Re: May

[Guest guest]

May,

I love having the oximeter. I too have found that stress drops my sats almost immediately. Weird isn't it? I love reading about your wedding news. I had my hair and makeup done for one of my kids weddings and loved it. It was such a splurge , but worth every penny. I felt like royalty. Take care-

Sarcoid/PF 3/2006 California

Pred or No Pred; Thank you for responding; Homeopathic Treatment> > Thank you all for responding. Mama-Sher, your posts always put a > smile on my face. > Ok, The results are in; they vary btw "I will never take PRED" > to "PRED has been a life saver"> My biopsy reports states "chronic interstitial inflammation" . The > nurse made it clear that there was a ton of inflammation but not a > lot of fibrosis in my biopsy. The nurse was adamant (without > telling me what to do) that I get on PRED. Your responses have made > the decision much easier for me. Beth, in particular, > wrote "Part of the disease process that we have is that the > inflammation eventually scars and becomes fibrotic". Since

PRED can > reduce inflammation, I have no choice but to start taking it. Now > if it causes me to lose my hair, I would be really mad. > Another good suggestion was to participate in "Evaluation for > Transplant". I don't have to commit to it while gaining valuable > information.> I was not able to complete the DLCO part of the PFT in Oct 07. I > would end up coughing. I was asked to attempt the DLCO when I > visited UCSF. At first I refused due to the phantom pain. When the > nurse stressed how important it would be for the panel to know my > diffusion capacity, I gave it a shot. My diffusion capacity came at > 38%. I think I can improve upon that number in a few months. This > is based on two main reasons. One, I will be ~6 months away from > smoking. I have not smoked since 2/2/08. Second, I'm hoping that > in a few months I will be free from this

phantom pain and perhaps > give a better effort.> > Homeopathic Treatment:> > What is the consensus on homeopathic treatment? Is anyone being > treated by a homeopathic doctor? Has any one looked into it? > I have received a lot of calls from back home (Pakistan). Many > folks have recommended (with testaments) that I consider homeopathic > treatment. A family member, who is a medical doctor (MBBS), told me > that his wife was diagnosed with interstitial lung disease > approximately fifteen years ago. She has been treated with both, > steroids and the homeopathic treatment. She has maintained her > stats over the years. He recommended that I speak with two > homeopathic doctors. I did. One of those doctors also has an MD. > He sounded very optimistic after reviewing my medical records, > family history, and current symptoms. He projected

that with my > current condition I `should' live a fairly normal life for another > 20+ yrs. I told him that my Pulmo is giving me "6 mo – 2 yrs" while > you are making it sound like I have a common cold. So, with a grain > of salt, I would take his prescribed medicine as well. I will > receive the homeopathic medicine in a few days. Thus, I'm eager to > find out if anyone else has already tried homeopathic treatment?> > Brett, my kids just turned thirteen. I have a twin boy/girl. My > son is a jock. He stars in baseball, basketball and football. My > daughter is the complete opposite. She is a Barbie doll. She > excels in academia. She has taken my illness very seriously. She > is internet savvy and there is a lot of depressing data out there > when it comes to UIP. I constantly assure her that I will do my > utmost to be around her for as long as I

possibly can. My son, on > the other hand, does not show much emotion. He quietly went to his > room when first told of my illness. It was the day I returned from > the hospital. He did not say a word to me for a couple of days. On > third day he comes up to me and says, and I quote "hey dad, I'm > getting tired of you sitting on this sofa; why don't you go walk a > mile or something", end quote. I don't think he loves me any less > than his sister. It is just hard for us guys to show emotions. I > think daughters in general are more caring. You have a beautiful > daughter. Here is hoping that you are around when she > celebrates her fiftieth birthday. > > Dilwala > > > > > ____________ _________ _________ _________ _________ __>

[Guest guest]

denise

my husband, who wears his hair very very short is all worried

about what to do with his hair. he fancies getting blond streaks.

he had blond highlights when he got married as a 21yr old! i

said no no no - he didn't want to outshine the bride. hahaha.

i have not suggested the spray tan yet, he will be delighted at

that idea. my sister suggested i get micro dermabrasion (sp)

saying that it takes away lines in the face. i said that i didnt

even notice that i had those lines and didnt want to upstage

the bride. she didn't get that i was kidding and said there was

'nae chance of that'.

may

> >

> > Diwala,

> > I have spent literally thousands of dollars on homeopathic

> treatments and the end result is I am still getting worse each

year.

> I have now gone to three different homeopathic doctors, the last

> recommended by a friend who was cured of cancer ( she has since

> died). I have taken expensive vitamins, envibe, xymogen, mona vie,

> ambresol,chinese lung formula,had my blood tested for food

allergies

> ( $600.00!) foot detoxes, and accupressure and tried several detox

> diets including the lemonade fast. The only things that have made a

> difference is giving up coffee ( sorry fellow coffee addicts) and

> sticking to an anti-inflammatory diet AND!!! prednisone. I too have

> active inflammation ( along with a lot of scarring) and the

> prednisone seems to keep it in check. I hate taking it but I don't

> cough near as much, my lung volume increases from 34% to 60 and the

> scarring progresses much slower. Every doctor said that coffee

> increases inflammation and since I have

> > stopped drinking it I notice an immediate difference if I have a

> cup. My chest is tighter and I get a dull ache in my lungs. The

> anti inflammtion diet ( no breads or processed foods) doesn't make

a

> big difference in how I feel but I don't get puffy from the

steroids

> or gain more weight. I think some people get PF and it never

> progresses while others of us keep getting worse no matter what we

> do. I do have a theory that it progresses quicker if we are too

> active. It seems like the younger people with this ( especially

> those who still work) get worse faster than those who are retired

and

> lead less active lives. I have no proof of this, but since I have

> quit work and greatly slowed my lifestyle down mine has not been

> progressing as quick as before. My big goal is to make it to 60.

> Hope this helps-

> >

> >

> > Sarcoid/PF 3/2006 California

> >

> >

> >

> >

> > Pred or No Pred; Thank you for

> responding; Homeopathic Treatment

> >

> > Thank you all for responding. Mama-Sher, your posts always put a

> > smile on my face.

> > Ok, The results are in; they vary btw " I will never take PRED "

> > to " PRED has been a life saver "

> > My biopsy reports states " chronic interstitial inflammation " .

The

> > nurse made it clear that there was a ton of inflammation but not

a

> > lot of fibrosis in my biopsy. The nurse was adamant (without

> > telling me what to do) that I get on PRED. Your responses have

made

> > the decision much easier for me. Beth, in particular,

> > wrote " Part of the disease process that we have is that the

> > inflammation eventually scars and becomes fibrotic " . Since PRED

can

> > reduce inflammation, I have no choice but to start taking it. Now

> > if it causes me to lose my hair, I would be really mad.

> > Another good suggestion was to participate in " Evaluation for

> > Transplant " . I don't have to commit to it while gaining valuable

> > information.

> > I was not able to complete the DLCO part of the PFT in Oct 07. I

> > would end up coughing. I was asked to attempt the DLCO when I

> > visited UCSF. At first I refused due to the phantom pain. When

the

> > nurse stressed how important it would be for the panel to know my

> > diffusion capacity, I gave it a shot. My diffusion capacity came

at

> > 38%. I think I can improve upon that number in a few months. This

> > is based on two main reasons. One, I will be ~6 months away from

> > smoking. I have not smoked since 2/2/08. Second, I'm hoping that

> > in a few months I will be free from this phantom pain and perhaps

> > give a better effort.

> >

> > Homeopathic Treatment:

> >

> > What is the consensus on homeopathic treatment? Is anyone being

> > treated by a homeopathic doctor? Has any one looked into it?

> > I have received a lot of calls from back home (Pakistan). Many

> > folks have recommended (with testaments) that I consider

> homeopathic

> > treatment. A family member, who is a medical doctor (MBBS), told

me

> > that his wife was diagnosed with interstitial lung disease

> > approximately fifteen years ago. She has been treated with both,

> > steroids and the homeopathic treatment. She has maintained her

> > stats over the years. He recommended that I speak with two

> > homeopathic doctors. I did. One of those doctors also has an MD.

> > He sounded very optimistic after reviewing my medical records,

> > family history, and current symptoms. He projected that with my

> > current condition I `should' live a fairly normal life for

another

> > 20+ yrs. I told him that my Pulmo is giving me " 6 mo – 2 yrs "

while

> > you are making it sound like I have a common cold. So, with a

grain

> > of salt, I would take his prescribed medicine as well. I will

> > receive the homeopathic medicine in a few days. Thus, I'm eager

to

> > find out if anyone else has already tried homeopathic treatment?

> >

> > Brett, my kids just turned thirteen. I have a twin boy/girl. My

> > son is a jock. He stars in baseball, basketball and football. My

> > daughter is the complete opposite. She is a Barbie doll. She

> > excels in academia. She has taken my illness very seriously. She

> > is internet savvy and there is a lot of depressing data out there

> > when it comes to UIP. I constantly assure her that I will do my

> > utmost to be around her for as long as I possibly can. My son, on

> > the other hand, does not show much emotion. He quietly went to

his

> > room when first told of my illness. It was the day I returned

from

> > the hospital. He did not say a word to me for a couple of days.

On

> > third day he comes up to me and says, and I quote " hey dad, I'm

> > getting tired of you sitting on this sofa; why don't you go walk

a

> > mile or something " , end quote. I don't think he loves me any less

> > than his sister. It is just hard for us guys to show emotions. I

> > think daughters in general are more caring. You have a beautiful

> > daughter. Here is hoping that you are around when she

> > celebrates her fiftieth birthday.

> >

> > Dilwala

> >

> >

> >

> >

> > ____________ _________ _________ _________ _________ __

> >

[Guest guest]

Ooooouch....how Sisterly was THAT....she clearly suffers from Humour Bypass...LOL!

Now WARNING...Micro Dermabrasion will leave you looking WORSE before you start to GLOW......DON'T Do it unless you have LOTS n' LOTS of time fro your skin to calm down from the procedure....

NO I've never had it done but I have witnessed others....NOT a pretty look for quite a while!

GIO> > >> > > Diwala,> > > I have spent literally thousands of dollars on homeopathic > > treatments and the end result is I am still getting worse each > year. > > I have now gone to three different homeopathic doctors, the last > > recommended by a friend who was cured of cancer ( she has since > > died). I have taken expensive vitamins, envibe, xymogen, mona vie, > > ambresol,chinese lung formula,had my blood tested for food > allergies > > ( $600.00!) foot detoxes, and accupressure and tried several detox > > diets including the lemonade fast. The only things that have made a > > difference is giving up coffee ( sorry fellow coffee addicts) and > > sticking to an anti-inflammatory diet AND!!! prednisone. I too have > > active inflammation ( along with a lot of scarring) and the > > prednisone seems to keep it in check. I hate taking it but I don't > > cough near as much, my lung volume increases from 34% to 60 and the > > scarring progresses much slower. Every doctor said that coffee > > increases inflammation and since I have> > > stopped drinking it I notice an immediate difference if I have a > > cup. My chest is tighter and I get a dull ache in my lungs. The > > anti inflammtion diet ( no breads or processed foods) doesn't make > a > > big difference in how I feel but I don't get puffy from the > steroids > > or gain more weight. I think some people get PF and it never > > progresses while others of us keep getting worse no matter what we > > do. I do have a theory that it progresses quicker if we are too > > active. It seems like the younger people with this ( especially > > those who still work) get worse faster than those who are retired > and > > lead less active lives. I have no proof of this, but since I have > > quit work and greatly slowed my lifestyle down mine has not been > > progressing as quick as before. My big goal is to make it to 60. > > Hope this helps- > > > > > > > > > Sarcoid/PF 3/2006 California> > > > > > > > > > > > > > > Pred or No Pred; Thank you for > > responding; Homeopathic Treatment> > > > > > Thank you all for responding. Mama-Sher, your posts always put a > > > smile on my face. > > > Ok, The results are in; they vary btw "I will never take PRED" > > > to "PRED has been a life saver"> > > My biopsy reports states "chronic interstitial inflammation" . > The > > > nurse made it clear that there was a ton of inflammation but not > a > > > lot of fibrosis in my biopsy. The nurse was adamant (without > > > telling me what to do) that I get on PRED. Your responses have > made > > > the decision much easier for me. Beth, in particular, > > > wrote "Part of the disease process that we have is that the > > > inflammation eventually scars and becomes fibrotic". Since PRED > can > > > reduce inflammation, I have no choice but to start taking it. Now > > > if it causes me to lose my hair, I would be really mad. > > > Another good suggestion was to participate in "Evaluation for > > > Transplant". I don't have to commit to it while gaining valuable > > > information.> > > I was not able to complete the DLCO part of the PFT in Oct 07. I > > > would end up coughing. I was asked to attempt the DLCO when I > > > visited UCSF. At first I refused due to the phantom pain. When > the > > > nurse stressed how important it would be for the panel to know my > > > diffusion capacity, I gave it a shot. My diffusion capacity came > at > > > 38%. I think I can improve upon that number in a few months. This > > > is based on two main reasons. One, I will be ~6 months away from > > > smoking. I have not smoked since 2/2/08. Second, I'm hoping that > > > in a few months I will be free from this phantom pain and perhaps > > > give a better effort.> > > > > > Homeopathic Treatment:> > > > > > What is the consensus on homeopathic treatment? Is anyone being > > > treated by a homeopathic doctor? Has any one looked into it? > > > I have received a lot of calls from back home (Pakistan). Many > > > folks have recommended (with testaments) that I consider > > homeopathic > > > treatment. A family member, who is a medical doctor (MBBS), told > me > > > that his wife was diagnosed with interstitial lung disease > > > approximately fifteen years ago. She has been treated with both, > > > steroids and the homeopathic treatment. She has maintained her > > > stats over the years. He recommended that I speak with two > > > homeopathic doctors. I did. One of those doctors also has an MD. > > > He sounded very optimistic after reviewing my medical records, > > > family history, and current symptoms. He projected that with my > > > current condition I `should' live a fairly normal life for > another > > > 20+ yrs. I told him that my Pulmo is giving me "6 mo – 2 yrs" > while > > > you are making it sound like I have a common cold. So, with a > grain > > > of salt, I would take his prescribed medicine as well. I will > > > receive the homeopathic medicine in a few days. Thus, I'm eager > to > > > find out if anyone else has already tried homeopathic treatment?> > > > > > Brett, my kids just turned thirteen. I have a twin boy/girl. My > > > son is a jock. He stars in baseball, basketball and football. My > > > daughter is the complete opposite. She is a Barbie doll. She > > > excels in academia. She has taken my illness very seriously. She > > > is internet savvy and there is a lot of depressing data out there > > > when it comes to UIP. I constantly assure her that I will do my > > > utmost to be around her for as long as I possibly can. My son, on > > > the other hand, does not show much emotion. He quietly went to > his > > > room when first told of my illness. It was the day I returned > from > > > the hospital. He did not say a word to me for a couple of days. > On > > > third day he comes up to me and says, and I quote "hey dad, I'm > > > getting tired of you sitting on this sofa; why don't you go walk > a > > > mile or something", end quote. I don't think he loves me any less > > > than his sister. It is just hard for us guys to show emotions. I > > > think daughters in general are more caring. You have a beautiful > > > daughter. Here is hoping that you are around when she > > > celebrates her fiftieth birthday. > > > > > > Dilwala > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ __> > >

[Guest guest]

May,

I am behind in posts and just got to yours. What fun you are having! I say let the hubbie go for the blond streaks! I use fake tanning cream all the time. It works great. Can't wait to see the pictures- Sarcoid/PF 3/2006 California

Pred or No Pred; Thank you for > responding; Homeopathic Treatment> > > > Thank you all for responding. Mama-Sher, your posts always put a > > smile on my face. > > Ok, The results are in; they vary btw "I will never take PRED" > > to "PRED has been a life saver"> > My biopsy reports states "chronic interstitial inflammation" . The > > nurse made it clear that there was a ton of inflammation but not a > > lot of fibrosis in my biopsy. The nurse was adamant (without > > telling me what to do) that I get on PRED. Your responses have made > > the decision much easier for me. Beth, in particular, > > wrote "Part of the disease process that we have is that the > > inflammation eventually scars and becomes fibrotic". Since

PRED can > > reduce inflammation, I have no choice but to start taking it. Now > > if it causes me to lose my hair, I would be really mad. > > Another good suggestion was to participate in "Evaluation for > > Transplant". I don't have to commit to it while gaining valuable > > information.> > I was not able to complete the DLCO part of the PFT in Oct 07. I > > would end up coughing. I was asked to attempt the DLCO when I > > visited UCSF. At first I refused due to the phantom pain. When the > > nurse stressed how important it would be for the panel to know my > > diffusion capacity, I gave it a shot. My diffusion capacity came at > > 38%. I think I can improve upon that number in a few months. This > > is based on two main reasons. One, I will be ~6 months away from > > smoking. I have not smoked since 2/2/08.

Second, I'm hoping that > > in a few months I will be free from this phantom pain and perhaps > > give a better effort.> > > > Homeopathic Treatment:> > > > What is the consensus on homeopathic treatment? Is anyone being > > treated by a homeopathic doctor? Has any one looked into it? > > I have received a lot of calls from back home (Pakistan). Many > > folks have recommended (with testaments) that I consider > homeopathic > > treatment. A family member, who is a medical doctor (MBBS), told me > > that his wife was diagnosed with interstitial lung disease > > approximately fifteen years ago. She has been treated with both, > > steroids and the homeopathic treatment. She has maintained her > > stats over the years. He recommended that I speak with two > > homeopathic doctors. I did. One of those

doctors also has an MD. > > He sounded very optimistic after reviewing my medical records, > > family history, and current symptoms. He projected that with my > > current condition I `should' live a fairly normal life for another > > 20+ yrs. I told him that my Pulmo is giving me "6 mo – 2 yrs" while > > you are making it sound like I have a common cold. So, with a grain > > of salt, I would take his prescribed medicine as well. I will > > receive the homeopathic medicine in a few days. Thus, I'm eager to > > find out if anyone else has already tried homeopathic treatment?> > > > Brett, my kids just turned thirteen. I have a twin boy/girl. My > > son is a jock. He stars in baseball, basketball and football. My > > daughter is the complete opposite. She is a Barbie doll. She > > excels in academia. She has

taken my illness very seriously. She > > is internet savvy and there is a lot of depressing data out there > > when it comes to UIP. I constantly assure her that I will do my > > utmost to be around her for as long as I possibly can. My son, on > > the other hand, does not show much emotion. He quietly went to his > > room when first told of my illness. It was the day I returned from > > the hospital. He did not say a word to me for a couple of days. On > > third day he comes up to me and says, and I quote "hey dad, I'm > > getting tired of you sitting on this sofa; why don't you go walk a > > mile or something", end quote. I don't think he loves me any less > > than his sister. It is just hard for us guys to show emotions. I > > think daughters in general are more caring. You have a beautiful > > daughter. Here is

hoping that you are around when she > > celebrates her fiftieth birthday. > > > > Dilwala > > > > > > > > > > ____________ _________ _________ _________ _________ __> >