Re: no test for diagnosis

[Guest guest]

-

Those are great reminders - thank you.

I like your sister's comment...we all probably try to bully ourselves

into feeling better, only to wind up depressed and hurting from the

effort.

Yes, you're right - I do know that there are many diseases that now

have testing available. I'm a medical technologist and have performed

many of them. Hopefully, research results will soon provide us with

cause of and cure for this awful thing!

a

>

> > I work in the medical field and believe that if you can't show me a

> > test result that proves I have this, then it isn't real. right.

> > Part of me feels that I should toughen up and quit whining...that's

> > the part in total denial of the diagnosis.

>

> Working in the medical field, you must know that there are many

> illnesses that are diagnosed now that didn't have tests. There

> wasn't a test for HIV when it first came into the public

> consciousness; does that mean it didn't exist? Remember when ulcers

> were from stress in Type A personalities? Darned if they didn't

> discover H-Pylori and, lo and behold, a test for it. There didn't

> used to be a test for cervical cancer. We can go back to when

> illness was caused by ethers and vapors, before instruments were

> invented that could look at bacteria and viruses. Heck, we could go

> back to when the sun and the planets revolved around the earth!

> Which, by the bye, is flat and rides on the back of a turtle. ;D

>

> You can drive yourself nuts if you have an illness that has no test,

> if you go by a criteria that " if there's no test for it, there's no

> illness " . Fibro is a frustrating illness, because we don't *look*

> sick, and there aren't blood tests. We've been through a rash of

> that this past week or so since that opinion piece masquerading as a

> news article was published in the NY Times.

>

> Toughen up all you want, but chances are you can't " bully yourself

> well " (as my sister puts it). Fibromyalgia seems to be an illness

> that requires frequent attention and working with yourself and your

> body to learn to live with, and hopefully avoid and minimize, flareups.

>

> Welcome to the group!

>

> Z

>