Re: Re: K/Sher/Bruce/Peggy

[Guest guest]

I read this to him.. Thank you thank you!!!!!!!! We will be careful. My son doesn't think the doc will let him go off. Don just smiled. I really don't think he will say much. Sher. Don and I were talking when I told him that the PNW was having their own fund raiser. We have always wanted to go to the W coast. If we can get his health better we just might come west. That is something to shoot for isn't it? K Illinois Sher Bauman wrote: I'm anxious to see how K responds now. . Does Don monitor his own meds? If so, there is the possibility he can over or under dose simply by not feeling well...forgetting...mood swing....even accidentally. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Re: K SherOmg your light is on bright. My money is on him having at the very leastskipped a time or two, whether a conscious decision on his part or not.> > > > >> > > > > Sher,> > > > > I'm happy to hear the doctors have switched your diagnosis.NSIP> > > > is definitely preferable to IPF, the life expectancy is muchlonger> > > > and as a bonus, it does not always progress. As a matter offact,> > > > Dr. on at Duke just told me last month that he's seen> > patients> > > > with NSIP who have been "stable for decades." I mean I know thatmy> > > > experience may be different but anything that gives us hope is> > > > helpful!> > > > > Have they switched your dx based on the behavior of the> > disease or> > >

> also on the ct scan results? NSIP is usually very identifiable> > by CT> > > > scan. To identify the type of NSIP (fibrotic, cellular or mixed)> > you> > > > would need a biopsy. But at this point it probably doesn't> > matter as> > > > long as your stable. I understand why you wouldn't put yourself> > > > through that. I don't regret my biopsy but I totally get whyyou've> > > > chosen not to go down that road.> > > > > In the meantime, celebrate stability!! Stable is my happyword!!> > > > > Beth> > > > > Age 48 Fibrotic NSIP 06/06> > > > >> > > > > Change everything. Love and Forgive> > > > >> > > >> > >> >> >> >> >> > Caro> > ASTHMA

1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08,> > RHEUMATOID ARTHRITIS 03/08> > Mississippi> > ____________ _________ _________ _________ _________ __> >

[Guest guest]

...Wow! something to shoot for is an understatement.

I'm confused when you say "fund raiser". We are not raising any money but arranging to meet each other in the Seattle area. We are tentatively thinking June....at this point it's been hoping we could meet together in the PNW. There have gatherings in other states but none out here.

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Re: K

SherOmg your light is on bright. My money is on him having at the very leastskipped a time or two, whether a conscious decision on his part or not.> > > > >> > > > > Sher,> > > > > I'm happy to hear the doctors have switched your diagnosis.NSIP> > > > is definitely preferable to IPF, the life expectancy is muchlonger> > > > and as a bonus, it does not always progress. As a matter offact,> > > > Dr. on at Duke just told me last month that he's seen> > patients> > > > with NSIP who have been "stable for decades." I mean I know thatmy> > > > experience may be different but anything that gives us hope is> > > > helpful!> > > > > Have they switched your dx based on the behavior of the> > disease or> > > > also on the ct scan results? NSIP is usually very identifiable> > by CT> > > > scan. To identify the type of NSIP (fibrotic, cellular or mixed)> > you> > > > would need a biopsy. But at this point it probably doesn't> > matter as> > > > long as your stable. I understand why you wouldn't put yourself> > > > through that. I don't regret my biopsy but I totally get whyyou've> > > > chosen not to go down that road.> > > > > In the meantime, celebrate stability!! Stable is my happyword!!> > > > > Beth> > > > > Age 48 Fibrotic NSIP 06/06> > > > >> > > > > Change everything. Love and Forgive> > > > >> > > >> > >> >> >> >> >> > Caro> > ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08,> > RHEUMATOID ARTHRITIS 03/08> > Mississippi> > ____________ _________ _________ _________ _________ __> >

[Guest guest]

K IllinoisSher Bauman wrote: ...Wow! something to shoot for is an understatement. I'm confused when you say "fund raiser". We are not raising any money but arranging to meet each other in the Seattle area. We are tentatively thinking June....at this point it's been hoping we could meet together in the

PNW. There have gatherings in other states but none out here. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Re: K SherOmg your light is on bright. My money is on him having at the

very leastskipped a time or two, whether a conscious decision on his part or not.> > > > >> > > > > Sher,> > > > > I'm happy to hear the doctors have switched your diagnosis.NSIP> > > > is definitely preferable to IPF, the life

expectancy is muchlonger> > > > and as a bonus, it does not always progress. As a matter offact,> > > > Dr. on at Duke just told me last month that he's seen> > patients> > > > with NSIP who have been "stable for decades." I mean I know thatmy> > > > experience may be different but anything that gives us hope is> > > > helpful!> > > > > Have they switched your dx based on the behavior of the> > disease or> > > > also on the ct scan results? NSIP is usually very identifiable> > by CT> > > > scan. To identify the type of NSIP (fibrotic, cellular or mixed)> > you> > > > would need a biopsy. But at this point it probably doesn't> > matter as> > > > long as your stable. I understand why you wouldn't put yourself> > > > through that. I

don't regret my biopsy but I totally get whyyou've> > > > chosen not to go down that road.> > > > > In the meantime, celebrate stability!! Stable is my happyword!!> > > > > Beth> > > > > Age 48 Fibrotic NSIP 06/06> > > > >> > > > > Change everything. Love and Forgive> > > > >> > > >> > >> >> >> >> >> > Caro> > ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08,> > RHEUMATOID ARTHRITIS 03/08> > Mississippi> > ____________ _________ _________ _________ _________ __> >