Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 I forwarded info you went on this drug to the Pgh NF group, and she reminded me that at an NF Inc. meeting we attended last year, there was a guy with severe NF1, who was participating in trials at Mayo; and she said it was this drug. (clueless me cannot remember of course, thinking it was NF1 and not paying much attention). I am contacting a lady at NF Inc to see if they have had any follow up on this fellow to see what they know about how things went. Marie Quote Link to comment Share on other sites More sharing options...
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