Re: Pulse Oximeter sounding off

[Guest guest]

Hi ,

I just noticed that you said you were in search of

a bed but didnt want one that looks too much like a

hospital bed. I just saw one a little while ago

advertised in the Exceptional Parent magazine. To me

it looks terrific and we are looking into it also. Its

called Volea style bed. Go to www.hertzsupply.com It

looks like the perfect bed and no one would even know

it all all the functions of a hospital bed. I ve also

seen the Vail bed. It looks more like a hospital bed

though to me. It think it would be great to keep kids

in and they do decorate it well but its got a full

canopy kind of thing. You can find that one at

www.vailbed.com Hope either of those help. Good luck

in finding one you like.

Kimberley

--- " RALPH KEOGH JR, " wrote:

> Hey Cheri

> My original question was on the zero readings on the

> pulse oximeter,

> wondering what was causing it. It didn't worry me

> to death, but at the same

> time I was wanting to know why? Was it having to do

> with my daughter's

> health or with the equipment. Tonight I did take a

> Q tip dipped in rubbing

> alcohol and cleansed the sensor, hoping this will do

> the trick. These

> events don't happen every night, so not sure if

> tonight will be a true test

> of it. I did mention in a prior email that she has

> been having nights where

> she is sweating (quite heavy at times.) Not sure if

> this could also be the

> problem. At this moment, I can't recall what it was

> that made me wonder if

> she had sleep apnea, but whatever it was, I

> mentioned it to the doctor and a

> sleep study was setup, from which we did learn that

> she does, the doctor's

> comment was " Its not bad, but its not good either. "

> I quess her way of

> saying she has it, but not as bad as some could.

> I'm not familiar with an

> apnea monitor and what all that it does. I do

> believe the Bi-Pap is

> encouraging her to breath more regular, not sure if

> it is because of less

> effort or the sensation of the air in the face. I

> am thankful that we have

> such equipment to assist when sleeping. Now I'm in

> the persuit of a medical

> bed that has the trendillenburg (I think that's how

> its called) tilt, which

> will provide a flat surface to sleep on but

> elevation at the head which is

> what she needs for breathing and sleeping comfort,

> because she prefers to

> sleep on her side. Imagine taking a board lying on

> the floor and lifting

> only one end, that is the tilt I'm talking about.

> Plus the lung specialist

> stated that a person is more apt to stop breathing

> if they sleep on their

> back. I hate that the bed will look like a hospital

> bed, because it is.

> But, this bed will meet the many health issues we

> are dealing with now and

> hopefully any that we may have in the future. I'm

> at the point I'm going to

> have to appeal insurance on it, they only approved a

> semi-eletric bed.

> :-( Also, I'm trying to get a specific mattress to

> go on it. She is

> boarderline to pressure sores. Sorry, this drug out

> to more than you

> probably really wanted to know. Thanks for still

> hanging in there for me to

> figure out all this craziness. :-)

>

>

> Re: Pulse Oximeter sounding off

>

>

> >

> > In a message dated 7/16/02 7:22:16 PM,

> mkeogh@... writes:

> >

> > >Any clue what is happening during the sleep apnea

> that may cause this.

> > >

> >

> >

> > ,

> >

> > Is your daughter on an apnea monitor? One may

> have to stop breathing

> longer

> > before their sats drop and can set off an oximeter

> alarm. On the other

> hand,

> > perhaps the bipap keeps things in check for your

> DD.

> >

> > I know your question was addressed to Laurie, but

> I never understood

> exactly

> > what you were asking about.

> >

> > Cheri

> >

> >

> >

> > Please contact mito-owner with any

> problems or questions.

> >

> >

[Guest guest]

Hi e

I've asked Cassie if she would rather wear the sensor on her toe and she

refused. With all the great feedback that I have been receiving on the

Pulse Oximeter, I'm really thinking that it is equipment

sensitivity/problems.

As far as Chelsea's difference in readings from side to side, I'm no doctor,

but a wild quess here. I've been told that with the weakness in the muscles

there is increase in edema, because the muscles help the fluids move along.

With the edema, there maybe some squeezing on the blood vessels and therefor

maybe affecting the readings. But then again I may be wrong. My daughter

has leftside weakness as well. No definite diagnosis yet. This weakness is

slowly showing itself on the rightside. If Cassie will allow me to, I'll

try to put the sensor on her left side tonight to see if it reads

differently too.

Take Care

Re: Pulse Oximeter sounding off

> Chelsea's home health care provider recently switched us to a

non-disposable

> sensor. I have noticed that it is more sensitive than the disposable ones.

> Chelsea is immobile, but has movement disorders. Even though she is pretty

> still in her sleep, her toes and fingers are prone to an occassional

twitch,

> and the sensor ususally reacts to this. Even when she takes a deep breath.

I

> don't think I have ever seen a constant heart rate on that thing, and

Chelsea

> has not been dx'd with any heart problems. I have found I get the best

> reading with her big toe. If she has to wear it a long time, I usually

switch

> back and forth between her big toes.

> Has anyone ever noticed that your child's O2 readings are better on one

side

> than the other? I notice that Chelsea' has better reaings on her right

side

> and she has left side weakness.

>

> Krisitine, Chelsea's mom(non-specific mito)

>

>

> Please contact mito-owner with any problems or questions.

>

>

[Guest guest]

Hi Kimberley

Actually, I have located a bed that I feel will meet my daughters many needs

in this area. You might have me confused with someone else who was recently

requesting this type of info. Thanks anyway, these are great sites. I'm

sure there will be several families on this site who will benefit from being

able to see these sites. Doing research on a bed (or anything at that

matter) is such a long dragged out process. You have helped the

busy/overworked parents on this site a great deal, time wise. We're all

working 24/7. By the way, here is the bed that I have located for my

daughter through extensive research. It is a hospital bed (which I hate),

but it will meet the many concerns involved. Go to www.huntleighakron.com .

Once it is fully up, click on USA. Then click on products, then Bed Frames.

Then click on Medical/Surgical Beds-Electric. Then page down to the

Contoura 880. The biggie with this bed fram is the fully electrically

operated two-way tilt (plus/mius 18 degrees.)

My daughter likes to sleep on her side. But she needs to be elevated for

lung and reflux reasons. We've tried the recliner with pillows in the void,

but she still would wake up with pain in her hips or knees because of the

poor body alignment. Also, she has adema/mottling issues in her feet/legs

and hands/arms. Heart concerns. To name a few. I'm at the point where I'm

going to have to appeal to insurance, they only approved for a semi-electric

bed which will not meet her needs. Also, they have multiple pressure relief

mattresses to chose from. I've picked the DFS 3 Dynamic Flotation

System---my daughter is borderline to pressure sores. Not sure if they will

approve this one, since it is for the more severe pressure sore issues.

Thanks again

Re: Pulse Oximeter sounding off

> >

> >

> > >

> > > In a message dated 7/16/02 7:22:16 PM,

> > mkeogh@... writes:

> > >

> > > >Any clue what is happening during the sleep apnea

> > that may cause this.

> > > >

> > >

> > >

> > > ,

> > >

> > > Is your daughter on an apnea monitor? One may

> > have to stop breathing

> > longer

> > > before their sats drop and can set off an oximeter

> > alarm. On the other

> > hand,

> > > perhaps the bipap keeps things in check for your

> > DD.

> > >

> > > I know your question was addressed to Laurie, but

> > I never understood

> > exactly

> > > what you were asking about.

> > >

> > > Cheri

> > >

> > >

> > >

> > > Please contact mito-owner with any

> > problems or questions.

> > >

> > >

[Guest guest]

Hi ,

That does seem like a great bed. We right now are

lucky enough to be able to simply use our daughters

normal bed with a few home made modifications for her.

It does sound like a great bed that you have picked.

Sorry its been hectic around here lately with our

daughter having some really bad days. I'm new to this

list though and have been trying to catch up on who

people are. My daughter is 4 yrs old and her name is

Theresa. Im glad to head that you have been able to

find a bed suitable for your daughter. Perhaps you cna

get the insurance co to pay the amount that a semi

auto bed would be and only need to pay the difference?

Worth a shot maybe?

Kimberley

--- " RALPH KEOGH JR, " wrote:

> Hi Kimberley

> Actually, I have located a bed that I feel will meet

> my daughters many needs

> in this area. You might have me confused with

> someone else who was recently

> requesting this type of info. Thanks anyway, these

> are great sites. I'm

> sure there will be several families on this site who

> will benefit from being

> able to see these sites. Doing research on a bed

> (or anything at that

> matter) is such a long dragged out process. You

> have helped the

> busy/overworked parents on this site a great deal,

> time wise. We're all

> working 24/7. By the way, here is the bed that I

> have located for my

> daughter through extensive research. It is a

> hospital bed (which I hate),

> but it will meet the many concerns involved. Go to

> www.huntleighakron.com .

> Once it is fully up, click on USA. Then click on

> products, then Bed Frames.

> Then click on Medical/Surgical Beds-Electric. Then

> page down to the

> Contoura 880. The biggie with this bed fram is the

> fully electrically

> operated two-way tilt (plus/mius 18 degrees.)

> My daughter likes to sleep on her side. But she

> needs to be elevated for

> lung and reflux reasons. We've tried the recliner

> with pillows in the void,

> but she still would wake up with pain in her hips or

> knees because of the

> poor body alignment. Also, she has adema/mottling

> issues in her feet/legs

> and hands/arms. Heart concerns. To name a few. I'm

> at the point where I'm

> going to have to appeal to insurance, they only

> approved for a semi-electric

> bed which will not meet her needs. Also, they have

> multiple pressure relief

> mattresses to chose from. I've picked the DFS 3

> Dynamic Flotation

> System---my daughter is borderline to pressure

> sores. Not sure if they will

> approve this one, since it is for the more severe

> pressure sore issues.

> Thanks again

>

> Re: Pulse Oximeter sounding off

> > >

> > >

> > > >

> > > > In a message dated 7/16/02 7:22:16 PM,

> > > mkeogh@... writes:

> > > >

> > > > >Any clue what is happening during the sleep

> apnea

> > > that may cause this.

> > > > >

> > > >

> > > >

> > > > ,

> > > >

> > > > Is your daughter on an apnea monitor? One may

> > > have to stop breathing

> > > longer

> > > > before their sats drop and can set off an

> oximeter

> > > alarm. On the other

>

=== message truncated ===

__________________________________________________