me flare.

My doc is pretty good. I called him today to see if the Rheumy had sent

anything back to him and he hasn't. I saw the Rheumy on July 25th, it's

August 8th now. How long does it take! That's two weeks how long does it

take to write a letter? Anyhow I guess I better not get started or there'll

be another rant.

Thanks for your encouragement. I'm so glad you're all out there. Thanks

again

Elaine

Re: I feel really crappy!!!!!!

In a message dated 08/08/2000 10:49:49 AM Central Daylight Time,

cottage@... writes:

<< Feeling rather grumpy but I guess you've figured that one out already,

Elaine >>

Oh Elaine,

I'm sorry you are having such a tough time. It sounds like its time for a

NEW

doctor. Maybe one that will listen and try to help instead of keeping you in

a flare. I'm praying you will have better days soon, and that you find a new

Doc. Take care,

Love

Lu

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

In a message dated 08/09/2000 3:03:41 PM Central Daylight Time,

scotts@... writes:

<< We should probably be keeping track

of the boneheads. >>

Good idea ! Okay everyone fess up to the bad docs names... lol

Lu

[Guest guest]

In a message dated 08/09/2000 3:03:41 PM Central Daylight Time,

scotts@... writes:

<< We should probably be keeping track

of the boneheads. >>

Good idea ! Okay everyone fess up to the bad docs names... lol

Lu

[Guest guest]

Whats the name of your rheumatologist? We should probably be keeping track

of the boneheads.

> I feel really crappy!!!!!!

>

>

> Hi All,

> Just feeling really crappy and want to vent!!!! Yesterday was a really bad

> day and today isn't proving to be much better. I hurt everywhere. They've

> got me on 20mg of pred one day and 25 the next. The Rheumy wants

> me to flare

> but I think he can go to H-E- double hockey sticks (LL) This gradual

> worsening each day is like @#$% & torture! Yesterday it felt like my eyes

> were trying to push themselves right out of their sockets. Felt like they

> were going to pop right out of my head. I felt like someone had taken a

> baseball bat to my nose and kicked me in the butt. Took to

> Tylenol 3 but it

> did nothing for the pain. My inner ears feel raw and the

> dizziness is back.

> I'm now having trouble breathing, it feels like my lungs are made of

> concrete and won't expand. But of course nothing is swelling at least that

> you can see!!!!! Why do I need to flare. Isn't the astounding fact that my

> body swells up and I have almost all of the symptoms enough. How many

> doctors need to see me flare, isn't't two enough. I'm sure that there must

> be some damage happening, what are these doctors thinking!!!!!

> I'm sick and

> tired of being sick and tired!!!! I think I missed a doctors appointment

> last week but can't remember if I even had one. Something is

> running around

> in my brain saying I had an appointment sometime on Friday but

> I'm not sure

> if I really did. I feel like I've been hit by a bus. I just want to take

> more prednisone and tell the doctors to @#$%! off! How would they

> like to be

> in this pain. My ankles are gone, they must be somewhere under that thick

> fleshy stuff that has become my legs. Oh yes, leg cramps too, so bad that

> they are in the front and back muscles at the same time. My arm muscles go

> into spasm too and I have to pry my hands open. Horrific pain! Gets worse

> if I take calcium. I rub my muscles with ice, that used to work but it's

> getting harder all the time to make them stop. It's so bad I

> scream in pain.

> I have never screamed in pain before. Ooops I think I've really lost it! I

> really don't want to go to work today, but if I don't no one gets

> paid. So I

> guess I better quit my bitching and get my @ss out of this chair. I think

> I'll go see my doctor and tell him off!!! Hope everyone feel a

> heck of a lot

> better than me. I wouldn't wish this on my worst enemy!

> Feeling rather grumpy but I guess you've figured that one out already,

> Elaine

>

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT

> IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH

> YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT

> A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE.

> REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR

> MANY OF US. THANK YOU

>

>

[Guest guest]

Elaine,

i'm glad to hear you feel a little better, but we have to get you to feel a

lot better... seems to me your working condition is causing you a lot of

stress, which you obviously do not need... and that is adding to your

pain..i realize getting out of working is not easy, especially since your

boss took off, but in view of your current physical condition, perhaps a

leave would help you... but then again only you can judge what to do about

work...it's only a suggestion... )

can your regular doctor refer you to another rheumy?

just try to relax and take a breather as often as you can, things have to

get better )

As for me, i'm doing ok, more later...

take care sweetie

love

Carmela

*****************************

>

>Reply-To: Rpolychondritisegroups

>To: <Rpolychondritisegroups>

>Subject: RE: I feel really crappy!!!!!!

>Date: Tue, 8 Aug 2000 22:05:02 -0700

>

>Hi Carmela

>Thanks for the words of encouragement. Today was better than yesterday, at

>least I think. I was so busy at work I didn't have time to feel the pain

>until now. I don't know why the Rheumy wants me to flare, my regular Dr.

>hasn't even got the results back from him yet. Right know I'm too tired to

>be angry. Thursday I'm supposed to go down to 15 mg then 20mg the next but

>I'm going to see my regular DR. first. Work is hard too, my boss quit and

>I've been left to run the ship. I don't make a very good captain,

>especially

>right now. Anyhow I still feel crappy which is one step up from really

>crappy. I guess that's good. Hope you are feeling well. Take care,

>Elaine

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Elaine,

i'm glad to hear you feel a little better, but we have to get you to feel a

lot better... seems to me your working condition is causing you a lot of

stress, which you obviously do not need... and that is adding to your

pain..i realize getting out of working is not easy, especially since your

boss took off, but in view of your current physical condition, perhaps a

leave would help you... but then again only you can judge what to do about

work...it's only a suggestion... )

can your regular doctor refer you to another rheumy?

just try to relax and take a breather as often as you can, things have to

get better )

As for me, i'm doing ok, more later...

take care sweetie

love

Carmela

*****************************

>

>Reply-To: Rpolychondritisegroups

>To: <Rpolychondritisegroups>

>Subject: RE: I feel really crappy!!!!!!

>Date: Tue, 8 Aug 2000 22:05:02 -0700

>

>Hi Carmela

>Thanks for the words of encouragement. Today was better than yesterday, at

>least I think. I was so busy at work I didn't have time to feel the pain

>until now. I don't know why the Rheumy wants me to flare, my regular Dr.

>hasn't even got the results back from him yet. Right know I'm too tired to

>be angry. Thursday I'm supposed to go down to 15 mg then 20mg the next but

>I'm going to see my regular DR. first. Work is hard too, my boss quit and

>I've been left to run the ship. I don't make a very good captain,

>especially

>right now. Anyhow I still feel crappy which is one step up from really

>crappy. I guess that's good. Hope you are feeling well. Take care,

>Elaine

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

>From: T7BURR@...

>Reply-To: Rpolychondritisegroups

>To: Rpolychondritisegroups

>Subject: Re: I feel really crappy!!!!!!

>Date: Wed, 9 Aug 2000 13:47:02 EDT

>

>Hi, Glad to bring any new perspective to this crazy thing calledRP. My

>Rheum.

>only seems to give me major credibility when I look like Rudolph the

>Red-nosed reindeer. The rest of the time he lapses back to " well maybe this

>is something else. Maybe this is allergies, Fibro pain, etc. If he can't

>seeit-even though he diagnosed it early on, he lacks confidence.

**************************

***** Oh Tricia... he sounds like my rheumy... those are his words 'well

maybe this is something else' like what doc???

Carmela

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

In a message dated 8/8/00 11:55:38 PM Eastern Daylight Time,

RCColloran@... writes:

<< Please take care of yourself and know that we are all

here for you to vent any time you want.

>>

I second that!!!!

Love and Squeezes,

Rene'

[Guest guest]

Hi Elaine

For now i guess you just have to be patient, but remember to stop and take a

breather, OK?...as for a new rheumy, perhaps it's worth the commute to

Vancouver or in order to have a good rheumy who you'll feel

comfortable with. It's your health which is important the rest can go

poo-poo!!!

take care of yourself sweetie

love ya

Carmela

**********************

>

>Reply-To: Rpolychondritisegroups

>To: <Rpolychondritisegroups>

>Subject: RE: I feel really crappy!!!!!!

>Date: Wed, 9 Aug 2000 22:22:32 -0700

>

>Hi Carmela,

>Feeling crappy again. I ahve amajor event at work, coming up in just two

>weeks that i have to do. After that i'm laid off so I'll have lots of time

>to rest. My reg. doc will probably send me to someone else. It's hard to

>type now. have to go. Elaine

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

In a message dated 08/09/2000 9:49:17 AM Central Daylight Time,

cottage@... writes:

<< It's my body and I'm going to

refuse to flare!!!!

Thanks for the advise, I'm glad that you are all out there!

Take care,

Elaine >>

Way to go Elaine!

Lu

[Guest guest]

In a message dated 08/09/2000 9:12:32 PM Central Daylight Time,

carmela999@... writes:

<< Oh Tricia... he sounds like my rheumy... those are his words 'well

maybe this is something else' like what doc???

Carmela

________________________________________________________________ >>

hey you know I think that is what all rheumys say.

Lu