Re: To Melody... Hope-- I am so sorry

[Guest guest]

Debra my sister/friend, no need to be sorry! I had a horrible day and

it just hit me like a boulder (instead of just a rock) and knocked me

back a few. I know we all have those now and then, and I was bogged

down with so many negative feelings and thoughts, fears, and lost hope

for all things good.

Thank you for everything you said. I felt completely alone in the

progression discussion and like I only angered anyone if I talked about

how my fibro did not progress. I felt like I was misunderstood as

saying fibro does not progress, when it does progress in some (maybe

most?) individuals. My own individual fibro has done the opposite but

no I don't know what tomorrow may bring. I don't want to accept

progression just yet, I need to deal with one day at a time and live in

today or else I want to take to my bed bracing myself for a scary

future. I hope and pray the future isn't so dark, and that I don't wake

up one day suffering so terribly like most here endure. I think as long

as I am feeling " tolerable " I am here to help those of you who are going

through the worst pain imaginable, and I can offer whatever support you

may need.

Your words bring light back into my life and hope. I do appreciate this

whole email and I'm keeping it forever! I'll read these words on bad

days. You mean the world to me and many others, you are an angel here

in this group always bringing hope and love to us all, anytime you ever

need that in return, please just write to me or call, if you ever need

to call I'll let you have my phone number off the list - just ask.

Bless you and thank you for always being so supportive of us all. And

for reaching out to me.

Love and hugs,

Melody

debra van ness wrote:

> Melody, I am so sorry. I just feel so horrible for adding to your misery and

fears. Please keep in mind that not ALL of us are the same. Have you

progressed? If not then you probably won't. Please don't be so sure. I have

heard that the majority of us do find it progresses, but that does not mean that

it does every single time. Sweetie, Please. I just want to pick you up and hug

you. And as for the teeth thing, there is really nothing out there that says

fibro will do this to our teeth. Alot of folks here have had fibro for years

and still have great teeth. If it is fibro that is doing this to some of us, It

won't do it to all of us.

>

> I only really speak from personal experience. I don't have any idea what

other people's bodies will do or how they will feel 5 or 10 years from now.

Hell, I dont' know about my own. Maybe I have hit the peek of what this will do

and maybe it won't get worse. As of now I am still able to get out of bed, go

to work, and take care of myself. It may not be easy, but I can still do it.

Maybe I will still be able to do that in 20 years.

>

> Honey, please don't be so sure that all your teeth will fall out and you

will be bound to the bed for life. It likely is not so. Really. I don't mind

it when people say that their FM has not progressed... it is a wonderful thing

to hear. I just have to tell my own experience with it so I can deal with the

fact that mine has. BUT MAYBE MINE WILL NOT GET ANY WORSE. And MAYBE yours

won't either.

>

> I just feel so helpless in the comfort I would like to give you. I just

don't know how to fix the horrible fears I feel I have had a hand in provoking.

>

> I am so sorry.

> love from the heart,

> Debra V.

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it

now.

>

>